i've not heard of many folks strictly do buhners bartonella protocol and beat it. people seem to either do it at some point before/after/during abx or some other modality.
when you feel like crap all the time most will throw the kitchen sink at things to feel better.
goshawk and Rikky,
Thank you both for the responses.
Yeah, Rikky, I think you're right. If I remember right, even Buhner's not satisfied with the bartonella protocol. My dilemma is that I really don't think I can do antibiotics for a couple of reasons. I'm allergic to quinolones and have a family history of sulfa drug reactions, although I don't know that I ever took a sulfa drug myself. I saw what bactrim did to my mother and no way am I doing that.
Now, I'm having bad problems with even short term abx. A year ago I took minocycline for 7 days. My symptoms increased while on it and then I ended up with horrible debilitating inflammation in my joints and tissues for two months after that. I don't feel like I ever fully recovered from that.
Then in December I took Augmentin for 7 days for a sinus infection. For a couple weeks before that, my joint stiffness and foot pain had almost disappeared. I did have a flare just before I started the Augmentin, so I can't fully blame the Augmentin for what happened after. I'm not even sure what happened. All I know is after I finished the Augmentin, the joint and tendon stiffness, foot pain, muscle stiffness and weakness, exercise intolerance, limited endurance, difficulty walking, and tissue pain all came roaring back much like after the minocycline. I also had a really bad flare of what I assumed was bartonella symptoms, including all I just mentioned plus lots of skin involvement - bumps on my abdomen and back, irritation and brighter color on the Bart streaks on my abdomen, swaths of pink areas on my skin, and badly inflamed intestines. Then I started another period, so hormones were in the mix too. Right after that, I got shingles again after drinking bone broth for a few days.
When the bad flare started, I backed off by a drop or two of the killer herbs, and that helped reduce the inflammation some. I also started marshmallow and slippery elm and those are helping with the intestinal inflammation.
I feel like herbs are the only choice I have and I can barely tolerate those. I suspect I'm dealing with more and more infections. I know my mycoplasma IGG titers nearly doubled from a year ago. Chlamydia p. is still IGG and IGM positive. I'm sure I must have candida and probably parasites. I'm taking a broad range of herbs and supplements that hit many things, but I feel like I'm losing ground all the time.
I don't know what else to do except keep going. I don't want to quit, but good heavens, I want some kind of sign that what I'm doing is working or eventually will reduce some of this crap. I'm so tired of being in constant pain. I should be grateful. Just a couple of weeks ago, I was thinking I'd rather have body pain over head symptoms any day. Well I got my wish!!! My head has been pretty good except for a couple brief bouts of anger, but my body has been taking the worst beating I've had in a long time. I hurt all over except my brain. It ain't fun.
Sorry for the whining. Thanks for listening.