Anyone that has fully healed Chronic Lyme for Long Term ABX?

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goldengoose
Regular Member


Date Joined Sep 2016
Total Posts : 99
   Posted 1/31/2018 8:01 PM (GMT -6)   
So I've been treating Chronic Lyme with Abx for 16 months now and just found out it will be several more years before I am "complete" and "fully healed"

Is there anyone out there who can vouch that this is a valid goal? Am I better off to find a different doctor who can try just keeping the Lyme under control with herbals, etc.

I'm going through a very tough time mentally right now with anxiety and depression from this mess and would hate to go three more years to find out I'm not much further along than I am right now.

I also have worked very hard to get off of antidepressants that stopped working for me after 8 years and am wondering if I am better off back on a new possibly better ssri and anti anxiety treatment along with a few herbals to keep the Lyme "as dormant as possible"

If it is possible to truly eradicate this horrid disease I would really appreciate someone telling me first hand how long it took them and what the process was like.

Thanks so very much, I look forward to hearing your advice/experience on this matter!

Rikky1
Veteran Member


Date Joined Jun 2015
Total Posts : 2922
   Posted 1/31/2018 8:10 PM (GMT -6)   
unfortunately goose you aren't going to get an answer you want because everyone is so different that one can't know if you'll ever eradicate these infections.

my first LLMD after diagnosing me said after i asked him about how long until i'm well. he said i had another patient almost exactly the same as you and it took him about 6 months then he relapsed then it was an additional 3 months.

so here i am 3 years later and still fighting these little buggers so comparison to the other person was totally worthless.

what i can tell you from being 'through the ringer' almost 3x longer than you. you have to stick with it and you have to trust your LLMD and whatever process they use. yes you can and will more than likely get better but no one can say what that road will look like and how long.

my advice is don't give up. make sure your LLMD is good enough to treat you. make sure he's dealing with lyme and co-infections + other things to support the body like detoxing, immune support, a clean diet, lots of fluids.

the fact that he told you it'll be a few more years and you'll be completely healed worries me because no one can guarantee that.

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 5081
   Posted 1/31/2018 8:21 PM (GMT -6)   
Many who have "healed" are...........gone, living life today. That said, there is way more to this than just ABX.

Short term lyme is easier, chronic effects more body sytems long term. Some dont reach 100%, its the truth people dont want to see. But 50-90% is not uncommon after a few years - and enough to live better / work while still picking away at this.

After 25-30 years , I improved to 80-90% (depends when you ask LOL) after 2 years of changing treatment which included 12 months of ABX stretched out a little more than that..

I do have some autoimmune conditions which have less a chance than lyme healing- thats the down side to chronic infections that some live with possibly forever.
Had initial lyme symptoms late 80's, then again and with bullseye early 90's. Ended ABX for Lyme in 2015. Rebuilding / fine tuning / fixing muscles since then; member "10 Percenters Lyme Club". What an adventure this has been. Hashimotos adds to the enjoyment.

goldengoose
Regular Member


Date Joined Sep 2016
Total Posts : 99
   Posted 1/31/2018 8:46 PM (GMT -6)   
Thanks for the response Rikky,

My bad, He said "several" more years not a few, I may have used the word few instead of several, not sure, and he didn't say completely healed.. my bad again.

My goal for this post was to find people who were "completely healed" though. People who have used long term antibiotics and eradicated the little buggers and have not had issues since. It seems to me that if I cannot find people who have healed, then I am just as well to control my symptoms and take an ssri/benzo until better treatment options get researched or known. I know there are a ton of flaws with this plan. But taking abx for several more years is not exactly a fool proof plan either if nobody can vouch that it was truly effective. It would be one thing to continue through mental hell for years if I knew I would come out healed, but the not knowing is killing me and I am losing myself more and more every day. My anxiety is borderline out of control and my social life has been in ruins for some time now. I live alone and who knows what several more years would do to me.

Thanks though, I appreciate the note
Been treating chronic lyme since Mid-2016. Now on Compound Tetracycline 500mg 3/day with Fluconazol for yeast control. Formerly on Clarithromycn and Plaquenil and before that a whole bunch of other stuff including the Buhner Protocol, other herbal remedies.

Western Blot Positive tested IGM Serum 2.6? Other Western Blots - IGM - 41 and 23. CD-57 = 34L.

Rikky1
Veteran Member


Date Joined Jun 2015
Total Posts : 2922
   Posted 1/31/2018 8:56 PM (GMT -6)   
goose unfortunately your story is all too common for folks with this condition. live goes on and passes us by sometimes for years as those we thought were close friends and family drift off. this is why forums like this are so important to connect with others who are in the same "boat".

no one knows the future so you should keep plugging away.

curious have you tried treating co-infections like babesia and bartonella?

goldengoose
Regular Member


Date Joined Sep 2016
Total Posts : 99
   Posted 1/31/2018 9:07 PM (GMT -6)   
Under my first LLMD, who I didnt have much success with, I was treating babesia with specific herbals. My new LLMD says that the medicines he prescribes make people better and that it is not necessary to treat co-infections specifically. He does, and has prescibed me meds like plaquenil, which may be aimed at babs, etc. He is basically saying that if I follow his regimen, which is indeed very specific, that I will get better, that it is not necessary to test for co-infections...

Not sure what to think about this, I've also heard others say that the testing is so unreliable that co-infection treatment is often, as it was with me with my first LLMD, based on clinical diagnosis.

Note: I did have killer night sweats when I started seeing this second doctor, which my first doc said was due to babs. These sweats went away after treating yeast right off the bat with this second doctor. He seems to know what hes doing and like I said has great reviews from patients. Its just hard times right now and I cannot help but second guess..
Been treating chronic lyme since Mid-2016. Now on Compound Tetracycline 500mg 3/day with Fluconazol for yeast control. Formerly on Clarithromycn and Plaquenil and before that a whole bunch of other stuff including the Buhner Protocol, other herbal remedies.

Western Blot Positive tested IGM Serum 2.6? Other Western Blots - IGM - 41 and 23. CD-57 = 34L.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33798
   Posted 1/31/2018 10:29 PM (GMT -6)   
goldengoose said...
that it is not necessary to test for co-infections...

Not sure what to think about this, I've also heard others say that the testing is so unreliable that co-infection treatment is often, as it was with me with my first LLMD, based on clinical diagnosis.


And then there are LLMD's like Dr. J. who treat the three B's regardless. Babesia, bart, and borrelia.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33798
   Posted 2/1/2018 1:50 AM (GMT -6)   
goldengoose said...


Is there anyone out there who can vouch that this is a valid goal? Am I better off to find a different doctor who can try just keeping the Lyme under control with herbals, etc.


There are some antibiotic successes in this thread:

Chapelle, Opugirl, violets, lymesingerinCO......all healed on antibiotics.

/www.healingwell.com/community/default.aspx?f=30&m=3562412

I personally know a few in my location, as well.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
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