Seriously? After having a POSITIVE western blot of IgG bands 41, 66, and 18 and IgM bands 41 and 23 now a NEGATIVE result from a lab that is thought to be overly positive?
So now I feel like I either 1. am not dealing with Lyme or 2. just wasted $500 on an inaccurate test.
This is a nightmare. Worst case scenario for me.
Is it time for me to start maybe looking at other diagnoses? Should I try to hit parasites? Get an MRI to rule out things like MS, tumors, etc?
Nich - you have an Igenex positive - and IgM 41 and 23 - I believe are CDC positive? I'd have to check.
You are dealing with lyme.
I really don't know why the DNA connexions is negative - other than the same reason that other PCR's can have false negatives - is they are positive if they identify the dna of the bacteria in the relatively small sample they have...
If they don't see it...doesn't mean it's not there - just not in that sample.
Yes, antibiotics can provoke the lyme spirochetes to form biofilms...and cyst forms...but that doesn't explain the co-infections.
Did you exercise and/or have a massage prior to the test?I actually have never done Igenex.. maybe I should? My Western Blot was done through LabCorp and was positive with those bands. Band 23 is specific to ONLY borrelia right? Nothing else?
It could be possible that I may not have any co-infections though, right? Or do you think that probably is not the case?
I really would assume that if I do have lyme (not saying that I do not) that SOMETHING would've come back though.. That is what is worrying me.. making me wonder if I should start searching for another answer to my symptoms..You really don't need to repeat the Lyme test with Igenex. The WB through LabCorp was positive....and yes, band 23 is lyme specific.
Here is the Igenex WB interpretation for CDC positive (IgM) - Even though you didn't have an Igenex test done - their criteria for CDC positive below:
CDC/NYS Criteria: The Lyme IgM Western Blot is considered positive if 2 of the following 3 bands are present: 23-25, 39, and 41kDa.
Unlikely that you don't have coinfections.
Have you discussed your concerns with your LLMD? (about
doubting your diagnosis?)
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
Post Edited (Girlie) : 1/27/2018 1:15:17 AM (GMT-7)