Anyone get a TGFB-1 test done and come back very high. This is Transforming growth factor beta 1 blood test. I am not even sure why they ran it. I am having it retested as there can be sensitivity in the result if not done properly. I know it means high inflammation and sometimes connected with mold issues.
When my CIRS baseline labs were done, my TGFB-1 was almost 27,000. Some of my other CIRS labs were normal and some were abnormal. My TGFB-1 was retested 2 months after leaving my moldy home and workplace and was then normal at 1,481. NOTE: My symptoms did NOT improve after getting away from the mold. In fact, they got much worse. It was 7 months before I started to feel any symptom relief. I was and still am very toxic.
Two months after the normal TGFB-1 result, I was retested again. Unfortunately, I had just come from a very moldy dentist office right before the retest labs were drawn, and that time my TGFB-1 was elevated again at around 4,400. Shoemaker has said that just a few minutes of mold exposure can elevate those results. TGFB-1 can be elevated due to exposure to other biotoxins as well and even in other illnesses. Do your homework. Read everything you can find on www.survivingmold.com, especially the Q&A's. You can learn a lot if you want to.
At baseline, my VIP was normal and MSH was low at 19. Months later after trying minocycline for 7 days to treat Lyme and ehrlichia and having to stop due to symptom exacerbation, my MSH plummeted to less than 8. I did not have VIP retested. I just retested yesterday for TGFB-1, C4a, C3a, MSH, and VEGF.
It is not necessary for all the CIRS labs to be abnormal. It is best to be evaluated by a doctor certified or at least fully trained in the Shoemaker protocol for best results. I'm getting the impression that a lot of doctors are trying to kinda sorta halfway follow his protocol without any solid knowledge or understanding of his work and no consultation with him. Those doctors are not likely to get successful results and can get patients more lost and confused than they already are IMO.