I wonder what the finger vibration test is. Or how I would do on it. I got my nerves all checked out last summer and those came up fine. I do know that sitting in the car with its vibration have become a special form of torture.
I think the main positive from this study is that is shows that what was thought to be Lyme symptoms (like swollen knees or bells parsley or whatever) is not the actual reality for most of us.
I can't say that I have insomnia, but I have been on amitriptyline for close to a year now. It does help me sleep. The rest of what the study's symptoms, yeah. For the record, I fit the CDC description of confirmed-Lyme PTLDS to a T.
This study is all obvious to us, but since it is not obvious to others, it's a good first step. Next, JHU needs to find out what will help those with Lyme and continuing symptoms.
But since medicine usually gets devolved into managing symptoms instead of curing - I'd be happy right now with having PTLDS be a recognized syndrome with all the medical and disability rights. And have some management protocols. Amitriptyline for insomnia is a good one. Some prescription pain relief can be on the table. Referrals to health counseling and PT. [Actual protocols for PT so they don't break us!]. Things like that.
I feel for those who have been misdiagnosed with RA or Fibro and whatever. But at least those are names that don't always make doctors roll their eyes in disbelief. My GP is trying to be helpful, but since she doesn't know what is going on or how to treat even she sometimes falls into the "maybe it's just stress" camp. Even though I fit PTLDS to a T, it's still a "we don't know what it is, or what to do with it" thing. Getting over that hurdle is a huge leap forward, I think.
A point well made, Eiren. You're right, and I'm one of those that rolled my eyes at this article for the obvious reasons. But, we need to make headway in any area that we can, and if it's getting PTLDS recognized as a real thing, it just may help.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
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