Fork in the Road for Treatment (Yeast?)

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NicHostetler
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Date Joined Mar 2017
Total Posts : 647
   Posted 1/30/2018 10:48 AM (GMT -6)   
I am at a fork in the road with treatment right now and I really need some help. Like most of you probably know, I have gotten a full negative Lyme and coinfection test from DNA connexions - however last march did test CDC POSITIVE for Lyme including the Lyme specific band 23.

My LLMD said she is going to call me and discuss what we can do next so I wrote some notes down that I'd like to talk to her about and need everyone's opinion.

My main current symptoms are:
Dizzyness
Brain Fog
Heart Palpitations (tachycardia)
Fatigue
Night Sweats

Questions I want to ask my LLMD:
Bart/Babs test through LabCorp?
Maybe treat Bart since I never have yet and have sore feet in the morning..
MRI?
Keep treating Lyme with antibiotics but make sure to include a biofilm buster like xylotil. This is something I never really added in. I assumed the herbs would do it for me, but I don't think that is really the case.
Treat Yeast

Yeast is a big one for me - I have taken Nystatin supplements throughout treatment but never felt a thing from them at all. I remembered I had some Liquid Nystatin from about a year ago so I tried a dose and it knocked me out. The next day I had a terrible headache and my brain fog and dizzyness were terrible.. herx??

Has anyone successfully treated candida and do you think that could be something I really need to try to treat before moving on?

PS - Since starting treatment last March, I saw lots of improvement after the first couple months on Biaxin and Cefdinir and then plateaued around 3 months so we switched things up and since then I have not been improving.. in the last few months I have been declining.

Post Edited (NicHostetler) : 1/30/2018 9:08:40 AM (GMT-7)


PeteZa
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Date Joined Jul 2015
Total Posts : 9729
   Posted 1/30/2018 11:23 AM (GMT -6)   
Personally I would not waste my money on testing for co infections. The testing is highly unreliable.

If you are not treating for yeast, and also helping to prevent it, and are taking antibiotics, you could be compounding the yeast problem.

On the New to Lyme, page 2 is a great thread about yeast.

tickbite666
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Date Joined Mar 2014
Total Posts : 1664
   Posted 1/30/2018 11:30 AM (GMT -6)   
It's usually a co-infection that stalls progress. Candida control is also an on-going effort. Maybe you should periodically add in a course of Diflucan. Nystatin only stays in the gut. I also take a break from the ABX and take Candida Control herbals from NOW brand.

Treat bart first. Many of the meds will also help with Lyme. When you plateau maybe then go after babs. It's a long slow process, and as Bryan Rosner wrote (loosely quoted): "Just because you tried something in the past and it didn't work, doesn't mean it won't work at another time."

NicHostetler
Veteran Member


Date Joined Mar 2017
Total Posts : 647
   Posted 1/30/2018 1:40 PM (GMT -6)   
tickbite666 said...
It's usually a co-infection that stalls progress. Candida control is also an on-going effort. Maybe you should periodically add in a course of Diflucan. Nystatin only stays in the gut. I also take a break from the ABX and take Candida Control herbals from NOW brand.

Treat bart first. Many of the meds will also help with Lyme. When you plateau maybe then go after babs. It's a long slow process, and as Bryan Rosner wrote (loosely quoted): "Just because you tried something in the past and it didn't work, doesn't mean it won't work at another time."


I was hitting babs for around 2.5 months with mepron and zithromax and had lots of head pressure so my LLMD wanted me to stop because she thought it was a side effect of the zithromax. I have been off for a couple weeks and she doesn't want me to start anything back up until I get back from Italy in a couple weeks.

Will it be ok to start bart treatment or should I start babs treatment back up right away?

I feel like I should maybe try liquid nystatin for awhile until I don't herx from it any longer and see if my symptoms improve.. I am worried about putting more antibiotics in my body if I am dealing with a severe yeast infection.

Are yeast infections pretty easy to clear up? If I have a bad one can I knock it out with nystatin and diflucan in a month or two?

magoo2
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Date Joined Mar 2015
Total Posts : 1305
   Posted 1/30/2018 1:53 PM (GMT -6)   
So how long have you been treating?

tickbite666
Veteran Member


Date Joined Mar 2014
Total Posts : 1664
   Posted 1/30/2018 1:56 PM (GMT -6)   
No one can say what's best to continue to hit Babs or switch to Bart when you get back. its really a roll of the dice. Try a month of Diflucan alone and see what happens. If your herx from Candida die-off (very similar to Lyme herx) you can just reduce your Diflucan dosage.

ciao

NicHostetler
Veteran Member


Date Joined Mar 2017
Total Posts : 647
   Posted 1/30/2018 2:37 PM (GMT -6)   
magoo2 said...
So how long have you been treating?


I have been treating for about 10 months.

I will include my signature with this so you can see my treatment path.
Very sick starting around 07/2016
Started treatment 03/2017
Bixain & Cefdinir - 3 months - plateaued
Then Biaxin & Minocycline - 3 months - did not improve
Tinidazole - 500MG 2x a day - 2 weeks
Now taking:
Mepron 5mL 2x a day
Zithromax
Nystatin
Cats Claw - 30 drops 2x a day
Gou Teng - 30 drops 2x a day
CSA - 40 drops 2x a day
Japanese Knotweed - 40 drops 2x a day

NicHostetler
Veteran Member


Date Joined Mar 2017
Total Posts : 647
   Posted 1/30/2018 3:18 PM (GMT -6)   
tickbite666 said...
No one can say what's best to continue to hit Babs or switch to Bart when you get back. its really a roll of the dice. Try a month of Diflucan alone and see what happens. If your herx from Candida die-off (very similar to Lyme herx) you can just reduce your Diflucan dosage.

ciao


My LLMD had me taking that earlier in treatment. She said one a day for three days and then once a week. Does that sound right to you? Or not enough?

If I had such a strong reaction to the Nystatin shouldn't I try to take that as well?

magoo2
Veteran Member


Date Joined Mar 2015
Total Posts : 1305
   Posted 1/30/2018 7:33 PM (GMT -6)   
I always tell people to see a biological dds. ( not a regular dds)

But if you dont want to see a biological dds at least go get a thermogrophy of your head ( dental).

I got one today and it showed inflamtion in a couple places. It cost me 75 bucks-zero radiation and zero pain. If you kave no issues there then skip the biological dds-but dont treat lyme for years and not consider the dental aspect. 75 buck-real easy.

If there is an issue find a biologcal dds and get fixed

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33957
   Posted 1/30/2018 8:09 PM (GMT -6)   
NicHostetler said...
tickbite666 said...
It's usually a co-infection that stalls progress. Candida control is also an on-going effort. Maybe you should periodically add in a course of Diflucan. Nystatin only stays in the gut. I also take a break from the ABX and take Candida Control herbals from NOW brand.

Treat bart first. Many of the meds will also help with Lyme. When you plateau maybe then go after babs. It's a long slow process, and as Bryan Rosner wrote (loosely quoted): "Just because you tried something in the past and it didn't work, doesn't mean it won't work at another time."


I was hitting babs for around 2.5 months with mepron and zithromax and had lots of head pressure so my LLMD wanted me to stop because she thought it was a side effect of the zithromax. I have been off for a couple weeks and she doesn't want me to start anything back up until I get back from Italy in a couple weeks.

Will it be ok to start bart treatment or should I start babs treatment back up right away?

I feel like I should maybe try liquid nystatin for awhile until I don't herx from it any longer and see if my symptoms improve.. I am worried about putting more antibiotics in my body if I am dealing with a severe yeast infection.

Are yeast infections pretty easy to clear up? If I have a bad one can I knock it out with nystatin and diflucan in a month or two?


i was treating Babesia for 7-8 months - Mepron with minocycline and Ceftin (and then switched the third med when I ran out of Ceftin). My head pressure increased immensely. The head pressure is a symptom of Babesia. My head pressure did not increase like that when I was on other antibiotics to treat lyme and bartonella.
If your LLMD thought it was from zithromax - there is an easy way to find out - just stop zithro and take a different antibiotic with the Mepron.
Since you didn't finish your babesia treatment - that's what I would start up again.

How is your head pressure since stopping the Mepron/Zith combo?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

NicHostetler
Veteran Member


Date Joined Mar 2017
Total Posts : 647
   Posted 1/30/2018 9:00 PM (GMT -6)   
Girlie said...
NicHostetler said...
tickbite666 said...
It's usually a co-infection that stalls progress. Candida control is also an on-going effort. Maybe you should periodically add in a course of Diflucan. Nystatin only stays in the gut. I also take a break from the ABX and take Candida Control herbals from NOW brand.

Treat bart first. Many of the meds will also help with Lyme. When you plateau maybe then go after babs. It's a long slow process, and as Bryan Rosner wrote (loosely quoted): "Just because you tried something in the past and it didn't work, doesn't mean it won't work at another time."


I was hitting babs for around 2.5 months with mepron and zithromax and had lots of head pressure so my LLMD wanted me to stop because she thought it was a side effect of the zithromax. I have been off for a couple weeks and she doesn't want me to start anything back up until I get back from Italy in a couple weeks.

Will it be ok to start bart treatment or should I start babs treatment back up right away?

I feel like I should maybe try liquid nystatin for awhile until I don't herx from it any longer and see if my symptoms improve.. I am worried about putting more antibiotics in my body if I am dealing with a severe yeast infection.

Are yeast infections pretty easy to clear up? If I have a bad one can I knock it out with nystatin and diflucan in a month or two?


i was treating Babesia for 7-8 months - Mepron with minocycline and Ceftin (and then switched the third med when I ran out of Ceftin). My head pressure increased immensely. The head pressure is a symptom of Babesia. My head pressure did not increase like that when I was on other antibiotics to treat lyme and bartonella.
If your LLMD thought it was from zithromax - there is an easy way to find out - just stop zithro and take a different antibiotic with the Mepron.
Since you didn't finish your babesia treatment - that's what I would start up again.

How is your head pressure since stopping the Mepron/Zith combo?


