what sleep med are you on? do they work?

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lymehater
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Date Joined Jan 2016
Total Posts : 293
   Posted 2/9/2018 1:53 PM (GMT -6)   
After much hesitation about using prescription sleep aids, I caved and a dr prescribed Xanax. It didn't work that great, it was better than no sleep. Then a Nurse Practioner got me on Trazonadale (sp?) anti depressant that also makes you sleepy. I could get 30-40 mins (still waking up in the middle of the night) but also gained like 7-8 lbs. Last night I took myself off and I was wide awake.
I need sleep. I've tried melatonin, passion flower, GABA, etc. NONE of it worked not even Benedryl(it used to knock me out cold before I contracted lyme).
Thank you in advance

k07
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Date Joined Sep 2015
Total Posts : 2537
   Posted 2/9/2018 2:17 PM (GMT -6)   
Magnolia Bark helps me some. I take Gaia Sleep Thru (2 before bed and sometimes take another if wake up and can’t fall back to sleep). I may try Econugenics Honopure (more concentrated magnolia bark).

Modified citrus pectin also helps me to some degree.

Xanax did work for me but after a few weeks becomes ineffective. I was given a script for trazadone but decided not to go that route.

Hoagie
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Date Joined Jul 2017
Total Posts : 793
   Posted 2/9/2018 2:28 PM (GMT -6)   
I went through a phase where I had serious sleep issues. Mine are mostly due to inflammation surrounding a lesion in my midbrain. I tried all sorts of sleep aids. But, they either didn't work or would put me to sleep for only a short time.

After much studying on midbrain function, I came to the conclusion that my brain was having difficulty producing serotonin. I found that 5-HTP aids in this production. And L-Theanine works in the brain to block anxiety and stress. I take 200 mg of L-Theanine and 400 mg of 5-HTP anywhere from an hour to 30 minutes before I plan to go to sleep. It has worked like a charm.

They don't make me feel drowsy or anything. I just feel more calm and relaxed. I have been sleeping throughout the night very well. And I have also noticed my overall mood has been better.

Worked for me, but I have a brain lesion affecting me. Hopefully it can help others on here.

Post Edited (Hoagie) : 2/9/2018 12:38:51 PM (GMT-7)


Lapis_29
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Date Joined Sep 2017
Total Posts : 882
   Posted 2/9/2018 3:58 PM (GMT -6)   
yeah wish i knew, i sleep well sometimes then i have periods where I sleep awfully.

dont know why. not much helps. I was on ambien for a while and the def worked, may try it again dont know

The Dude Abides
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Date Joined May 2017
Total Posts : 1156
   Posted 2/9/2018 4:32 PM (GMT -6)   
While not a sleep medication, Low-Dose Naltrexone helps me sleep through the night more than when I don't take it. Generally, I take 3 mg at bedtime.

I started with 0.5 mg each night and increased by 0.5 mg each week. Originally, I tried to reach the maximum prescribed dose of 4.5 mg per night, but, once I got to 3.5 mg, it seemed to have a counterproductive effect. So, I backed-down to 3 mg.

After a while, my sleep started getting restless again, so I added one capsule of the supplement Deep Sleep at bedtime, along with the Naltrexone.

www.herbsetc.com/deep-sleep-softgels-60-ct

My sleep is certainly not perfect. It's been many years, since I slept really well -- and, even longer, since I awoke refreshed. But, until I find something better, this is the best I've been able to manage. My LLPA suggested several pharmaceuticals to help with sleep, but, for better or worse, I've stubbornly declined.

Good Luck!

Rikky1
Veteran Member


Date Joined Jun 2015
Total Posts : 2922
   Posted 2/9/2018 4:50 PM (GMT -6)   
wife has tried everything and the only thing that works is trazadone it puts her out and keeps her sleeping but not long enough (maybe 6 hours tops). she'd like to sleep a few hours longer but nothing has helped.

her LLMD said the sleep issues are the last things to get healed. oy.

OptimisTick
Regular Member


Date Joined Jan 2016
Total Posts : 103
   Posted 2/10/2018 1:06 AM (GMT -6)   
Before I found out I had Lyme, I tried Xanax, clonazepam, etc and they didn't work (plus they were benzos, so I dropped 'em like a hot potato.) Then I tried all the natural stuff, none of it worked either. Interesting how The Dude's LDN helps him sleep, where as it makes my insomnia worse.

