Struggling with Lyme in Sweden

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MooseSafari
Regular Member


Date Joined Jan 2018
Total Posts : 78
   Posted 1/26/2018 1:05 AM (GMT -6)   
Hi, I had a period one year ago struggling really hard with my Lyme sickness. It got eventually better as I did a lot of change in my diet and some other things. There was a month or so during autumn where I felt fully cured. But as winter approached it started to reappear again, and its been really bad now a few weeks. Is there anyone around here that also has experienced that the disease reappear or get worse during wintertime?

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32622
   Posted 1/26/2018 1:15 AM (GMT -6)   
Hi MooseSafari - welcome to our community.

It sounds like you were in remission for a few months...and then now it's come back.


What were you doing to treat it - besides diet?

I know my symptoms are worse in the winter months...I don't do well in the cold. But, I've not been symptom free in the spring/summer months though.

If I were you I would get on a protocol to treat lyme and coinfections.

I'm glad you found us here - it's a great place - lots of knowledge and support here.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

MooseSafari
Regular Member


Date Joined Jan 2018
Total Posts : 78
   Posted 1/26/2018 7:46 AM (GMT -6)   
Hi, thanks it is really nice to have found this forum and being here, very encouraging.
After some trial and error diet changes there wasnt really any key food that turned it around. Cutting down on the amount of food and not eating soya, yeast products and milkproducts seemed to help me take away the worst (that would be fatigue, weight-loss and the food gettins stuck inside (is called constipation?)

Good enough all symptoms then suddenly disappeared after the summer, it felt like I was super-well again. It lasted for a good 4 weeks or so...Now it looks like a rough setback.

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9729
   Posted 1/26/2018 10:09 AM (GMT -6)   
I am healed from lyme but I have been barometric sensitive all my life.

Once winter gets here and stays my body levels out but the changing of the seasons is tough for me. I have to be careful and take super care of me during those times.

I know my body is struggling at the season changing times, so I do extra so I won't get sick.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32622
   Posted 1/26/2018 1:01 PM (GMT -6)   
MooseSafari - if you are looking for a LLMD for treatment - send me an email....I may have a few options.
but it may involve some travel.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

MooseSafari
Regular Member


Date Joined Jan 2018
Total Posts : 78
   Posted 1/27/2018 1:51 AM (GMT -6)   
Another wondering question dives up in my mind. Did anyone being sick made a travel to a tropic part of the world and experienced any difference?
Some years ago I used to skip winters to go to Asia but now I dont know if I dare to do that, as constantly feeling like a zombie on high altitude.

caramba
Veteran Member


Date Joined Aug 2016
Total Posts : 605
   Posted 1/27/2018 1:58 PM (GMT -6)   
Moose, are you taking vitamin D?

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 36310
   Posted 1/27/2018 2:28 PM (GMT -6)   
Hi MooseSafari!
Welcome to the community.

For many with these infections, flying in an airplane will create our symptoms to increase.

Also, there are relapsing/remitting strains of Lyme disease, I know I've dealt with them, and it sounds like maybe that's what you are dealing with. Lyme disease is a bacterial infection that is actually quite difficult to treat generally.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/

dacarte3
Veteran Member


Date Joined Feb 2016
Total Posts : 1897
   Posted 1/27/2018 9:04 PM (GMT -6)   
It doesn't quite sound like you treated that aggressively.

I also had to learn the hard way that soon after you feel pretty much symptom free that you can't just scrap what you are doing.

I learned that myself the hard way and relapsed.

This time I feel 90%+ better but learning from the past I'm still treating as if lyme and co are in full force.

I vowed that I would fully treat for one whole year regardless of how well I felt. I'm taking no chances this time.
Lyme (Igenex) - Positive IFA and WB bands 23, 31, 41
Ehrlichia (Igenex)
Mycoplasma (Labcorp) - Score: 595

ABX Treatment: 03/2016-04/2016; 7/2017-9/2017
Buhner Protocol for Lyme and Mycoplasma: May 2016 - Dec. 2016; 8/2017 - Present

MooseSafari
Regular Member


Date Joined Jan 2018
Total Posts : 78
   Posted 1/28/2018 8:19 AM (GMT -6)   
loads of thanks for all theese great replies, it is very encouraging.
Yes, i am taking vitamin D now during wintertime. i didnt last winter and I suspect that had a lot to do with feeling so ill. I am also eating magnesium, zink and extra vitamin b.
I am not feeling as bad as then this time, and havent since the worst sickness ebbed out in late spring last year. I always feel a little bit dizzy though.

Every time when I get sick again after feeling better I can almost always pinpoint the cause to having eaten something that triggered it off. When I feel OK I have a hard time not over-eating, thinking it would be finished now and trying to regain all the weight I have lost. Afterwards it ends up feeling super-sick again and food gets stuck.

i really have some discipline trouble with this.
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