Positive Lyme Test - Seeking LLMD in Texas

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anon4545
New Member


Date Joined Jan 2018
Total Posts : 5
   Posted 2/13/2018 1:26 PM (GMT -6)   
I have been sick for 2.5 months now and forced my primary doc to help with a lyme test. I got a positive IGENEX test for lyme on immunoblot IGG this week. Below bands were positive/intermediate:

23
30
39
41
45
58

So at least have confirmation of what is ailing me. I'm left with more questions than answers at this point and am struggling to find a LLMD in my area (Texas). My primary care doc has me on a 3 week round of cefuroxime which I view as a shot in the dark. I have also just done a blood test for babesia (labcorp) but no results yet (I'm aware this test is also a shot in the dark). The following are my core symptoms: aches/chills, anxiety/depression, mild heart rate increase and air hunger. Have also had a few mini panic attacks, mild nausea, and an increase in deja vu.

I have a million questions, but in the meantime of me finding a LLMD, I wanted to see what approach might make sense given my situation. Am I right to think babesia could be likely here vs bartonella given my symptoms? Do my bands tell anything specific? My understanding is cefuroxime doesn't work for babesia so would need to switch meds to attack that.

Any advice is much appreciated.

Thanks

Post Edited (anon4545) : 2/13/2018 2:26:55 PM (GMT-7)


Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32667
   Posted 2/13/2018 1:56 PM (GMT -6)   
Just a quick note - as I’m passenger in a car right now.

The bands don’t tell you anything about the coinfections - but suspect you have Babesia and possibly Bart as well.
I think the déjà vu is on the Babs symptom list. Air hunger is as well.

For recommendations from members - edit your first post and add to your subject: seeking LLMD in Texas.

You can also send me an email and I will see what I have listed for Texas and send you some options.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Post Edited (Girlie) : 2/13/2018 4:37:23 PM (GMT-7)


Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32667
   Posted 2/13/2018 1:57 PM (GMT -6)   
Btw - is that band 30 a typo - and shld be 31?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

anon4545
New Member


Date Joined Jan 2018
Total Posts : 5
   Posted 2/13/2018 3:27 PM (GMT -6)   
Girlie said...
Just a quick note - as I’m passenger in a car right guy now.

The bands don’t tell you anything about the coinfections - but suspect you have Babesia and possibly Bart as well.
I think the déjà vu is on the Babs symptom list. Air hunger is as well.

For recommendations from members - edit your first post and add to your subject: seeking LLMD in Texas.

You can also send me an email and I will see what I have listed for Texas and send you some options.


Thanks for response. Will do

anon4545
New Member


Date Joined Jan 2018
Total Posts : 5
   Posted 2/13/2018 3:30 PM (GMT -6)   
Girlie said...
Btw - is that band 30 a typo - and shld be 31?


No typo - 30

goshawk
Veteran Member


Date Joined Sep 2016
Total Posts : 2122
   Posted 2/13/2018 5:03 PM (GMT -6)   
Hi and welcome,
Sorry you have Lyme. In Texas you can also try to seek out llmd's and recommendations on Facebook at : Texas Lyme Support Group


Hope this helps Take care, Jo

cr3ativegirl
Veteran Member


Date Joined Oct 2015
Total Posts : 723
   Posted 2/13/2018 5:04 PM (GMT -6)   
You can email me if you are still looking
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