At a crossroad in treatment

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goldengoose
Regular Member


Date Joined Sep 2016
Total Posts : 99
   Posted 2/6/2018 5:01 PM (GMT -6)   
Hi again.

So I've been treating chronic lyme for 16 months with abx. During this time I have gotten off of my original dose of 60mg/day of Prozac and .5mg 2x/day of Klonipin. Since starting treatment my physical symptoms have gotten so much better. My Lyme doc said I still had several years of treatment on abx left.

Usually I would say, ok, I have three years of slowly getting EVEN better. Yay! But my anxiety is off the charts lately. Im able to do stuff like work 40 hours a week and snowboard, etc. But my anxiety is not allowing me to sleep more than 5.5 hours at night, and making my head/thoughts race around like a hampster on a wheel. Most times, this anxiety is followed by depression, and then I have a few hours of relief at night.

I have taken a break from my Lyme doctor in order to see a psychiatrist to get my mental health back in line. (My Lyme doctor and I disagree very much on how to treat my anxiety, he has been saying that ssri's will actually make me worse, asking me to take a 10mg prozac and report back on how I feel later that day..) Well, 8 years ago Prozac saved my life and while I believe the Prozac has lost most of its effect after these 8 years, a new med may offer me relief and make treatment much easier to go through.

My question is what do you think? What if I feel great after getting on a new ssri? I'm wondering if I should go back to my Lyme doc and continue to treat with abx indefinitely (he said several more years) or just keep the Lyme in check with natural herbal remedies (stevia, cats claw, andrographis, etc.) Im also thinking treatment options may get better in the future and there may be a better solution than 3 more years of abx!

I know there is no straight "bullet proof" answer. I am just attracted by the SSRI + Herbal path because I really need to get my social life back before I really do go insane. 16 months of a strict diet, being sick, feeling anxiety and depression, being on abx, and the isolation this all causes has got me seriously questioning if I can continue....

Thanks everyone, really

goshawk
Forum Moderator


Date Joined Sep 2016
Total Posts : 2305
   Posted 2/6/2018 6:00 PM (GMT -6)   
Hi goldengoose
I guess you have to do what you think is best for you. If you feel strongly about stopping ABX and going to herbal treatment that is ok but you would want to make sure that you are doing the right herbal protocols for your symptoms.

Herbals also can take some time as there is no quick fix for these infections and if your having symptoms you need to treat not just keep things in check.

Have you researched any herbals that may help for the anxiety?


Hopefully others will be along soon to offer some advice and support to.

Take care, Jo

Traveler
Elite Member


Date Joined May 2007
Total Posts : 36310
   Posted 2/6/2018 6:02 PM (GMT -6)   
One thing is for sure, we need to do what we need to do. Anxiety is a terrible thing to ask someone to just deal with! I've had some pretty serious anxiety issues before, although they were due to having these infections. But, it did give me a glimpse into what it's like, and boy oh boy!! It was not good!

I agree that being on an SSRI may be right for you. I wouldn't have made it through my anxiety 'issues' had I not had them.

I did want to address something you said though - "or just keep the Lyme in check with natural herbal remedies (stevia, cats claw, andrographis, etc.) " These natural treatments don't just keep things in check, they will actually work to heal the infections. Herbs just set up the body to do most of the work, rather than relying on the pharma abx to kill the bacteria and the body to figure out how to get back to functioning normally (although many LLMD's are now seeing the need for supportive therapies!).

If you feel a different approach is what you need, or even a new set of eyes (a different LLMD), then I encourage you to exercise your right to do so. A set of new eyes on a problem is often very helpful!!! And, we really do need to be comfortable with our treatment choices.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/

goldengoose
Regular Member


Date Joined Sep 2016
Total Posts : 99
   Posted 2/6/2018 6:49 PM (GMT -6)   
Thanks to both of you.

If I can get this anxiety under control, I really am not bothered too much by the physical symptoms anymore. I would not mind taking herbals to slowly get better.

Ive been off abx for just a week now and Im going to wait for the ssri/medication to work until I start another regimen. (whether that is herbal or abx) Do you think I run too much of a risk of the borrelia making a come back during this time. It kind of freaks me out to think of those little buggers are in there with nothing killing them. (hopefully since my fatigue is no longer a problem and my symptoms have gotten much better that means my immune system is strong enough to start fighting them more effectively) It could up to 6-8 weeks until I know how the ssri will be helping me out. I dont want to lose too much of the hard earned ground Ive made on the Lyme and coinfections.

Also, now that I am off that doctors regimen (ABX and Fluconacol) I have started to slowly start taking probiotics to reintroduce flora into my gut. Is there anything I should be careful of here, ie: introducing pro-biotics too fast?
Been treating chronic lyme since Mid-2016. Now on Compound Tetracycline 500mg 3/day with Fluconazol for yeast control. Formerly on Clarithromycn and Plaquenil and before that a whole bunch of other stuff including the Buhner Protocol, other herbal remedies.

Western Blot Positive tested IGM Serum 2.6? Other Western Blots - IGM - 41 and 23. CD-57 = 34L.

1000Daisies
Veteran Member


Date Joined Apr 2016
Total Posts : 2474
   Posted 2/6/2018 11:26 PM (GMT -6)   
You posted a similar thread few days back. I posted on that one. smile
Kid#1: Extremely sick for several years, very difficult to treat, but doing great now!
Kid#2: Still sick now despite being treated for years but doing better (not well yet).
Kid#3: Generally good but relapsing off/on.
Me: Adv Labs positive 2016 (suspected I passed to my kids)-not as sick as others, mostly battling fatigue and yeast issues (heart/kidney issues resolved)
Treating with herbals now.
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