I caved like you did. I take Ambien now. It's been a God send, but I don't take it every night to avoid increasing my dose. Been on the same .5 mg for close to two years. Other than antibiotics and LDN for my Lyme, this is the only other pharmaceutical I take, and I'm ok with it. I can finally sleep smile

Edit to add: I forgot, I take gabapentin too blush
Bit in the 80's with bullseye rash
Diagnosed Nov 2015
IGeneX:
- IgM (IND): **31 +, **39 IND, **41+++
- IgG (Neg): **31 IND, **39 IND, **41+, 58+
- CD57 = 31

Post Edited (OptimisTick) : 2/9/2018 11:10:11 PM (GMT-7)


Eiren
Regular Member


Date Joined Aug 2017
Total Posts : 58
   Posted 2/10/2018 3:55 AM (GMT -6)   
lymehater said...
After much hesitation about using prescription sleep aids, I caved and a dr prescribed Xanax. It didn't work that great, it was better than no sleep. Then a Nurse Practioner got me on Trazonadale (sp?) anti depressant that also makes you sleepy. I could get 30-40 mins (still waking up in the middle of the night) but also gained like 7-8 lbs. Last night I took myself off and I was wide awake.
I need sleep. I've tried melatonin, passion flower, GABA, etc. NONE of it worked not even Benedryl(it used to knock me out cold before I contracted lyme).
Thank you in advance


Maybe try amitriptyline. It's like trazodone as it's an old anti-depressant, but you may have better luck with it.

I've been on 25mg for a year and no weight gain or other issues. Going up to 50mg gave me a horribly dry mouth. It also helps relieve overall pain a bit, and seems to have reduced my PMS-headaches. So I'm a big fan of it.

Village Crazy Lady
Regular Member


Date Joined Feb 2017
Total Posts : 379
   Posted 2/10/2018 4:18 PM (GMT -6)   
The combo that has worked very well for me is the LLMD plan

8 pm 1 Neuro PS
9 pm Gabapentin I have been as high as 2700 mg but weaned down when I thought I no longer needed it (and I read it causes weight gain, and I have bloomed quite a bit lol. Sleep became poor again and I’m back up to 1800 mg, sleep being way more important to me than be thinner now.
10 pm 1 - 5 mg melatonin, 2 Benadryl and 15 mg Restoril.

I sleep great. Wake refreshed.

I hope you are able to find the right combo for you. Sleep really makes such a difference in how well the treatment and healing is tolerated.

