RIFE for 11 yr old boy who all of a sudden can't walk

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lymeInNEPA
New Member


Date Joined Jan 2018
Total Posts : 17
   Posted 1/30/2018 9:16 AM (GMT -6)   
Hello,

After one year struggle for my 11 yr old son against lyme & company I have decided to purchase a RIFE. Its the GB one I think. I found a nice guy who makes them and he said he improved on the older version of the Doug Coil.

My son did abx for 7 months w/great LLMD in NY. But after having major stomach problems in Oct 2017, I stopped the abx. It was then he all of a sudden had difficulty walking and I had to immediately arrange home bound schooling. I figured he was herxing so it causes weakness and small intestine flora not corrected mimics MS symptoms and brain fog. I got best gut stuff, diet, detox and vitamins(Dr. Tent) for him and he did seem to get better stomach and headache wise and energy as he enjoyed Christmas playing a bit of football in the basement for 2 days with his cousinssmile. But this Jan month he is back to using a walker.

So...this leads me to my purchase of rife. I am curious of any other people dealing with children, rife and affecting motor abilities, brain fog and detox and success stories if you used RIFE.

Thank You!!

lymeInNEPA
New Member


Date Joined Jan 2018
Total Posts : 17
   Posted 1/30/2018 9:42 AM (GMT -6)   
I might add that my son has been slowly starting to take the 7 natural agents that disrupt Biolfilms. My logic being to start the attack on the biofilm and RIFE, together with detoxing with liver support containing milk thistle, NAC and organic broccoli sprouts for glutathione enhancement and creation of.

Lapis_29
Veteran Member


Date Joined Sep 2017
Total Posts : 882
   Posted 1/30/2018 10:25 AM (GMT -6)   
the frequencies from this site are the only ones that really worked for me so far

www.dnafrequencies.com/

she uses dna data to calculate the kill frequency for each pathogen.

also for lyme the following freqs have seen good results 306, 432, 612, 1224 , 2016

start out slow, watch for herxing. dont treat all kinds of things at once, try treating one pathogen at a time until you know how he reacts to those specific freqs.

Glutathione supplements are a great way of dealing with herx. try every other day, or maybe 3 times a week. that should be enough at first. everyday is too much.

the more testing you do, and the more pathogens you ID, the better you wlll be able to focus the rife treatments.

lymeInNEPA
New Member


Date Joined Jan 2018
Total Posts : 17
   Posted 1/30/2018 10:46 AM (GMT -6)   
Excellent info in frequencies and attacking one at a time. Great advice! This guy is going to set us up with proper frequencies too and with his great experience I feel we will hit the ground running. Thank for detox advice. I started him on the liver support detox from dr mercola and I believe that is why he needed the walker just only after 2 or 3 days of this supplement. I have stopped it since yesterday. I was already warned to RIFE only once every 2 weeks. I will go slow...slow and steady wins the race...I hope! Hope to get the machine by next week. In the meantime...I'm going to regulate his ph. Go Mom!

Lapis_29
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Date Joined Sep 2017
Total Posts : 882
   Posted 1/30/2018 11:20 AM (GMT -6)   
once every 2 weeks? no, that is not nearly enough. way too limited. at least once a week, better twice.

specifically what machine are you getting?

you should be able to program your own freqs into it. If you dont see results with the preprogrammed freqs, please consider using the freqs at the link I posted, they have a great track record.

lymeInNEPA
New Member


Date Joined Jan 2018
Total Posts : 17
   Posted 1/30/2018 11:31 AM (GMT -6)   
I will def check out that frequency post. My son will do his first one when we get it an we will tune into Lyme for first few times. Then one week later we will do it again for lyme...then wait 2 weeks. I guess since my son is 11 going slow is how we probably will start. I read about Bart killing off quick and neuro lyme which he has both.

I also heard something rather interesting from a few people gathering info for years on RIFE that if one has O blood type that they may herx less. My son is 0-. I'll take that one..any little sunshine of hope is welcome.

Lapis_29
Veteran Member


Date Joined Sep 2017
Total Posts : 882
   Posted 1/30/2018 11:42 AM (GMT -6)   
i personally would not wait 2 weeks, especially if he tolerates it well.

Rikky1
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Date Joined Jun 2015
Total Posts : 2922
   Posted 1/30/2018 1:37 PM (GMT -6)   
My heart truly goes out to you I have a 12 year old son and can't imagine him going through that. Then again my 9 year old daughter has just been diagnosed and we've yet to start treatment and not sure we will given her symptoms are almost non-existent. It's so tough when its children you're dealing with.

