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mareish
Regular Member


Date Joined Mar 2017
Total Posts : 221
   Posted 2/6/2018 6:46 PM (GMT -6)   
Just had appt w/llmd. Ehrlichia is still positive as is Lyme.

Doc says can't get rid of Lyme until Ehrlichia has been taken care of, so tomorrow I start Rifampin and Zithromax. Have been on Biaxin and Amoxixillin for past 6 months. Was on Doxycyline for a few months prior.

CD57 has gone up to 67 which is a plus. Doc thinks the lack of a bigger CD57 increase is likely due to Ehrlichia.

Can't remember what I posted last week on the subject but hope this answers questions from then.
Lyme CDC POS
Bartonella POS
Ehrlichia POS
CD57 30, then 12, now 64

goshawk
Veteran Member


Date Joined Sep 2016
Total Posts : 2122
   Posted 2/6/2018 6:53 PM (GMT -6)   
Hi and thanks for the update. I hope the new treatment helps and remember to keep detoxing.

Take care Jo

Rikky1
Veteran Member


Date Joined Jun 2015
Total Posts : 2860
   Posted 2/6/2018 7:29 PM (GMT -6)   
careful with that rifampin it does more than the others. it'll bust open biofilms, hit persisters and very effective against gram negative bacteria like bartonella and brucella.

mareish
Regular Member


Date Joined Mar 2017
Total Posts : 221
   Posted 2/6/2018 9:56 PM (GMT -6)   
Thanks, Jo! Nice to have the detox reminder.

Rikki!, have you taken Rifampin? Anything in particular I should expect. Bad herx, etc??

Thanks all.
Lyme CDC POS
Bartonella POS
Ehrlichia POS
CD57 30, then 12, now 64

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32667
   Posted 2/7/2018 12:14 AM (GMT -6)   
mareish said...
Just had appt w/llmd. Ehrlichia is still positive as is Lyme.

Doc says can't get rid of Lyme until Ehrlichia has been taken care of, so tomorrow I start Rifampin and Zithromax. Have been on Biaxin and Amoxixillin for past 6 months. Was on Doxycyline for a few months prior.

CD57 has gone up to 67 which is a plus. Doc thinks the lack of a bigger CD57 increase is likely due to Ehrlichia.

Can't remember what I posted last week on the subject but hope this answers questions from then.


How was it determined that Ehrlichis and Lyme are still positive?
Rifampin is a good antibiotic for Bartonella.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

mareish
Regular Member


Date Joined Mar 2017
Total Posts : 221
   Posted 2/7/2018 3:57 AM (GMT -6)   
Girlie, From tests done through Igenex last month.

Are you saying the Rifampin is not good for Ehrlichia?
Lyme CDC POS
Bartonella POS
Ehrlichia POS
CD57 30, then 12, now 64

RedLabel
Regular Member


Date Joined Feb 2017
Total Posts : 216
   Posted 2/7/2018 4:36 AM (GMT -6)   
Good to hear your CD57 is going up. I'm still waiting for that and just added in rifampin myself. Will update if I see any progress
Lyme, CPN, Yersinia, Coxsackie, CMV and Bartonella after LLMD visit.
CD57 0, 2, 0, 3

Started treatment in May 2017
Currently on Azithromycin, Doxycycline, Plaquenil, Rifampicin, Delimmun

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32667
   Posted 2/7/2018 4:37 AM (GMT -6)   
mareish said...
Girlie, From tests done through Igenex last month.

Are you saying the Rifampin is not good for Ehrlichia?


The testing isn’t reliable- Lyme for instance can show a positive WB even after you are in remission. And a negative WB doesn’t mean you are in remission.
What type of test is ehrichlia - was it a pcr?

That’s why we treat until symptoms abate.

Rifampin could be good for ehrilichia - I don’t know - I’ve read doxy is.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

mareish
Regular Member


Date Joined Mar 2017
Total Posts : 221
   Posted 2/7/2018 4:50 AM (GMT -6)   
Good luck, RedLabel. I hope you see an improvement in your cd57 and am interested to hear how you do on the Rifampin.

Girlie, I still have significant symptoms in addition to the positive testing.

Don't think the Ehrlichia test was pcr but will have a look.
Lyme CDC POS
Bartonella POS
Ehrlichia POS
CD57 30, then 12, now 64

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32667
   Posted 2/7/2018 5:19 AM (GMT -6)   
From Igenex site on testing those infections and interpreting results:
Limitations

A negative HME IFA test result does not exclude the possibility of E. chaffeensis infection.
A negative HGA IFA test result does not exclude the possibility of A. phagocytophilum infection.
Cross-reactions can occur among the Rickettsiaceae, including: Rickettsia, Ehrlichia and Anaplasma.
Results should be interpreted in conjunction with other laboratory and clinical findings.

-------------------------------------------------------------------------------------
That's good that your Dr. is looking at a clinical picture...not just testing.
...can you distinguish lyme from Ehrlichia? (I haven't read much about Ehrlichia symptoms)


Also wanted to mention - that's a good sign that your cd57 has risen to 64 from 12.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

mareish
Regular Member


Date Joined Mar 2017
Total Posts : 221
   Posted 2/7/2018 9:52 AM (GMT -6)   
The Ehrlichia test is an HME IFA.

As for distinguishing between Lyme and Ehrlichia ... I have no idea at all what symptoms go with which infections.
Lyme CDC POS
Bartonella POS
Ehrlichia POS
CD57 30, then 12, now 64
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