Good evening all,
I was diagnosed in 2008 with Sphincter of Oddi Dysfunction (SOD) and an ERCP was performed to fix a lengthy pancreatic duct and too much pressure going through my pancreatic duct. I didn’t experience anymore stabbing pain through my mid section and all the way through to and across the mid back until 2010, when another ERCP was performed. Diagnosed in 2016 with Lyme disease, many coinfections and mold toxins (CIRS). It’s back, 7 years later, and my MRI-MRCP and endoscopic ultrasound both showed abnormalities, though the doctors don’t want to come near me now and do another ERCP. The only way to check sphincter pressure is by doing an ERCP, and they don’t want to do it, so I’m experiencing varying degrees of stabbing pain everyday, and it won’t be resolved until I go into remission (my LLMD agreed it’s caused by Lyme disease) or they do another ERCP, which isn’t looking like a possibility. I feel I’m being shunned because I have Lyme disease.
That’s my background with this issue. I wondered if others also are experiencing pancreatic or liver issues of this magnitude, as Lyme disease patients.