So in my opinion Spooky2 has the best software and frequency database in the world. Even if you don't use their devices the database itself is second to none.

How many times/duration you rife is completely dependent on the individual and their reaction to it. Some can go hours a day some can't do more than once a week. Like other modalities you need to gauge by experience and start simple (e.g. one frequency) and short (e.g. 1 minute). I've seen 1 minute of a particular frequency floor a person.

The GB is good but I like the Spooky Central Plasma device. That along with the software is so versatile nothing comes even close plus they have a forum online where lots of discussions are going on about such things.

I would stick to contact or plasma mode both are effective.

You can start by finding the common lyme frequencies and trying one at a time for a short period. See what resonates/reacts. You should also be doing supportive herbs and plenty of detoxing.

There's also a woman I came in contact with through the Spooky forum that does remote dowsing. Sounds a little freakish and it may be but she nailed a few of my symptoms by just using a photograph of mine. If you are interested in her info let me know.

1000Daisies
Veteran Member


Date Joined Apr 2016
Total Posts : 2473
   Posted 1/30/2018 4:36 PM (GMT -6)   
Rikky1 said...
My heart truly goes out to you I have a 12 year old son and can't imagine him going through that. Then again my 9 year old daughter has just been diagnosed and we've yet to start treatment and not sure we will given her symptoms are almost non-existent. It's so tough when its children you're dealing with.


Rikky - you changed your mind about treating your daughter? I thought in your last post that you were going to proactively treat? Or am I confusing that with your son? Just curious and concerned! smile
Kid#1: Extremely sick for several years, very difficult to treat, but doing great now!
Kid#2: Still sick now despite being treated for years but doing better (not well yet).
Kid#3: Generally good but relapsing off/on.
Me: Adv Labs positive 2016 (suspected I passed to my kids)-not as sick as others, mostly battling fatigue and yeast issues (heart/kidney issues resolved)
Treating with herbals now.

1000Daisies
Veteran Member


Date Joined Apr 2016
Total Posts : 2473
   Posted 1/30/2018 4:39 PM (GMT -6)   
Sorry, we personally do not use Rife. However, I do have kids with lyme/etc disesase. They do not have loss of motor skills though.

So, although our symptoms and treatment are different, I do want to share that Kid#1 is now well for nearly a year! Unfortunately, his was a very difficult/complex case, and it took several years.... but he is FINALLY well. There is definitely hope!

Do wish you the very best in your treatment and healing journey. So very sorry to hear your son is affected like this.
Kid#1: Extremely sick for several years, very difficult to treat, but doing great now!
Kid#2: Still sick now despite being treated for years but doing better (not well yet).
Kid#3: Generally good but relapsing off/on.
Me: Adv Labs positive 2016 (suspected I passed to my kids)-not as sick as others, mostly battling fatigue and yeast issues (heart/kidney issues resolved)
Treating with herbals now.

lymeInNEPA
New Member


Date Joined Jan 2018
Total Posts : 17
   Posted 1/30/2018 5:10 PM (GMT -6)   
I just read about remote dowsing. I love this community..that is crazy!

Rikky1
Veteran Member


Date Joined Jun 2015
Total Posts : 2922
   Posted 1/30/2018 8:22 PM (GMT -6)   
when the mainstream medical community not only can't help you but thinks your disease is either all in your head or doesn't even exist.....well you are forced to branch out. i've learned so much over the years that i will never look at allopathic medicine the same way again and that's good.

for example in the past if i had an ailment i'd go right to the doctor and get drugs. now i'll use herbs, rife, or some other approach. course this doesn't take away the fact i've taken more drugs in the past 3 years it would kill a few stable of horses. still i know so much more and i have to imagine the other stuff i take is helping my body in some way.

daisies we are not sure what to do about my daughter. if we open up pandora's box we can't shut it and it could result in who knows what type of pain and suffering. we're in the detox/stabilization phase right now so we are still assessing but if random symptoms and/or recurring occurs that'll push us more towards treatment cause that will tell me its gaining a greater foothold.

1000Daisies
Veteran Member


Date Joined Apr 2016
Total Posts : 2473
   Posted 1/31/2018 12:23 PM (GMT -6)   
Rikky1 said...
when the mainstream medical community not only can't help you but thinks your disease is either all in your head or doesn't even exist.....well you are forced to branch out. i've learned so much over the years that i will never look at allopathic medicine the same way again and that's good.


