I did run across chiari when reading about IIH. My MRI report says this: "cerebellar tonsils are slightly low lying at the level of the foramen magnum." It wasn't mentioned on my first mri.
Did you have an mri that indicated this?
I've had head pressure and changes to my vision when I bend over since probably 2011. Around the same time as the humming tinnitus started. These were prior to my neuro symptoms in 2015.
I'm guessing at some point I may have to do a spinal tap to see what my pressure reads.
I'm worried if I have this, I was jumbling these symptoms up with the lyme ones and could be why I didn't get the response my doctor was expecting from abx. But then, lyme could have caused this so treatment should have made it better, one would think. I did find one post online where someone with IIH was going through the Shoemaker mold protocol and felt that VIP replacement was helpful. I will be doing that as long as my MARCoNs test comes back good in Feb.
My MRI said my tonsils were descending "not more than 3mm" or something like that. (Which means no chiari to non-chiari literate Neurologists/Neurosurgeons)
But - something is causing your intracranial hypertension.
I became sick very suddenly...one night. I would think if I had chiari...it would have come on as a child/teen or young adult...not now...and not suddenly. That's what I keep telling myself..I had quick onset of so many symptoms...
I've had two MRIs of the brain. One was dye enhanced. It showed my pituitary stalk was deviated to the left with 'unknown significance'.
They weren't particularly looking for intracranial hypertension- but hope they'd 'see' it if it was there.
Your tests do indicate lyme - with the positive epitope test for band 31. Plus the RMSF, Brucella, and Bart.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi