Immoglobulin testing done. Possible answer?

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Purrrsiankitty
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Date Joined Dec 2016
Total Posts : 1780
   Posted 2/4/2018 3:33 PM (GMT -6)   
I've been so sick, the usual exhaustion, digestive issues, etc. Then I got the flu, which gave me a 102.5 fever for weeks, and my body temp is normally 97.2.

Plus, I had a house listed for sale in the coldest January ever. I was too sick to drive, so I would go across the street when there was a showing, with a vantage point of the house and wait for them to leave. Thankfully, I had heated seats😏 The house sold in 6 weeks, thank God, now I have a move to look forward to.

A few weeks ago I had bloodwork done to check my immuglobin levels My G was quite low, showing a tanked immune system...Although this is something I definitely didn't want to hear, If it provides an answer on why I never seem to heal, I'm thrilled. Now the doctor is running tests for the G subclasses to try to pinpoint what is at the cause.

Treatment is IV treatment for an undetermined amount of time. The cost is compared to chemotherapy and very expensive. Chemo that I had 4 years ago could very well be a contributing factor to where I am today. 😐

My LLMD is writing letters to insurance providers,etc, in an effort to get me approved. She is optimistic that it can be done and feels good about this treatment for my situation.

I also have a ct scan in a few weeks for my cancer check. I am 4.5 years clear!

Please keep me and this favorable insurance decision in your prayers. Thank you all!

Post Edited (Purrrsiankitty) : 2/4/2018 2:41:53 PM (GMT-7)


Traveler
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Date Joined May 2007
Total Posts : 36310
   Posted 2/4/2018 3:41 PM (GMT -6)   
Best of luck with this, PK!!! I wish you all the best and hope that this will help tremendously. You are definitely in my prayers!
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/

k07
Veteran Member


Date Joined Sep 2015
Total Posts : 2502
   Posted 2/4/2018 7:31 PM (GMT -6)   
Is the treatment IVIG?

I am so sorry for all you’ve been through. You are one tough cookie.

Purrrsiankitty
Veteran Member


Date Joined Dec 2016
Total Posts : 1780
   Posted 2/4/2018 9:03 PM (GMT -6)   
yes IVIG, usually done in a home nursing situation. I'm not afraid of anything at this point. thx for asking 😊

RedLabel
Regular Member


Date Joined Feb 2017
Total Posts : 216
   Posted 2/5/2018 2:11 AM (GMT -6)   
Good luck. I hope the best for you.

I also had some low immunoglobulin subclasses. Not overall though.
Lyme, CPN, Yersinia, Coxsackie, CMV and Bartonella after LLMD visit.
CD57 of 0

Started treatment in May 2017

physedgirl09
Regular Member


Date Joined May 2017
Total Posts : 399
   Posted 2/5/2018 6:18 AM (GMT -6)   
Ive actually had a slightly high subclass 3...does anyone know exactly what that means? by slightly i mean the range is 15-102 and mine was 104
Symptoms since July 2016. Very mild: slight dizziness but nothing to call the doctor about.
February 2017=flu like symptoms; felt like i was dying from February to June. Tested positive for active EBV.
June 2017= tested western blot: reactive lgm 23 lgg 41 & 66
Started ABX treatment in June to present with llmd
functioning at about 70%. determined to get to 100%

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 4880
   Posted 2/5/2018 5:07 PM (GMT -6)   
Good that you have some answers.

I wonder why a test like this isnt a standard LLMD test?

1000Daisies
Veteran Member


Date Joined Apr 2016
Total Posts : 2438
   Posted 2/5/2018 9:51 PM (GMT -6)   
Oh my, Purr. You have been through so much. I am so sorry for all that you have been through and what you continue to go through.

You are always in my thoughts. Wishing you healing!!! {{{HUGS}}}
Kid#1: Extremely sick for several years, very difficult to treat, but doing great now!
Kid#2: Still sick now despite being treated for years but doing better (not well yet).
Kid#3: Generally good but relapsing off/on.
Me: Adv Labs positive 2016 (suspected I passed to my kids)-not as sick as others, mostly battling fatigue and yeast issues (heart/kidney issues resolved)
Treating with herbals now.
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