Completely agree.

Rikky1 said...
daisies we are not sure what to do about my daughter. if we open up pandora's box we can't shut it and it could result in who knows what type of pain and suffering. we're in the detox/stabilization phase right now so we are still assessing but if random symptoms and/or recurring occurs that'll push us more towards treatment cause that will tell me its gaining a greater foothold.


She's 9? Just be careful in that pre-puberty/puberty stage. That stage made my two oldest severely ill during that timeframe.

I didn't proactively treat Kid#3 as much as I should have. He ended up in the hospital, and I suspect it was somehow related. I will never know for sure. But I regret not proactively treating him as well as I should.

I proactively treated Kid#2 with abx for years, and despite that, he became severely ill around that pre-puberty age. So, even though I tried, I wasn't successful for him.

IT IS DIFFICULT!!! My heart goes out to your daughter, you, and your family.
Kid#1: Extremely sick for several years, very difficult to treat, but doing great now!
Kid#2: Still sick now despite being treated for years but doing better (not well yet).
Kid#3: Generally good but relapsing off/on.
Me: Adv Labs positive 2016 (suspected I passed to my kids)-not as sick as others, mostly battling fatigue and yeast issues (heart/kidney issues resolved)
Treating with herbals now.

abenamou
Regular Member


Date Joined Mar 2017
Total Posts : 20
   Posted 1/31/2018 5:32 PM (GMT -6)   
I'll just add that my 7 year old became violently ill after a flu shot and a sprained ankle late last year, which we discovered quickly after was the 3 B's passed from mom to son.

The symptoms of these all came on so fast - so much so that within weeks he was loosing the ability to walk.

He was also having severe stomach issues when he finally did get on antibiotics. We quickly made the decision to do a PICC line and Ceftriaxone (for 4 months) - within days of starting the IV he was walking and basically became a "normal" kid again, it was amazing.

In our case mom has severe neuro-lyme, with my son having severe brain lesions that show in an MRI - and I have read IVs can help with these sorts cases better than orals. Not saying this will help but just wanted to pass our experience on.

Of course having a Lyme Md who knows all the proper supplements and other things you have to do helped us tremendously, as well, but the IV I am convinced was one of the key pieces.

Post Edited (abenamou) : 1/31/2018 3:35:51 PM (GMT-7)


Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33837
   Posted 1/31/2018 5:37 PM (GMT -6)   
thanks for posting your experience, abenamou.

Did your son have a follow-up mri? and if so, had the lesions gone away?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

abenamou
Regular Member


Date Joined Mar 2017
Total Posts : 20
   Posted 1/31/2018 5:39 PM (GMT -6)   
Thank you! Not yet, we're giving it 6 more months probably for the repeat MRI... he was on a full-spectrum of antibiotics for 12 months and now off as of November, thankfully. Our Lyme MD says that IVs typically reduce the length of time you need to administer antibiotics, so I consider us lucky if 12 months is all we'll need - only time will tell!

Rikky1
Veteran Member


Date Joined Jun 2015
Total Posts : 2922
   Posted 1/31/2018 8:04 PM (GMT -6)   
thanks for the comments i'm deathly afraid of starting my daughter on a regimen. i'd rather try to do everything else via herbs, supplements, better diet, etc. and see what happens. hard to say if its likely or not but i know people who've had lyme and they had a few symptoms and it went away without doing anything different. i'm assuming their immune system was able to fight it off after a time.

interesting your LLMD's comment on IV's reducing abx duration i don't think every LLMD agrees but that's quite common with this disease.

what kind of abx's has your son been on thus far?

abenamou
Regular Member


Date Joined Mar 2017
Total Posts : 20
   Posted 2/1/2018 9:23 AM (GMT -6)   
Hi Rickky! It was to treat the 3 B's - so Ceftriaxone, Bactrim, Cefdinir, Mepron and Zithromax (not all at the same time of course). All stopped now but not sure we'd have got out of the woods without them as I said. My wife struggled for 20+ years to get to the bottom of her random medical issues (which doctors of course had no clue), and it was my son who basically revealed lyme+co's in her.

There are so many strains but what was strange was the clear connection on their symptoms (once they started in my son) - you could have looked them and said it was the same bugs due to the way they manifested the pain, very odd. So not all bugs respond in the same way to all medications, for sure!
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