i m mew here i need help with Lyme test that i did for my 4 year old

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sasesase
New Member


Date Joined Feb 2018
Total Posts : 2
   Posted 2/13/2018 2:08 AM (GMT -6)   
I need help for my 4 year old so we did the W blot and Elisa test it was negative both but on the W Blot there wete 3 bends positive igG p 66.p 41 and p 39 . the dr said accordingto CDc its not positive she is currently on antibiotics for 10 days but her pediatrician said she extendit to 21 days upon my request .Since CdC says its negative since she has p 39 positive can she has lyme .should i do additional testing like the Igenx like my friend suggested who has chronic Lyme .I m confused worried i wanna do the best oo and she has no symptoms but recurrent streps

Post Edited (sasesase) : 2/13/2018 12:11:06 AM (GMT-7)


Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33957
   Posted 2/13/2018 2:42 AM (GMT -6)   
Hi sasease - welcome to our community.

Band 39 is specific to lyme.

You don't really need to do another test...a LLMD (lyme literate Dr.) should be able to clinically diagnose her a if she has lyme...and use that test for a back-up.
the LLMD may do additional testing though.


If you do decide to do Igenex testing, the Lyme WB IgM and IgG costs $250.

Does your daughter have any other issues (tic disorder, obsessive-compulsive behavior, irritability, anxiety....) The reason I ask is strep throat can cause PANS/PANDAS and there's also a connection to Lyme disease.

I think it would be wise to find a Pediatric Lyme Literate Dr. who can do an evaluation.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

bluelyme
Veteran Member


Date Joined Nov 2015
Total Posts : 4915
   Posted 2/13/2018 5:33 AM (GMT -6)   
See the work of kid llmd old dr j ...from uos ...and consider rife and other treatment options

sasesase
New Member


Date Joined Feb 2018
Total Posts : 2
   Posted 2/13/2018 9:29 AM (GMT -6)   
she doesnt have Panda. no symptoms .no ocd. no anxiety very friendly she is good in school and doesnt complain of pain .We did the test cause in November she had a bite on her on her weist i took her to dr he said it was not a tick bite it look like a spider bite but i requeated a test i did the test after 2 months.Where can i find Lyme dr i live in New jersey and i m new to this , her pediatriciansays no Lyme can it be false positive W Blot Thank you

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33957
   Posted 2/13/2018 12:38 PM (GMT -6)   
sasesase said...
she doesnt have Panda. no symptoms .no ocd. no anxiety very friendly she is good in school and doesnt complain of pain .We did the test cause in November she had a bite on her on her weist i took her to dr he said it was not a tick bite it look like a spider bite but i requeated a test i did the test after 2 months.Where can i find Lyme dr i live in New jersey and i m new to this , her pediatriciansays no Lyme can it be false positive W Blot Thank you


I think it would still be a good idea to take her to a Pediatric LL Dr.

Dr. J. clinic in Washington DC has a Pediatric LL Dr. on staff now.

The other Dr. J that bluelyme referred to - I don't know if he's taking anymore patients (Connecticut)...he's been trying to retire for several years now.

Send me an email and I'll give you the details about the Washington clinic.

There aren't false positives...she has been exposed...but sometimes there are only a few symptoms...or even no symptoms...but can come out later.
This is why a knowledgeable, experienced LL Dr. is recommended (in my opinion)
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
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