First of all, I'm so very sorry that this has happened to you! It's actually a fear of mine for others - that someone will decide that I should donate my organs. As selfish as that sounds, it's been seen and documented before that someone could unknowingly have these infections (testing is very poor) and then donate an organ and pass these infections along with the donated organ.
As you said you were bit by ticks though, it's hard to be able to know just what happened there. Either way, I'm very sorry, and you should know up front that since you will require immune suppression meds, treating these infections will be very tricky and you will need a very experienced LLMD (Lyme Literate MD).
For information on finding an ILADS (International Lyme and Associated Diseases Society) trained Lyme Literate Medical Doctor(LLMD) in your area, you will need to enable your email option in your profile in order to receive any recommendations, as we don't allow doctor's names and contact info to be posted on the forum for several reasons. You can enable your email option in your profile, under 'edit profile'. Be sure to click the submit button to actually save your preference.
You can send me an email by clicking on my screen name or the small blue envelope under my screen name. I may have contact information for some LLMD's in your area as well. Please include your state and area that you would like to find a LLMD in and I will see how close I can get to your
You can start a new thread titled something like "Looking for LLMD in the (insert the nearest larger city & state)
area". Members can email you about
the LLMD's that they see in that area if you have your email enabled. We don't allow doctors names to be posted though.
You can go to The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link:www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74
You can email the Tick-Borne Disease Alliance at: firstname.lastname@example.org
ILADS has their own referral system as well:
You will want to find an ILADS trained doctor, as ID Docs (Infectious Disease Doctors) as well as many others, believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme.
Do ask a lot of questions here!! We are happy to help as much as we can, although please do your own research as well. The suggestions here can be very helpful for 'leads' on what to research, and what to do with that information though!
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/