Looking for a new LLMD Near Indiana

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

NicHostetler
Veteran Member


Date Joined Mar 2017
Total Posts : 647
   Posted 2/5/2018 3:19 PM (GMT -6)   
Hello everyone, I hate to say it but I think it is time for me to find a new LLMD. My current doctor seems to have given up on me after my DNA Connexions results came back completely negative. Even AFTER having a positive western blot test that included two HIGHLY specific bands (correct me if I am wrong) bands 18 and 23.

I see that there are a few others in Indiana, but not sure if they are good. I am looking for someone GOOD that knows the coinfections, yeast, mold, heavy metals, etc.

I cant take this dizzyness, fatigue, brain fog, heart palps, etc. any longer.

I live in Fort Wayne, so the closer the better but I am willing to travel.
Very sick starting around 07/2016
Started treatment 03/2017
Bixain & Cefdinir - 3 months - plateaued
Then Biaxin & Minocycline - 3 months - did not improve
Tinidazole - 500MG 2x a day - 2 weeks
Now taking:
Mepron 5mL 2x a day
Zithromax
Nystatin
Cats Claw - 30 drops 2x a day
Gou Teng - 30 drops 2x a day
CSA - 40 drops 2x a day
Japanese Knotweed - 40 drops 2x a day

Traveler
Elite Member


Date Joined May 2007
Total Posts : 36310
   Posted 2/5/2018 3:23 PM (GMT -6)   
Sometimes, changing doctors is what leads us to feeling better - a new set of eyes can make a world of difference for some patients -so don't feel bad!!!

I did want to say that Band 18, while only appearing for those bacteria with a "tail", but is not like Band 23, as it only shows for Lyme. There are a few other bacteria with "tails" out there!
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/

NicHostetler
Veteran Member


Date Joined Mar 2017
Total Posts : 647
   Posted 2/5/2018 3:39 PM (GMT -6)   
Traveler said...
Sometimes, changing doctors is what leads us to feeling better - a new set of eyes can make a world of difference for some patients -so don't feel bad!!!

I did want to say that Band 18, while only appearing for those bacteria with a "tail", but is not like Band 23, as it only shows for Lyme. There are a few other bacteria with "tails" out there!


Very true!!

I always thought the same, but I researched the bands a few days ago and have found over and over again the band 18 is thought to be specific.. can you show me where it says its just the tail?

www.stopthelymelies.com/deciphering-igenex-results.html

/www.lymedisease.org/lyme-basics/lyme-disease/diagnosis/

lymediseasechallenge.org/testing/

Post Edited (NicHostetler) : 2/5/2018 1:43:24 PM (GMT-7)


NicHostetler
Veteran Member


Date Joined Mar 2017
Total Posts : 647
   Posted 2/6/2018 11:10 AM (GMT -6)   
Anyone?

I am looking for one anywhere in the Midwest.. Chicago, Indy, Columbus, Cincinnati, Cleveland, etc.

Traveler
Elite Member


Date Joined May 2007
Total Posts : 36310
   Posted 2/6/2018 11:15 AM (GMT -6)   
NicHostetler said...
Traveler said...
Sometimes, changing doctors is what leads us to feeling better - a new set of eyes can make a world of difference for some patients -so don't feel bad!!!

I did want to say that Band 18, while only appearing for those bacteria with a "tail", but is not like Band 23, as it only shows for Lyme. There are a few other bacteria with "tails" out there!


Very true!!

I always thought the same, but I researched the bands a few days ago and have found over and over again the band 18 is thought to be specific.. can you show me where it says its just the tail?

www.stopthelymelies.com/deciphering-igenex-results.html

/www.lymedisease.org/lyme-basics/lyme-disease/diagnosis/

lymediseasechallenge.org/testing/



The reason I don't use those other sites is because (at least at one time) they all had different results, which meant someone was wrong! So I looked to find something that talked about every band, explaining what they found in relation to the bands and research articles to back it up - that's when I came across this site:

www.oocities.org/hotsprings/oasis/6455/western-blot.txt
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/

NicHostetler
Veteran Member


Date Joined Mar 2017
Total Posts : 647
   Posted 2/6/2018 11:34 AM (GMT -6)   
Traveler said...
NicHostetler said...
Traveler said...
Sometimes, changing doctors is what leads us to feeling better - a new set of eyes can make a world of difference for some patients -so don't feel bad!!!

I did want to say that Band 18, while only appearing for those bacteria with a "tail", but is not like Band 23, as it only shows for Lyme. There are a few other bacteria with "tails" out there!


Very true!!

I always thought the same, but I researched the bands a few days ago and have found over and over again the band 18 is thought to be specific.. can you show me where it says its just the tail?

www.stopthelymelies.com/deciphering-igenex-results.html

/www.lymedisease.org/lyme-basics/lyme-disease/diagnosis/

lymediseasechallenge.org/testing/



The reason I don't use those other sites is because (at least at one time) they all had different results, which meant someone was wrong! So I looked to find something that talked about every band, explaining what they found in relation to the bands and research articles to back it up - that's when I came across this site:

www.oocities.org/hotsprings/oasis/6455/western-blot.txt


Ahh, gotcha. This is the website that I remember looking at when I was first researching the bands. Hard to know what is right, like you said. Thank you!!

Traveler
Elite Member


Date Joined May 2007
Total Posts : 36310
   Posted 2/6/2018 11:40 AM (GMT -6)   
Right, that's why I go with the one that shows the PubMed article to back up what they are saying - just like I try to use articles to show that what I'm saying is true - it's not just something I'm saying because I believe I'm right. LOL.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/

NicHostetler
Veteran Member


Date Joined Mar 2017
Total Posts : 647
   Posted 2/6/2018 11:42 AM (GMT -6)   
Traveler said...
Right, that's why I go with the one that shows the PubMed article to back up what they are saying - just like I try to use articles to show that what I'm saying is true - it's not just something I'm saying because I believe I'm right. LOL.


Lol I understand! I also find it interesting that in that article it mentions bands 18 and 23 as showing up with neuroborreliosis because that is what feel that I have. I also had bands 66, and 41.

Traveler
Elite Member


Date Joined May 2007
Total Posts : 36310
   Posted 2/6/2018 3:18 PM (GMT -6)   
What I found for band 66 through that site is that it's a heat shock protein, that is an outer/intregal membrane that is often positive for Borrelia hermsii, which is a tick-borne relapsing fever strain.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/
New Topic Post Reply Printable Version
Forum Information
Currently it is Thursday, August 16, 2018 7:38 AM (GMT -6)
There are a total of 2,993,213 posts in 328,025 threads.
View Active Threads


Who's Online
This forum has 161222 registered members. Please welcome our newest member, laozishidi.
284 Guest(s), 6 Registered Member(s) are currently online.  Details
sebreg, sierraDon, ks1905, Mamatomypeas, Going for brachy, UCmee