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Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32610
   Posted 2/1/2018 9:15 PM (GMT -6)   
As some of you already know...I will be traveling to Dr. J's clinic in a few days. I have decided to leave my iPad at home...so I'm not going to be posting much...if at all.

goshawk and astroman have been pitching in regularly the past several months - even though they have not been 'blessed' with the official Mod status. (Thank you both!)
I have asked Traveler if she could help out for the time I'm gone - due to how busy it can be at times.

But there will be times when they are not on the forum.


Please take a few minutes to welcome new members here, and bump threads to the top if they don't have any responses.


Thank you all...
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Village Crazy Lady
Regular Member


Date Joined Feb 2017
Total Posts : 374
   Posted 2/1/2018 9:20 PM (GMT -6)   
Safe travels. Hope the visit goes well!
~~~Your Life is an Occasion, Rise to It ~~~

Lyme,Bart,Molds,Candida,Cpn,Myco,Ebv,Cmv,MTHFR,Lead.
Symptoms for years and years, Diag 6/2016, LLMD 10/2016
Treating with Abx and company

Hoagie
Veteran Member


Date Joined Jul 2017
Total Posts : 614
   Posted 2/1/2018 10:50 PM (GMT -6)   
Wishing you safe travels and an excellent visit.

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 4879
   Posted 2/1/2018 10:53 PM (GMT -6)   
For those posting this Sunday evening-

keep in mind its the official Superbowl "holiday" in the US.
Had initial lyme symptoms late 80's, then again and with bullseye early 90's. Ended ABX for Lyme in 2015. Rebuilding / fine tuning / fixing muscles since then; member "10 Percenters Lyme Club". What an adventure this has been. Hashimotos adds to the enjoyment.

goshawk
Veteran Member


Date Joined Sep 2016
Total Posts : 2111
   Posted 2/2/2018 4:49 AM (GMT -6)   
Safe travels and wishing you the best at your visit with Dr. J.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 36310
   Posted 2/2/2018 11:09 AM (GMT -6)   
YAY!!! Your appointment is finally here!!! I wish you the very best of luck on the trip and with Dr. J!! You have a lot to fill us in on when you return!! LOL! We will want to know how your trip went and how the appt went!!!

I'm usually on the most during the mornings and afternoons - but if anyone has questions or needs help, please do email me!!
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/

Serfr
Regular Member


Date Joined Jan 2014
Total Posts : 256
   Posted 2/2/2018 11:35 AM (GMT -6)   
Good Luck Girlie, hope you feel better!
Tried abx and iv abx for 2 years, now trying herbs; Chronic Tonic (bottled) CSA formula, JK, Houttunia, Andrographis, Cats Claw
Symptoms Aug 2013-
Extreme fatigue, dizziness, head pressure, 1 seizure, ringing ears, crawling sensations everywhere, throat pain, groin pain, very cold hands/feet, joint pain, sole pain, body/muscle spasms, teeth/gum pain, constipation, depression, panic attacks

k07
Veteran Member


Date Joined Sep 2015
Total Posts : 2501
   Posted 2/2/2018 12:50 PM (GMT -6)   
Best of luck! I hope this is the beginning of the end of your journey with lyme & co!

goshawk
Veteran Member


Date Joined Sep 2016
Total Posts : 2111
   Posted 2/2/2018 5:02 PM (GMT -6)   

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32610
   Posted 2/3/2018 12:36 PM (GMT -6)   
Thanks guys!

I’m sitting at the second airport now - our two hour wait here has turned into three hours due to a delay.

I just happen to be having a bad day today - pain, acid reflux .. bit of nausea .
Good grief - we’ve only just started the trip!
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 36310
   Posted 2/3/2018 1:00 PM (GMT -6)   
Oh no!! Well, hopefully that's just part of the 'jitters' about the trip for you and it all settles down as soon as you are boarding the plane. Fingers crossed!!

Best of luck!
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/

LoveBill
New Member


Date Joined Aug 2017
Total Posts : 6
   Posted 2/4/2018 3:59 AM (GMT -6)   
Girlie, we haven’t chatted in a while, but glad to know you are seeing Dr J. All the best and safe travels!

Mister Mike
Regular Member


Date Joined May 2016
Total Posts : 272
   Posted 2/4/2018 2:09 PM (GMT -6)   
