Traveler: Yes - I do trust the doctors I am working with. Have had great results until just recently - LLMD said, "for you, I think it will just take time". Genetics show detox is on the lower end. I just don't like that the lag-time between appointments is a good 3 months. I can contact them inbetween, but it doesn't feel efficient. Hence the reason why I have come here. I decided that the Dr's offer what has been researched or established, but here there are people that have been working with other things that are helpful and share what works.
Question - is it possible to know if a person is over or under detoxing? Seems this would dictate what to do to help. I'm sitting here looking at some Epsom salts, and alka-seltzer Gold and a lemon and just not sure if I should take the plunge or not. These were suggestion to diminish Herx.
What are Liver and Gall bladder flushes?
Comment on Activated Charcoal: I hear allot about this, but the LLMD I am seeing suggested to not take it as it binds to some of the herbs we are using which would defeat the purpose of taking them. Just wanted to put that out there as something to consider for others.
What are Cytokines Re-modulators? I know what cytokines are and how bad they are for us, but have never hear of re-Modulators. Very curious.
Apple cider, as well as bone broth, wine, and other such things are out for me. My genetics shows I don't detox from histamine well. Am taking a suppliment to help with this but was told to stay aware from them. It was even suggested to NOT eat left overs. Well - I had to draw the line there. I can't cook 5 hours a every day. I've been ok for the most part with left overs.
Thanks for your input, links etc. Very helpful!
It's really wonderful that you trust your doctors - it's immensely helpful!! LOL!
To figure out if you are under or over detoxing is a bit tricky, and will involve possibly some uncomfortable days, but it's important to figure it out (unfortunately!). To do this, I prefer to increase my detoxing first - that way I can easily lower it if I find out that I'm already trying to push my body to detox too much. The "symptoms" are essentially the same though - and increase in your symptoms or new symptoms showing up.
If you wish to lower your detoxing first, then do the same thing - watch for an increase in symptoms, and increase your detoxing if you see that happening. But, with what you have said about
your detoxing abilities at this point, I would wager that you likely aren't detoxing enough, although you may need to find some more effective, targeted detoxing instead of "just more" detoxing. I like to look at each organ that helps to detox the body and make sure I'm 'hitting' all of them - skin, liver, kidneys, lymph system, intestines.
The liver/gall bladder flushes I use are all natural, and was given to me by my TCM doctor. You can find the recipe on page 2 in the bottom post in the "New to Lyme" thread - but here it is as well:
Traditional Chinese Medicine liver detox
In the morning, 1/2 hour before any food, mix:
1 cup fresh squeezed citrus juice - can be orange or grapefruit .
A couple of good squeezes of lemon or lime juice.
1 - 2 cloves of fresh squeezed garlic
1 tablespoon of olive oil.
A few drops of fresh squeezed ginger juice
Do 2 cycles of 7 - 10 days each, with a 3 day break in between the 2 cycles - OR until you see plenty of bile (dark green color) in your stools.
For some reason, doctors seem to misunderstand the timing of using binders. If they are used 2 hours away (before and after) any meds, herbs, supplements, food or anything that you want your body to absorb, then it's not only okay, but preferable to use. We can't wait until after treatments end to detox - many of us would not survive that long! Our bodies can only handle a certain level of toxins in our body before damage begins. This is what happened to me when I tried my very first treatment for these infections. I was not directed to detox, and it was not understood by the patients at that time how important it was. I ended up with seizures and bed bound for months until I could get detoxed some. It took me over 2 years to get to a point with my detoxing to be able to even leave the house on my own. So, I say, don't wait. If you need to use binders, which are incredibly helpful, then just be careful to follow the guidelines about
Cytokine remodulators help the body to adjust to where it doesn't produce so many cytokines (a little basic, but I'm not sure how else to explain it? Maybe someone else will come up with a better explanation???) The herbs don't necessarily directly attack the bacteria, but help the body do a better job at healing and protecting itself from the bacteria and it's cytokines and other issues.
And I'm very glad to hear that you know you need to stay away from the histamine producers! That's pretty important!!
There is also a lot of controversy about
using Stevia as a biofilm buster. It was shown that it works as one....in a test tube, not in a human body, which can be very different, especially with Lyme disease. So we still don't really know if it actually works, but some do feel a difference using Stevia, and some don't. And it's not that those that don't feel a difference with the stevia don't have biofilms - I am "full" of biofilms, if my reaction to cistus incanus tea is any indication at all - and I never once responded to stevia in any way, even though I've used it for over 20 years now. Just something to keep in mind.