Dillon's Mom said...
I really just want to take a moment to say how wonderful this community is. You have helped me so much. It was Girlie who told me, a year ago, that I would come through and gave me hope, and helped me find my LLMD. You know the saying when you get lemons make lemonade? Well, you all are the lemonade of Lyme (the good thing)
So, my treatment has been tailored to my pre-existing allergies and sensitivities to many antibiotic groups. I take Zithro, Tindamax and Cefdiner. I detox max level 2x daily. Original Lyme symptoms were awful - all neuro, bad brain fog, brain pressure, joints, crushing chest pain & fatigue, random shooting pain everywhere, neck so stiff I couldnt hold my head straight, you name it. Feb-Oct 2017 on meds, by Oct all essentially resolved with residual minor fatigue and occasional head/brain pressure. So LLMD started me pulsing in October. OFF meds 10/21-11/21 for first time. Went back ON meds 11/21. So yes Rikky 1, you are right, new left hand degeneration thing started after I started pulsing late Oct, but also after I was back ON meds for 8 weeks. That's what my LLMD found puzzling, that it started after I went back on for 2 months. I should also say just before the left hand thing I had return of crushing chest pain for 2 weeks that was an original symptom. I had never been treated for any co-infection, which is why LLMD is wondering if one of those is causing Left hand thing.
I consider myself an intelligent, calm person but my anxiety is off the charts now with scary new symptom that sounds like other scary things. Girlie's right, brand new neuro symptom so scary.
I’m so happy to hear that we have helped you here. That is THE best compliment I could get! We really are here to provide support - and I, too was helped when I came here a few years ago - scared and lost.
So try not to worry (I know - easier said than done) too much about
this new symptom. You have a plan in place to discuss with your LLMD.
Will you let us know how that goes?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi