Remaining symptoms are...???

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Tsak11
Regular Member


Date Joined Sep 2017
Total Posts : 51
   Posted 1/31/2018 5:04 PM (GMT -6)   
Does anyone know how to differentiate between neuro Lyme, Bart, and nerve damage symptoms? I don't know when to quit treatment. I continue to have sleeping difficulties (but honestly that's not new for me) but also nerve pain in my buttocks and right below into my hamstrings. Some left heel pain remains. The internal Shakiness has finally left I believe (1.5 weeks free of it), intermittently I feel mild tingling in my fingertips and some residual hypersensitivity in my left foot. For detox I use charcoal and lemon water daily. Let me know. Thank you!
Also according to my ND, I can start Lion's Mane for this too.

goshawk
Forum Moderator


Date Joined Sep 2016
Total Posts : 2293
   Posted 1/31/2018 5:30 PM (GMT -6)   
Unfortunately it sounds to me like you are still having symptoms. I believe they say its best to go a few months with no symptoms.


The lions mane is a good idea for restoring damage and I have seen some recent posts with information about that.

Buhner also suggests Salvia miltiorrhiza and Scutellaria baicalensis to help restore damage.


Take care, Jo

aphysicalwreck
Veteran Member


Date Joined Sep 2012
Total Posts : 652
   Posted 1/31/2018 8:13 PM (GMT -6)   
I hate to be doom and gloom but it sounds like you are not out of the woods yet.

Tsak11
Regular Member


Date Joined Sep 2017
Total Posts : 51
   Posted 1/31/2018 11:41 PM (GMT -6)   
Ah darn!
But in all seriousness how do you know the difference when your symptoms have always been neuro

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33848
   Posted 2/1/2018 1:59 AM (GMT -6)   
Tsak11 said...
Ah darn!
But in all seriousness how do you know the difference when your symptoms have always been neuro


The CNS/PNS symptoms - it can be difficult knowing if the symptoms are lingering because the nerves just haven't healed yet.

But, to play it safe...I'd keep treating....unless you're going on several years...and nothing is changing.

How long have you treated?

I have CNS driven symptoms, too...but mine are still changing...so I know I need to keep treating.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Tsak11
Regular Member


Date Joined Sep 2017
Total Posts : 51
   Posted 2/1/2018 8:23 AM (GMT -6)   
I treated Lyme for 3 months with IV Rocephin and was off meds for 6 weeks as the Bartonella showed it's ugly face. I've been on Levaquin for almost 1 month. Recently the internal Shakiness subsided. I wake up and feel decent but as the day progresses the leg nerve pains and heel pain return. Intermittently I feel mild quad weakness. Still feel like I have a cloudiness in my Brian sometimes too. I notice at times when I take the Levaquin the remaining symptoms tend to amp up a bit for a few hours and then subside again.

Traveler
Elite Member


Date Joined May 2007
Total Posts : 36310
   Posted 2/1/2018 12:47 PM (GMT -6)   
Unfortunately, I would agree with the others, you still need more treatment. You still have quite a few symptoms which could be from either Neuro Lyme or Bart, and if you haven't seen those symptoms leave yet, then assume that you still are in need of treatment. The general guidelines are to treat until you are 2 - 3 months without symptoms.

Nerve damage usually results from demyelination of the nerves, and if that's what is happening to you, Lion's mane (a mushroom) has been shown to help repair the myelin sheath that protects those nerves.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/

Tsak11
Regular Member


Date Joined Sep 2017
Total Posts : 51
   Posted 2/1/2018 1:33 PM (GMT -6)   
Thank you all for the input. I unfortunately tend to agree just needed to hear it from some veterans out there. While on the Rocephin I saw it take a way a lot of neuro stuff what remained was what I mentioned earlier in this post. I wonder if I should ask the LLMD to add abx for Lyme in addition to the Levaquin just in case? I'd hate to case more problems, as I am functioning pretty well... Just painful and mild weakness that comes and goes. How much Lion's Mane should I take. I think that's probably a must.

tickbite666
Veteran Member


Date Joined Mar 2014
Total Posts : 1660
   Posted 2/1/2018 2:45 PM (GMT -6)   
Tsal11.

Have you done any cyst busters yet. might be a good test.

Also I read that Buhner does not recommend taking Astragalus for chronic Lyme. He said it causes too much of a herx. When I thought I was out of the woods with lyme and only treating Bart I tried Astragalus to test my infection load. I had no reaction, but that doesn't mean its gone.

Still treating Bart myself and I too struggle with if my remaining sx are from active disease, being flox'ed, permanent damage, or just need more healing time.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33848
   Posted 2/1/2018 3:23 PM (GMT -6)   
Tsak11 said...
Thank you all for the input. I unfortunately tend to agree just needed to hear it from some veterans out there. While on the Rocephin I saw it take a way a lot of neuro stuff what remained was what I mentioned earlier in this post. I wonder if I should ask the LLMD to add abx for Lyme in addition to the Levaquin just in case? I'd hate to case more problems, as I am functioning pretty well... Just painful and mild weakness that comes and goes. How much Lion's Mane should I take. I think that's probably a must.


So you're only taking the Levquin? i would definitely ask your LLMD to add a second antibiotic to that.

Even - for bart - LLMD's use two abx.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33848
   Posted 2/1/2018 3:24 PM (GMT -6)   
tickbite666 said...
Tsal11.



Also I read that Buhner does not recommend taking Astragalus for chronic Lyme. He said it causes too much of a herx. When I thought I was out of the woods with lyme and only treating Bart I tried Astragalus to test my infection load. I had no reaction, but that doesn't mean its gone.



Buhner states that Astragalus for chronic lyme can create an autoimmune response.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Tsak11
Regular Member


Date Joined Sep 2017
Total Posts : 51
   Posted 2/1/2018 4:08 PM (GMT -6)   
Lots of good advice here you all, thank you! Funny you mention a second abx. Initially, I was on Levaquin and Doxy but after 1 week I experienced major fatigue one day (hard to wake up) and like my body was so weak it was superficially numb if that makes any sense. I started having cold flashes too. The next day I was still pretty tired but the remainder went away. Took about a week to feel relatively normal again so the LLMD stopped the Doxy because he said he doesn't like it when people herx too much. So that's why I've only been on Levaquin.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33848
   Posted 2/1/2018 4:14 PM (GMT -6)   
Tsak11 said...
Lots of good advice here you all, thank you! Funny you mention a second abx. Initially, I was on Levaquin and Doxy but after 1 week I experienced major fatigue one day (hard to wake up) and like my body was so weak it was superficially numb if that makes any sense. I started having cold flashes too. The next day I was still pretty tired but the remainder went away. Took about a week to feel relatively normal again so the LLMD stopped the Doxy because he said he doesn't like it when people herx too much. So that's why I've only been on Levaquin.


I think the second antibiotic helps prevent the bacteria from becoming resistant to the antibiotics.

plus, the different antibiotics kill the bacteria in different ways.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
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