Is anemia related to lyme/bart?

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greatguy
Regular Member


Date Joined Dec 2017
Total Posts : 104
   Posted 2/11/2018 5:01 PM (GMT -6)   
Hey everyone, my blood work, as with many who are afflicted with lyme and co's, is for the most part normal. In fact, mine is really within the normal ranges all the time, even if it is on the lower side.

But i'm pale as a dead body. Seriously, i'm very pale, however i didn't think i am, it was said to me by two conventional doctors who don't know about chronic lyme, that i look very pale, which is indicative of low iron or hemoglobin. However, my hemoglobin is within the normal range, although on the lower side of the spectrum.

So i don't have anemia by blood work, but i have by clinical symptoms. Did any of you have this kind of presentation? I never EVER tested positive for Lyme, however i have 1 specific lyme antibody, 23 and the unspecific 41. And i had a microscopy done in europe, where they found corkscrew shaped extracellular bacteria, resembling spirochetes, although they didn't specify what spirochetal bacteria, due to lack of the unspecific method of testing.

I also have some very vague stretch marks, unlike the ones seen on the pictures, and it is more like 1 vague stretch mark, rather than a bunch of them.

I've been staying on treatment with abx, but not long ago stopped because of some herxes, and curcumin didn't seem to stop the inflammation, maybe because the curcumin isn't high quality, dunno, i decided to stop, because i was afraid for my well being. I hope to resume the treatment, but for now, i'm very interested to see the relation between lyme and anemia, which is your body not getting enough oxygen. This is especially important, since i have some form of POTS, when i stand from laying, i have dizziness and my vision becomes very dark, like i'm about to faint, but never actually fainted. I don't know if this is POTS, it is just that people say these resemble POTS, i was never diagnosed with it.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33872
   Posted 2/11/2018 5:51 PM (GMT -6)   
greatguy - I also have in range hemoglobin...but I have low ferritin.

I think the ferritin is the 'storage'..so..eventually if the ferritin continues to drop, it will affect the hemoglobin.

Have you had your ferritin levels checked?

I've also been told that iron tests should also be done. In fact, I think that's what Dr. J's clinic has set up for me to have tested...I haven't got the lab req in front of me to check
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

greatguy
Regular Member


Date Joined Dec 2017
Total Posts : 104
   Posted 2/11/2018 6:04 PM (GMT -6)   
Can i ask you Girlie, are you pale? Like yellow pale, when the normal should be pinky? I, for one, am very yellowish, not like hepatitis yellow, but unusual for my young age and i never thought this was not normal, but even regular doctors admit it isn't.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33872
   Posted 2/11/2018 6:15 PM (GMT -6)   
greatguy said...
Can i ask you Girlie, are you pale? Like yellow pale, when the normal should be pinky? I, for one, am very yellowish, not like hepatitis yellow, but unusual for my young age and i never thought this was not normal, but even regular doctors admit it isn't.


Ever since I've had lyme - I've been paler than pre-lyme. Not yellow - just pale. I usually have rosy cheeks.


I have to say that the past 6 months or so...my color seems to be better.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

greatguy
Regular Member


Date Joined Dec 2017
Total Posts : 104
   Posted 2/11/2018 6:17 PM (GMT -6)   
And may i ask, you never did IV? Purely oral for all those 3 years?

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33872
   Posted 2/11/2018 6:39 PM (GMT -6)   
greatguy said...
And may i ask, you never did IV? Purely oral for all those 3 years?


No IV - first LLND appt was end of August, 2014.

Been treating ever since with a few breaks.
So even including the breaks over three years now.
Down to about 7 or 8 stubborn symptoms that are not budging.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
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