My head pressure has improved since stopping the combo, dizzyness and brain fog has stayed the same. I agree that we should maybe try something else with the mepron other than zithromax.

I think you are right, I think it was because I was treating babesia and it was doing it's job. Although, it is so hard to tell the difference between a herx and a side effect.

I just wish there was an accurate reliable and affordable test for all of these infections but I guess that is too much to ask. Maybe someday...

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33957
   Posted 1/30/2018 11:17 PM (GMT -6)   
NicHostetler said...


I think you are right, I think it was because I was treating babesia and it was doing it's job. Although, it is so hard to tell the difference between a herx and a side effect.

I just wish there was an accurate reliable and affordable test for all of these infections but I guess that is too much to ask. Maybe someday...



When I was in the midst of the Babs treatment...with very bad head pressure (felt like my head was going to explode and the pressure behind my eyes was crazy....at times I would question it and worry that it was a Mepron side effect and I should stop taking it. It is really, really difficult to decipher what is what sometimes.

But now, looking back, I do think the symptoms were because it was hitting Babs hard.
My head pressure has improved from pre-mepron state...and it seems to have taken care of my pulsatile tinnitus. It didn't touch my nerve pain though...unfortunately...and my POTS. I was hoping those two would improve as well.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

tickbite666
Veteran Member


Date Joined Mar 2014
Total Posts : 1664
   Posted 1/31/2018 8:43 AM (GMT -6)   
Regarding your Diflucan question.... I've seen LLMDs prescribe it in a lot of different dosages. That was the first thing my 2nd LLMD gave me for a week when I started with her. Later times it was for a full month. Now I'm pulsing it with my ABX for 2 weeks ON and 3 weeks OFF.

Diflican is tough on the liver so many LLMDs are cautious. If liquid Nystatin was working, maybe give it another try first.

NicHostetler
Veteran Member


Date Joined Mar 2017
Total Posts : 647
   Posted 1/31/2018 10:28 AM (GMT -6)   
Girlie said...
NicHostetler said...


I think you are right, I think it was because I was treating babesia and it was doing it's job. Although, it is so hard to tell the difference between a herx and a side effect.

I just wish there was an accurate reliable and affordable test for all of these infections but I guess that is too much to ask. Maybe someday...



When I was in the midst of the Babs treatment...with very bad head pressure (felt like my head was going to explode and the pressure behind my eyes was crazy....at times I would question it and worry that it was a Mepron side effect and I should stop taking it. It is really, really difficult to decipher what is what sometimes.

But now, looking back, I do think the symptoms were because it was hitting Babs hard.
My head pressure has improved from pre-mepron state...and it seems to have taken care of my pulsatile tinnitus. It didn't touch my nerve pain though...unfortunately...and my POTS. I was hoping those two would improve as well.


Have you tried to hit bart yet? I have heart issues and nerve issues as well and it seems like bart can cause these things.

1000Daisies
Veteran Member


Date Joined Apr 2016
Total Posts : 2474
   Posted 1/31/2018 12:16 PM (GMT -6)   
Remember that yeast infection isn't just candida strains. I've posted repeatedly on this board that I have a "rare" non-candida systemic chronic yeast infection.

Unfortunately, the doctors/internet/public generally focus and narrow in on candida. Specifically, candida albicans! However, there are many different strains of candida. And even non-candida strains that are sadly overlooked and becoming more prevalent now that people are over using s. boulardii.

So, to answer your question, yes - I have treated for my yeast. It was hard. I was able to knock it back, but I have not tested negative for it yet.

However, it helped clear up my main problematic symptoms (headaches, menstrual migraines, kidney pain/illness, etc). I still have chronic fatigue issues related to my adrenals (I believe).
Kid#1: Extremely sick for several years, very difficult to treat, but doing great now!
Kid#2: Still sick now despite being treated for years but doing better (not well yet).
Kid#3: Generally good but relapsing off/on.
Me: Adv Labs positive 2016 (suspected I passed to my kids)-not as sick as others, mostly battling fatigue and yeast issues (heart/kidney issues resolved)
Treating with herbals now.

NicHostetler
Veteran Member


Date Joined Mar 2017
Total Posts : 647
   Posted 1/31/2018 1:19 PM (GMT -6)   
1000Daisies said...
Remember that yeast infection isn't just candida strains. I've posted repeatedly on this board that I have a "rare" non-candida systemic chronic yeast infection.

Unfortunately, the doctors/internet/public generally focus and narrow in on candida. Specifically, candida albicans! However, there are many different strains of candida. And even non-candida strains that are sadly overlooked and becoming more prevalent now that people are over using s. boulardii.

So, to answer your question, yes - I have treated for my yeast. It was hard. I was able to knock it back, but I have not tested negative for it yet.

However, it helped clear up my main problematic symptoms (headaches, menstrual migraines, kidney pain/illness, etc). I still have chronic fatigue issues related to my adrenals (I believe).


Interesting!! How do you test for it? And what did you use to treat?

I did a Genova stool panel for tons of different things including yeast and it came back negative for yest. But, my gut health was poor and I had no good bacteria. So, for that I am taking l-glutamine and fiber.
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