Girlie - hope the appointment goes really well and that this is the added boost to help finally get you over the top! While you were stuck in airports yesterday so was I, as I was flying back from seeing Dr T and had some major delays.

ChickenArise
Veteran Member


Date Joined Nov 2015
Total Posts : 1506
   Posted 2/4/2018 2:26 PM (GMT -6)   
Hope all goes well, Girlie. Grateful for all of your help in the past.

2014 Mold Sick,2015 Clinical Lyme and co.,2016 Morgellons,2017 Remission
YT: ClintFromNYtoVA2
Twitter: @ClintFromNYtoVA
Blog: www.fascinatingtimetobealive.blogspot.com/
" The path to disappointment is paved with expectations "

1000Daisies
Veteran Member


Date Joined Apr 2016
Total Posts : 2438
   Posted 2/4/2018 2:35 PM (GMT -6)   
Girlie - you are in my thoughts. Truly wishing you the very best in your journey to the east! Keep us posted!
Kid#1: Extremely sick for several years, very difficult to treat, but doing great now!
Kid#2: Still sick now despite being treated for years but doing better (not well yet).
Kid#3: Generally good but relapsing off/on.
Me: Adv Labs positive 2016 (suspected I passed to my kids)-not as sick as others, mostly battling fatigue and yeast issues (heart/kidney issues resolved)
Treating with herbals now.

Purrrsiankitty
Veteran Member


Date Joined Dec 2016
Total Posts : 1780
   Posted 2/4/2018 3:07 PM (GMT -6)   
Girlie,

Praying for your successful treatment andrecovery
Dx May 2015 Quest pos Elisa/neg WB. Doxy only. Restest Igenix lyme pos, neg CDC, 18 +, **23-25 IND, *30 +, **31+, **34 IND, **41+, **83-93++. Retest12/16 Igen 41+, 83-93+ whole blood-plasmid pos. Retest Lyme/co's. Neg co's. Suspected Bart. 7/15 start 16 mo of doxy, azith, ceftin. Finished 09/16. Cowden start 12/16 and stop April 2017 to deal with yeast & leaky gut.Restart Buhner for BBB.

yancync
Veteran Member


Date Joined Nov 2015
Total Posts : 544
   Posted 2/5/2018 2:32 PM (GMT -6)   
Girlie,
Best wishes! We are in the area so if you need anything while in DC reach out via my email.
Parent of teen DS w/ CDC+ Lyme test Nov 2015, late stage Lyme + mycoplasma, bartonella, babesia. Currently treating with antibiotics/anti-malerials, multivitamin, magnesium, Charlotte's Web Advanced CBD oil.

Website I started: ParentsofLymeKids.com aka Lyme Disease 101 for Parents

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32610
   Posted 2/6/2018 4:18 AM (GMT -6)   
Thank you all for your support!

Just a quick note - my appt yesterday was very thorough - my husband and I are both impressed with the clinic. My appt was from 12:15 to about 4:30.
I never once felt rushed

KL is amazing - she had quickly reviewed my two inch thick stack of information from my previous 4 years (since my symptoms started) prior to seeing me and had a good grasp of my issues !! Don’t know how she remembers everything - obviously doesn’t have Lyme. smile

Unfortunately she is leaving and I will be switching to someone else.

I did not talk to Dr J - I may request to see him in the near future - I felt very well taken care of with KL.

At this point - my only regret - is not going a couple years ago.

I know this doesn’t translate into guaranteed remission, but I have renewed hope and optimism now.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32610
   Posted 2/6/2018 4:22 AM (GMT -6)   
... and Washington is BEAUTIFUL!

My husband (who doesn’t like travelling) is impressed!

We didn’t really have time to see much, but are looking forward to coming back and seeing the sights.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Dahlias
Regular Member


Date Joined Jun 2017
Total Posts : 456
   Posted 2/6/2018 6:57 AM (GMT -6)   
Yay!! I'm so glad you're happy with your visit! I hope it opens a new chapter of healing for you.
"This too shall pass. It might pass like a kidney stone, but it will pass."

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 36310
   Posted 2/6/2018 10:04 AM (GMT -6)   
turn smilewinkgrin YAY!!!! smilewinkgrin turn

And I'm so happy that things went so well!!

Now, have a safe, uneventful trip home, please!! LOL! And then get some good rest, I'm sure that the members here have missed you!!!!

Looking forward to hearing more about your trip soon!! yeah
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/

physedgirl09
Regular Member


Date Joined May 2017
Total Posts : 399
   Posted 2/8/2018 5:02 AM (GMT -6)   
So glad your trip went well girlie!!!
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