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Spanish
Regular Member


Date Joined Sep 2017
Total Posts : 137
   Posted 2/12/2018 12:44 PM (GMT -6)   
I am looking for some advice, Im currently 4 months into treatment (i think) with minocycline, the first 5 weeks were pure hell and then many of my symptoms lifted. My memory has improved, I can think again. heart palpitations stopped completely and my dizzyness decreased along with the joint pain.

While this improvement was massive for me and allowed me to get back to working a little. I have now gone the next 2 or 3 months with no significant change.

Of course I have better days and worse days but every day I still have some dizzyness and off balance feeling, my joints still ache in the morning and I still get muscle twitches, but the worst symptom is a kind of pressure in my head and behind my eyes that gets worse when I try to concentrate, its also worse when im tired. Im constantly feeling spaced out its difficult to explain.

I want to step up my treatment and have added japanese knotweed building up slowly but have not noticed anything yet.

What would you add next? What ABX would you add? and what herbs? I have only tested positive for lyme but I think coinfections may be at play.

Post Edited (Spanish) : 2/12/2018 12:41:44 PM (GMT-7)


Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32609
   Posted 2/12/2018 12:53 PM (GMT -6)   
It’s not a good idea to just be on one antibiotic - so it’s a good plan that you’re adding a second one.

What you add depends on what you want to treat next - Babesia or Bartonella are two co’s you should consider.

Also a cyst buster and biofilm buster.

You can pulse Tinidazole or Flagyl twice a week or even just two days every few weeks.
I take lactoferrin with xylitol for biofilms - every day for one week per month (for several months)

If you want to treat Babesia pharmaceutically - Mepron or Malarone are good choices.
For Bart (Pharma) Rifampin or Rifabutin are often used.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Spanish
Regular Member


Date Joined Sep 2017
Total Posts : 137
   Posted 2/12/2018 1:39 PM (GMT -6)   
Thanks for the reply How exactly do you pulse a med? Ive heard the term used but dont really understand

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32609
   Posted 2/12/2018 1:46 PM (GMT -6)   
Spanish said...
Thanks for the reply How exactly do you pulse a med? Ive heard the term used but dont really understand


You don’t take it everyday- so you could take it M/W/F for two weeks on and then one week off

Do you have a LLMD to discuss this with.. or r you self treating?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Spanish
Regular Member


Date Joined Sep 2017
Total Posts : 137
   Posted 2/13/2018 7:27 AM (GMT -6)   
Ahh ok I have a llmd and im seeing him saturday, just wanted to get a few ideas in advance. thanks
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