Shortness of Breath constantly (medication issue or Lyme, Babesia, Bartonella, Mycoplasm p.)?

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smhse
New Member


Date Joined Jan 2018
Total Posts : 9
   Posted 1/27/2018 3:34 PM (GMT -6)   
I have had shortness of breath for the last 7 weeks. It started with an extreme internal shakiness. I'm not mentally anxious, but it does cause a weird sensation in my body. The breathing issue is the worst, but I have a number of other symptoms, such as P.O.T.S, head pressure, etc.. Part of it I believe to be caused by acid reflux, which makes it difficult to increase my abx to the level that I'm supposed to be taking.

This breathing issue is terrible. The only thing that my doctor has me on at this point is Cefdinir (Omecif). Did have some reactions to other abx, but not sure if it was because of the acid reflux or some other issue.

Wondering, has anyone else had the breathing issue when on abx? Did you switch to Mepron and treat Babesia thinking it was the issue? Did your breathing issue get worse, or did you go slow with it until you could handle a full dose? How long did it take you to get better if you experienced this issue?

Also, if you experienced acid reflux that caused breathing issues, what did you do for it that worked to stop it?

Thanks in advance.
Diagnosed with Lyme Disease officially in 12/2017 (Western Blot, C10 ELISA, C6 Ag/Peptide).
Sxs: First time I noticed symptoms were in 09/2017, but suspect I had it for a while before that time.
IgeneX: Babesia - pos (but barely tested pos.)
IgeneX: Bartonella - pos (but barely tested pos.), although FISH test pos.
Quest: Mycoplasma pneumoniae - IgG positive.
Tx: started in Jan. 2018.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33795
   Posted 1/27/2018 4:01 PM (GMT -6)   
Hi smhse - welcome to our community.

I have had some acid reflux...but I doubt if it contributes to my POTS, head pressure. I can't see how they're related.

I had some breathing issues (waking in the middle of the night, gasping for air) prior to my diagnosis and treatment.

I don't have them anymore.

For treating the acid reflux...you could try D-Limonene. It's a supplement - you can purchase it on Amazon.
One of our veteran members, Astroman used it to resolve his GERD and ward off surgery.

I see in your signature line that you are positive for Babesia.
I would treat it.

I recently took Mepron for several months...and it helped with a couple of my symptoms.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

smhse
New Member


Date Joined Jan 2018
Total Posts : 9
   Posted 1/27/2018 4:05 PM (GMT -6)   
Thanks Girlie.

I was just referring to the breathing with regard to the acid reflux. The other sxs were just others that I am experiencing. I'm hoping that my new LLMD will start me on Babesia treatment, if that's what he thinks is contributing to it. I know that Babesia can cause air hunger, as well as contribute to acid reflux, along with Bartonella, and even Lyme dz. This stuff is all so tricky.

Thanks again for your response.
Diagnosed with Lyme Disease officially in 12/2017 (Western Blot, C10 ELISA, C6 Ag/Peptide).
Sxs: First time I noticed symptoms were in 09/2017, but suspect I had it for a while before that time.
IgeneX: Babesia - pos (but barely tested pos.)
IgeneX: Bartonella - pos (but barely tested pos.), although FISH test pos.
Quest: Mycoplasma pneumoniae - IgG positive.
Tx: started in Jan. 2018.

Post Edited (smhse) : 1/27/2018 2:17:23 PM (GMT-7)


Village Crazy Lady
Regular Member


Date Joined Feb 2017
Total Posts : 379
   Posted 1/27/2018 4:17 PM (GMT -6)   
Hi smhse

Before I was dx with Lyme and company I was constantly treating breathing issues, bronchitis etc with nebuluzer and inhalers.

I found that heartburn esp at night was aggravating my breathing and the Dr at that time confirmed that acid reflux will cause breathing probs and even asthma attacks for some.

I haven’t had any breathing problems since I started treating with my LLMD. They stopped about 4 months in for me.

I hope this helps and that you find the fix for you.

