Traveler, thank you so much for your post and for the link to the article. Both are very helpful.
Although my ANA is consistently positive (at a low level), I've also tested negative for all the specific autoimmune markers they've checked for. (They've tested me for rheumatoid arthritis, Sjogren's syndrome, scleroderma, and maybe other things too.) But my rheumatologist says that a fair number of people with these disorders may never test positive.
I wonder if some of these "seronegative" cases of rheumatoid arthritis, etc., are actually people with undiagnosed Lyme. (My rheumatologist, on the other hand, thinks a lot of people with chronic Lyme are actually people with undiagnosed autoimmune disorders.)
Do you feel that Lyme treatment made any difference in your fingers? Or do you think that too much damage had been done already by the time you were treated for Lyme?
Thank you again.
Yes, I have had some relief with my fingers and feet with treatments - although since the bone spurs occur due to damage, they are still there. My question was 'what did I do to damage them?' LOL. But, it can be from someone that just works with their hands and stresses the tendons too much too, which perfectly describes me all too much.
Girlie posted a very important point about
the testing - and explains why so many non Lyme literate doctors just don't understand and won't consider these infections when they should. No, not everyone with an autoimmune issue has Lyme - but just how many really do???
With your test results, I wouldn't question having Lyme. The thing is, if left untreated, it can most definitely progress into a full blown auto immune issue - but you are in treatments, so I wouldn't worry about
that, unless you see signs of that happening from tests, or other symptoms.
This is why, once I knew for sure that I did have these infections, I've forgone any additional testing. The doctors that do the other testing (Rheumy's, Neuro's and others) don't understand what they are looking at when they have a Lyme patient sitting in front of them (because they don't ever 'see' Lyme, but the other issues), and I can't get to a LLMD - even if I had the money to do all the testing my heart desired. And it would be a lot! I have LOTS of questions! LOL!
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
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