VCL
~~~Your Life is an Occasion, Rise to It ~~~

Lyme,Bart,Molds,Candida,Cpn,Myco,Ebv,Cmv,MTHFR,Lead.
Symptoms for years and years, Diag 6/2016, LLMD 10/2016
Treating with Abx and company

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 5081
   Posted 2/10/2018 4:49 PM (GMT -6)   
lymehater - I tried many different things and had to rotate as my body got used to them, or maybe my chemistry changed.

I tried a couple mentioned Rx- in my case non RX worked better. Were all different.

5htp worked for a while, 200mg extended release. I was kind of drifty light dreamy sleep, not deep, but better than none.

Lithium 5mg the mineral, not the drug. It calms brain activity.

HOLY BASIL if you have high adrenals and are more awake at night than the day - does wonders.

Ibuprophen PM has a different form of Benadryl in it, the citrate version which works better. I never used Tylonal PM as it wrecks your liver.

ChickenArise
Veteran Member


Date Joined Nov 2015
Total Posts : 1530
   Posted 2/11/2018 6:20 PM (GMT -6)   
Ambien (Zolpidem) is what I use. Its a benzodiazepene like Xanax but I find it less addictive than Xanax. Long term use of Xanax may promote anxiety and panic attacks. I found out the hard way. It must be weaned off of and I am still trying a year later.

Ambien works well but I need the 10mg dose. I would get the 10mg prescribed and try half to see if it works. I wake without the grogginess and feeling refreshed but I have heard it said that deep REM is not achieved when on this drug.

The key to falling asleep on it is to lie down within 20 minutes of taking it. Dont wait to feel tired as that may not happen.

It produces a very mild hypnotic effect which triggers sleep as long as your eyes are closed and you are comfortable. I take it with Magnesium which helps me relax.

If I feel I can fall aleep without it I take advantage of this to keep from relying on it for sleep.

Use a blue light filter on your phones (twilight) and computers (flux) and turn off the lights a half hour before bed.

I have used trazadone, valium, and OTC sleep meds but wake feeling groggy. A benadryl or two will work when all else fails but the same is true.

If you are prone to sleepwalking then this drug may not be for you.

2014 Mold Sick,2015 Clinical Lyme and co.,2016 Morgellons,2017 Remission
YT: ClintFromNYtoVA2
Twitter: @ClintFromNYtoVA
Blog: www.fascinatingtimetobealive.blogspot.com/
" The path to disappointment is paved with expectations "

dacarte3
Veteran Member


Date Joined Feb 2016
Total Posts : 1903
   Posted 2/11/2018 7:04 PM (GMT -6)   
I use Trazadone. For me it doesn't "put" me to sleep but it "keeps" me asleep, which was my particular issue. Not falling asleep but staying asleep.
Lyme (Igenex) - Positive IFA and WB bands 23, 31, 41
Ehrlichia (Igenex)
Mycoplasma (Labcorp) - Score: 595

ABX Treatment: 03/2016-04/2016; 7/2017-9/2017
Buhner Protocol for Borrelia, Babesia, Bartonella and Mycoplasma (treating everything to be on the safe side): May 2016 - Dec. 2016; 8/2017 - Present

Raleighgirlie
Regular Member


Date Joined May 2017
Total Posts : 140
   Posted 2/11/2018 8:36 PM (GMT -6)   
I had been taking Solgar magnesium citrate around 8 pm and that helped me sleep. Now I have been taking modified citrus pectin instead the last few days as I decided to take that around 8 pm and have noticed increased sleep. The last two nights I slept for 9 1/2 hours which is unusual for me as I usually get around 7-8 hours...

Rikky1
Veteran Member


Date Joined Jun 2015
Total Posts : 2922
   Posted 2/11/2018 8:51 PM (GMT -6)   
that's funny decarte because trazadone puts me wife to sleep but she can't stay asleep on it.

PDXtransplant
Regular Member


Date Joined Jun 2017
Total Posts : 237
   Posted 2/11/2018 8:52 PM (GMT -6)   
I use LDN and a cannabis tincture. Works very well.

OptimisTick
Regular Member


Date Joined Jan 2016
Total Posts : 103
   Posted 2/11/2018 10:10 PM (GMT -6)   
Somebody said...
Ambien (Zolpidem) is what I use. It's a benzodiazepene like Xanax but I find it less addictive than Xanax.


Just wanted to clear up that Ambien is not a benzo. It is sedative hypnotic. Z-drugs(like Ambien/zolpidem) are non-benzodiazepines. They act differently on the GABA-a receptor, but have similar effects as a benzo (helps you fall asleep, but doesn't take care of anxiety like Xanax.)
Bit in the 80's with bullseye rash
Diagnosed Nov 2015
IGeneX:
- IgM (IND): **31 +, **39 IND, **41+++
- IgG (Neg): **31 IND, **39 IND, **41+, 58+
- CD57 = 31

ChickenArise
Veteran Member


Date Joined Nov 2015
Total Posts : 1530
   Posted 2/12/2018 1:54 PM (GMT -6)   
Yes, that is correct. My bad.

OptimisTick said...
Somebody said...
Ambien (Zolpidem) is what I use. It's a benzodiazepene like Xanax but I find it less addictive than Xanax.


Just wanted to clear up that Ambien is not a benzo. It is sedative hypnotic. Z-drugs(like Ambien/zolpidem) are non-benzodiazepines. They act differently on the GABA-a receptor, but have similar effects as a benzo (helps you fall asleep, but doesn't take care of anxiety like Xanax.)


2014 Mold Sick,2015 Clinical Lyme and co.,2016 Morgellons,2017 Remission
YT: ClintFromNYtoVA2
Twitter: @ClintFromNYtoVA
Blog: www.fascinatingtimetobealive.blogspot.com/
" The path to disappointment is paved with expectations "
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