VCL
~~~Your Life is an Occasion, Rise to It ~~~

Lyme,Bart,Molds,Candida,Cpn,Myco,Ebv,Cmv,MTHFR,Lead.
Symptoms for years and years, Diag 6/2016, LLMD 10/2016
Treating with Abx and company

smhse
New Member


Date Joined Jan 2018
Total Posts : 9
   Posted 1/27/2018 4:18 PM (GMT -6)   
Thanks VCL!

I'm hoping so too.
Diagnosed with Lyme Disease officially in 12/2017 (Western Blot, C10 ELISA, C6 Ag/Peptide).
Sxs: First time I noticed symptoms were in 09/2017, but suspect I had it for a while before that time.
IgeneX: Babesia - pos (but barely tested pos.)
IgeneX: Bartonella - pos (but barely tested pos.), although FISH test pos.
Quest: Mycoplasma pneumoniae - IgG positive.
Tx: started in Jan. 2018.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33795
   Posted 1/27/2018 4:38 PM (GMT -6)   
smhse said...
Thanks Girlie.

I was just referring to the breathing with regard to the acid reflux. The other sxs were just others that I am experiencing. I'm hoping that my new LLMD will start me on Babesia treatment, if that's what he thinks is contributing to it. I know that Babesia can cause air hunger, as well as contribute to acid reflux, along with Bartonella, and even Lyme dz. This stuff is all so tricky.

Thanks again for your response.


Ok - I should have figured that out (just the breathing with acid reflux) lol.


Keep us posted.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33795
   Posted 1/27/2018 4:40 PM (GMT -6)   
Village Crazy Lady said...
Hi smhse

Before I was dx with Lyme and company I was constantly treating breathing issues, bronchitis etc with nebuluzer and inhalers.

I found that heartburn esp at night was aggravating my breathing and the Dr at that time confirmed that acid reflux will cause breathing probs and even asthma attacks for some.

I haven’t had any breathing problems since I started treating with my LLMD. They stopped about 4 months in for me.

I hope this helps and that you find the fix for you.

VCL


Interesting, VCL. I wonder if that's why I was diagnosed with sleep apnea...at the same time I had a lot of phlegm in the back of my throat....

Remind me - what was your treatment (first 4 months) ? Was it for Babesia?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

smhse
New Member


Date Joined Jan 2018
Total Posts : 9
   Posted 1/27/2018 4:50 PM (GMT -6)   
No problem Girlie. ;)
Diagnosed with Lyme Disease officially in 12/2017 (Western Blot, C10 ELISA, C6 Ag/Peptide).
Sxs: First time I noticed symptoms were in 09/2017, but suspect I had it for a while before that time.
IgeneX: Babesia - pos (but barely tested pos.)
IgeneX: Bartonella - pos (but barely tested pos.), although FISH test pos.
Quest: Mycoplasma pneumoniae - IgG positive.
Tx: started in Jan. 2018.

Village Crazy Lady
Regular Member


Date Joined Feb 2017
Total Posts : 379
   Posted 1/27/2018 4:54 PM (GMT -6)   
Girlie I started off with Azith, rifampin, plaq and nystatin.

I dodged the Babs bullet.

Another interesting thing was that the melatonin was the fix for both mine and my husbands acid reflux.
~~~Your Life is an Occasion, Rise to It ~~~

Lyme,Bart,Molds,Candida,Cpn,Myco,Ebv,Cmv,MTHFR,Lead.
Symptoms for years and years, Diag 6/2016, LLMD 10/2016
Treating with Abx and company

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33795
   Posted 1/27/2018 4:57 PM (GMT -6)   
Village Crazy Lady said...
Girlie I started off with Azith, rifampin, plaq and nystatin.

I dodged the Babs bullet.

Another interesting thing was that the melatonin was the fix for both mine and my husbands acid reflux.


Melatonin? Really...wow. My husband takes it every night.


Do you know why/how that melatonin fixed it? What the mechanism is?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

smhse
New Member


Date Joined Jan 2018
Total Posts : 9
   Posted 1/27/2018 5:07 PM (GMT -6)   
How much melatonin do you take each night VCL?

Girlie, the melatonin acts in multiple ways, but I'm not exactly sure if it's completely known why. It does have an acid blocking component to it, but there are other reasons why it can work. A couple of small studies show that if taken for 40 days, it may stop acid reflux or greatly reduce it.
Diagnosed with Lyme Disease officially in 12/2017 (Western Blot, C10 ELISA, C6 Ag/Peptide).
Sxs: First time I noticed symptoms were in 09/2017, but suspect I had it for a while before that time.
IgeneX: Babesia - pos (but barely tested pos.)
IgeneX: Bartonella - pos (but barely tested pos.), although FISH test pos.
Quest: Mycoplasma pneumoniae - IgG positive.
Tx: started in Jan. 2018.

