Thank you so much for your thoughts.
I completely agree with everything you said, but I'd like to share what DNA Connexions ended up tell me AND my LLMD.
They called me and said I 100% certainly do NOT have Lyme disease. A man literally told me on the phone "I spoke with your LLMD and you need to start looking elsewhere for your symptoms because you do not have Lyme disease or any co-infections. I have been working in this lab for awhile and I know a positive test when I see one and it is black and white."
I asked him about the possibility it wasn't it my sample and he said "Listen, you did a deep tissue massage before the test right? Then I am telling you that you definitely do not have Lyme."
I then asked him why I have a positive LabCorp Western Blot with Lyme specific bands - 18, and 23. Plus 41 and 66. He responded saying "Our testing is far more accurate and precise than an antibody test. The western blot probably showed you a past infection that you had and no longer have."
I then said "Then why do I still show symptoms of Lyme, bartonella and babesia?" He had no response other than "Sir, you do not have Lyme."
He called my LLMD about this and my LLMD now doubts I have Lyme. What a mess I am in because of this. Never knew that a lab tech could ever make such a claim. Especially when on their website it states that even though the sample is negative it doesn't mean you don't have it, it just means it wasn't in the sample. I even brought that up to him and he laughed.
He offered to retest at half price , I told him I'm not wasting any more money.
Maybe he is right? Who knows, but I do know that I have many classic signs of Lyme and Co-infections.
Thank you so much for clarifying what the lab tech told you. I find that shocking first of all that a lab tech would proclaim any diagnosis or "undiagnosis." I'm pretty sure that's a no-no for a lab tech. I came across a DNA Connexions sponsorship ad on IAOMT's site just the other day that I found disturbing. I posted the link here. In this ad, they are claiming their "urine-based Lyme Panel determines or rules out the presence of 3 different species of Borrelia and 7 different co-infectors."/iaomt.org/about-iaomt/visit-our-sponsors/
This was the first time I'd ever heard they were claiming their test rules out
anything. Before having the test, my doctor explained to me that a negative result would not rule out Lyme but a positive result was 100% accurate. The same rule should apply to any PCR testing. For them to declare that because no DNA for the bacteria tested on their panel was found in a small sample of urine seems highly suspect.
Then, when you go to the DNA Connexions website at this link dnaconnexions.com/Lyme-Panel-Test-DNA-connexions.html
, they DO NOT state this. Instead, they state: "A negative result does not prove a patient is not infected with a tick borne infection, rather it indicates the absence of detectable Lyme and/or other tick borne co-infections. A patients ability to fight the disease, stage of infection, and timing of courses of antibiotics are only some of the factors that may affect the detectability of the spirochetes DNA." This statement sounds accurate to me.
They also have some interesting info in their FAQ section regarding negative findings. Apparently, they have further enhanced their quality control methods and are now claiming higher sensitivity.dnaconnexions.com/frequently-asked-questions-FAQ-DNA-Connexions.html
Apparently, Dr. Blanche Grube is the owner of DNA Connexions lab. I find the wording in this blog regarding Lyme and their Lyme panel test very disturbing. This does not sound like someone who understands the truth about
I also believe I came across something the other day related to their seeking FDA approval and some new enhanced methods they are doing, but I can't find the link. Makes me wonder if they are going to end up helping or hurting. IF they get FDA approval and start claiming a negative result is 100% proof that a person does NOT have Lyme or coinfections, then the Lyme lies will only get worse.
VERY DISTURBING THAT THIS LAB IS PUBLICIZING INACCURATE AND CONFLICTING INFORMATION.