Lyme clinics-envita vs sponagule

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Sarahjane09
Regular Member


Date Joined Oct 2017
Total Posts : 31
   Posted 2/14/2018 6:46 AM (GMT -6)   
Hi everyone, I was hoping to get some up to date info about some of the Lyme clinics. I’ve been considering envita however am concerned about some of the negative reviews esp bc of the cost. I know there is no perfect place to go but I’d like to give myself the best chance possible to heal. I am 26 and have been struggling with Lyme for 7+years. I have been diagnosed and going through treatment for 2 and half years with some success but now new issues coming up or getting worse. I have no idea what to do. I am not of the most severe end but I’m bately hanging onto my job and that’s basically all I have energy for. It very difficult to have any kind of life. And I’m just exhausted by the treatments. I have done an herbal protocol for about a year and then antibiotics for about year as well. My current doctor seems at a loss of what to do. I’ve had a decrease in pain for sure since treatment. Many sypomts have improved but I’ve have worsening of my dizzy off balance feeling and brain fog and fatigue have been a lot worse lately causing me to take time of work. I’m getting FMLA set up again. And I have short term disability I’d like to use if I decide to go to a clinic if I’m able to use it. I just don’t know what to do. I have a very bad herx reactiona and was allergic to bactrim the last drug I tried. I also have been having a sharp decrease and continual drop in my wbc causing my dr to pull me off riphamin which is the only antibiotic that’s helped. But I’ve been feeling so bad anyway it doesn’t matter. I’ve felt a bit better a week off of bactrim but now she wants me on malorone for babesiosis. We were mainly focusing on treating bartonella so I do wonder if the babesia made a come back. My perivious Dr had focused more on that infection. I’m so lost about what to do. My family hasn’t always been supportive but I recently asked my dad to contact and old coworker he knew with Lyme years ago when I was tested but not diagnosed due to negative test. He found him and he’s not doing well and was forced to retire and is using acupuncture and waiting for his slot to open up at envita for treatment. That’s where we got the idea and my dad said he would help me with expenses bc I can’t afford it on my own but if it worked it would certainly be worth it. My sister is also on board for a clinic bc she has a difficult time living with me bc I have so many bad days. She really wants me to find a solution as well bc she knows what a nightmare it’s been and it’s been like losing a sister for her. I just want to be well. My dad is also looking into other places and I’m trying to do as much research as I can before making a decision.

Thanks guys for reading and any info about any of the Lyme clinics ot other places people have had siucess would be great. I do have mold sensitivity and probable Lyme bartonella and babesia

Thanks so much guys hoping you all are having a good or ok day today!

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 1672
   Posted 2/14/2018 7:57 AM (GMT -6)   
Sarahjane,

I have no knowledge of the clinics but wanted to say Hi and I'm sorry for what you're going through.

While reading your post, mold came to mind when I saw the list of worsening symptoms. Then I saw you listed mold sensitivity at the end of your post. Were you tested for mycotoxins via Realtime labs and treated using the Shoemaker protocol? Have you done an ERMI test for mold in your home and workplace. If not, you may want to consider being evaluated for CIRS from mold/Lyme/biotoxins by a doctor certified in the Shoemaker protocol. If that is what is holding you back, it's a lot cheaper to treat that, which could clear the way for successful Lyme and co treatment as well as relieve those symptoms, than to go to a clinic. Not all Lyme doctors are up-to-date on mold and CIRS.

Others will come along with information on the clinics.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32557
   Posted 2/14/2018 3:10 PM (GMT -6)   
I haven't been to any clinics for treatment...but wanted comment that some members have gone to the Hansa Centre and have raved about it.

Not sure if it's an option for you - maybe check it out along with the others you're considering.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Sarahjane09
Regular Member


Date Joined Oct 2017
Total Posts : 31
   Posted 2/14/2018 8:23 PM (GMT -6)   
Thanks walkingbyfaith I don’t think I was tested through that lab. I was actaully living with my sister in a basement apartment and did testing to see if mold was present in there bc my c4 levels were so high. I knew nothing about mold at the time. I took activated charcoal for a long time to help clear the mold out and later cholystyramine. I’m in a fairly new apartment now so mold shouldn’t be an issue. And at one point I was feeling much better so I don’t think there’s any mold here. My workplace is fairly new as well but I can’t really make any changes as far as that goes. I was treatment by my previous doctor for a specific type of mold that came up in testing not sure what it was. Thanks I will look into his protocol. I’ve heard of it but can’t remember much about it.

Thanks girle I will look into that one as well. I’d seen it come up in older posts. By haven’t looked much into it.
Thanks guys! Hope some one has some experience with some of the clinics

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32557
   Posted 2/14/2018 8:46 PM (GMT -6)   
Here’s a thread on Hansa Centre

/www.healingwell.com/community/default.aspx?f=30&m=3740383
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Sarahjane09
Regular Member


Date Joined Oct 2017
Total Posts : 31
   Posted 2/15/2018 7:03 PM (GMT -6)   
Thanks girlie! Has anyone had any experience with Infusio in Beverly Hills? It seems like a very interesting approach using cell therapy but obviously I want to know if it has a good chance of actually working. Let me know if anyone has experience good or bad with it. Thanks!

Sarahjane09
Regular Member


Date Joined Oct 2017
Total Posts : 31
   Posted 2/18/2018 6:57 PM (GMT -6)   
Any other advice or experiences with treatment centers?
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