Village Crazy Lady
Regular Member


Date Joined Feb 2017
Total Posts : 379
   Posted 1/27/2018 5:07 PM (GMT -6)   
I happened to make our connection after seeing a dr on Oz show that found the connection. I think she was in sleep study field.

I don’t remember the technical whys and how’s though.
~~~Your Life is an Occasion, Rise to It ~~~

Lyme,Bart,Molds,Candida,Cpn,Myco,Ebv,Cmv,MTHFR,Lead.
Symptoms for years and years, Diag 6/2016, LLMD 10/2016
Treating with Abx and company

Village Crazy Lady
Regular Member


Date Joined Feb 2017
Total Posts : 379
   Posted 1/27/2018 5:08 PM (GMT -6)   
Smhse

We take 5 mg.
~~~Your Life is an Occasion, Rise to It ~~~

Lyme,Bart,Molds,Candida,Cpn,Myco,Ebv,Cmv,MTHFR,Lead.
Symptoms for years and years, Diag 6/2016, LLMD 10/2016
Treating with Abx and company

smhse
New Member


Date Joined Jan 2018
Total Posts : 9
   Posted 1/27/2018 5:10 PM (GMT -6)   
Thanks.

Are you groggy in the morning? Any other side effects that you noticed?
Diagnosed with Lyme Disease officially in 12/2017 (Western Blot, C10 ELISA, C6 Ag/Peptide).
Sxs: First time I noticed symptoms were in 09/2017, but suspect I had it for a while before that time.
IgeneX: Babesia - pos (but barely tested pos.)
IgeneX: Bartonella - pos (but barely tested pos.), although FISH test pos.
Quest: Mycoplasma pneumoniae - IgG positive.
Tx: started in Jan. 2018.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33795
   Posted 1/27/2018 5:11 PM (GMT -6)   
So, maybe I'll try it... but I don't want to become reliant on the melatonin.

I guess a really low dose for a short period should be okay?


I don't have the issues I did have a few years ago...just now and then I have the phlegm in the back of my throat...I'm not waking up in the night gasping for air anymore...but there may still be a little 'something' there.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Village Crazy Lady
Regular Member


Date Joined Feb 2017
Total Posts : 379
   Posted 1/27/2018 5:13 PM (GMT -6)   
smhse said...
Thanks.

Are you groggy in the morning? Any other side effects that you noticed?


No, not at all and I take 2 Benadryl in my nite time mix too so I may be more tolerant. My family would be groggy in the am from just a Benadryl.
~~~Your Life is an Occasion, Rise to It ~~~

Lyme,Bart,Molds,Candida,Cpn,Myco,Ebv,Cmv,MTHFR,Lead.
Symptoms for years and years, Diag 6/2016, LLMD 10/2016
Treating with Abx and company

Village Crazy Lady
Regular Member


Date Joined Feb 2017
Total Posts : 379
   Posted 1/27/2018 5:19 PM (GMT -6)   
Girlie said...
So, maybe I'll try it... but I don't want to become reliant on the melatonin.

I guess a really low dose for a short period should be okay?


I don't have the issues I did have a few years ago...just now and then I have the phlegm in the back of my throat...I'm not waking up in the night gasping for air anymore...but there may still be a little 'something' there.


I understand what you’re saying. I hate that choking phlegm monster.

I’ve decided that I’ll take all the sleep stuff my Dr has recommended until I’m at the better end of treatment. I find I do much better when I get the good 8 hours of sleep. I’ll wean off slow later.
~~~Your Life is an Occasion, Rise to It ~~~

Lyme,Bart,Molds,Candida,Cpn,Myco,Ebv,Cmv,MTHFR,Lead.
Symptoms for years and years, Diag 6/2016, LLMD 10/2016
Treating with Abx and company

aphysicalwreck
Veteran Member


Date Joined Sep 2012
Total Posts : 652
   Posted 1/28/2018 11:46 AM (GMT -6)   
Sm
I don't have much else to offer to your complaint but just that, as you can see you are not alone. I have air hunger too and acid reflux. I never thought they were related.

Traveler
Elite Member


Date Joined May 2007
Total Posts : 36310
   Posted 1/28/2018 12:52 PM (GMT -6)   
For those with acid reflux - be sure you have enough stomach acid, as this is a symptom of either too much or too little stomach acid: /bodyecology.com/articles/low_stomach_acid_symptoms.php

An at home stomach acid test that anyone can do: hansacenter.com/simple-at-home-test-for-low-stomach-acid/

I believe that several members have found relief by using D-limonene, although I use ginger and a ginger "syrup" that I make.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/
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