Lyme and coinfection ?

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LisAmelissa
New Member


Date Joined Feb 2018
Total Posts : 2
   Posted 2/5/2018 4:25 AM (GMT -6)   
I have Lyme disease. Dr put me on doxycycline for threee weeks. My joint pain is gone but a week later my glad is swollen . I have neck pain and stiff neck. My Dr put me on amoxicillin. The swelling went down for a day and now is worst. I can't even sleep. I used a heating pad earlier and made it worst. my neck and shoulder are so stiff. Swollen gland feels a little bigger tonight. I have heartburn as well. Could this be bartonella? Any advice is appreciated. Thanks

tickbite666
Veteran Member


Date Joined Mar 2014
Total Posts : 1601
   Posted 2/5/2018 6:36 AM (GMT -6)   
See a LLMD and get proper treatment for Lyme and co-infections. Single ABX treatment is never fully effective.

Traveler
Forum Moderator


Date Joined May 2007
Total Posts : 36310
   Posted 2/5/2018 10:15 AM (GMT -6)   
Hi LisAmelissa,
Welcome to the community!

First of all, I'm sorry you have reason to be here.

Are you detoxing?
​​​​​​​​​​​​​​​​​​​​With the experience that I had personally, and what I've watched others go through, here is what I believe needs to happen for many of us to heal:

a)Detoxing - gene mutations, multiple tick-borne infections and more can have a big impact on our ability to detox.

You can find some really good detoxing suggestions in the "New to Lyme?" thread that sits at the top of the forum. And this is another really good resource for detoxing ideas for Lyme patients:
http://www.tiredoflyme.com/detox-methods.html

But, there is such a thing as over detoxing. This happens when we move more toxins than our body is capable of processing out effectively. Many toxins are stored in our tissues, and by detoxing, we move them to the bloodstream where we can process them out of our bodies through the lymph system, then on to the liver and kidneys as so on. We have to be sure to add in more detoxing routines slowly and carefully, or we will end up herxing just like we had never been detoxing. This article helps to explain that some: www.tiredoflyme.com/4-reasons-why-you-still-feel-bad-despite-detoxing.html


​​​​b)Supporting the body functions/systems. We have to have the body working at it's peak performance to heal from something as devastating as these infections. Supporting any gland, organ, body system that is struggling will allow the body to switch it's 'concentration' from just trying to function over to healing.

​​c) Raise the immune function. Many legitimate Lyme researchers now believe that it's the lowered immune function that determines who gets chronic Lyme and who heals right away. We already know that Lyme lowers the immune function and when a person has Bartonella and/or Babesia, the immune function is further compromised, so to heal we must raise our immune function.

d) Lastly, oddly enough, are anti-infective treatments. Many of us have experienced treatment failures, so we can see that the treatments aren't the only thing we need to have - there has to be more to the equation, but anti-infective treatments are very important!! Lyme bacteria are one of the most complicated bacteria! ​Although it takes only hours or days for most bacteria to replicate, Lyme bacteria only replicates in the body every few weeks.​

I would agree with Tickbite - if you aren't seeing a Lyme literate MD, it would be best. ​​​​​​​​​​​​​​​​​​​For information on finding a​n ILADS ​(International Lyme and Associated Diseases Society)​ trained​ Lyme Literate Medical Doctor(LLMD) in your area, you will​​​​​​​​​​​​​​​​​​ need to enable your email option in your profile in order to receive any recommendations, as we don't allow doctor's names and contact info to be posted on the forum for several reasons. You can enable your email option in your profile, under 'edit profile'. Be sure to click the submit button to actually save your preference.

​​​​​​ ​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​You ​​​​​​ ​​​​​​​​​​​​can send me, Girlie or Goshawk an email by clicking on the screen name or the small blue envelope under one of our screen names. We may have contact information for some LLMD's in your area as well.​ ​Please include your state and area that you would like to find a LLMD in and we will see how close we can get to your location.​

​​​​​​​​You can start a new thread titled something like "Looking for LLMD in the ​​(insert the nearest larger city & state)​​ ​​area". Members can email you about the LLMD's that they see in that area if you have your email enabled. We don't allow doctors names to be posted though.

​ ​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​​Y​​ou can go to ​​The Lyme Disease Association and search for LLMD's 3 times in a month. You have to register first. Here is the link:
www.lymediseaseassociation.org/index.php?option=com_content&view=article&id=277&Itemid=74​

​​ ​​​​​​​​​​​​​​​​​​​​​​Y​​ou can email ​​​​the​​ ​​​​​​Tick-Borne Disease Alliance at​: medicalinfo@tbdalliance.org
​​

​​ ​​​​​​​​​​ILADS has their own referral system as well:
​​​​​​​​​​​​​​​​http://ilads.org/ilads_media/physician-referral/


​ ​
And www.LymeDoc.org

You will want to find an ILADS trained doctor, as ID Docs (Infectious Disease Doctors) as well as many others, believe Lyme is hard to catch and easy to treat, and don't believe in the reality of chronic Lyme. Go to the ILADS site to read the new (2014) Treatment guidelines to get you started on your healing journey: www.lymenet.org/BurrGuide200810.pdf
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/

PeteZa
Veteran Member


Date Joined Jul 2015
Total Posts : 9728
   Posted 2/5/2018 10:24 AM (GMT -6)   
Many of the lyme symptoms overlap with the co infection symptoms, so it is hard to say with precision if it is lyme or a co infection. Every one just guesses as best they can.

However, here is a symptom chart that might be helpful for the "best guess."

www.lyme-symptoms.com/LymeCoinfectionChart.html
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