Evaluating when to stop babesia treatment

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

sierraDon
Regular Member


Date Joined Aug 2016
Total Posts : 184
   Posted 2/15/2018 7:46 AM (GMT -6)   
Hello all, i just wanted to get some feedback on babesia treatment.

I was diagnosed in January 2018 with the three B's, lyme, babesia, bartonella. I have started treatment for babesia with Biaxin, Ceftin, Mepron, Plaquenil. I am now 4 weeks into it, no real herxing, just some days a little more tired than usual.

My babesia symptoms are not pronounced or bad, I dont have the typical symptoms (drenching sweats, air hunger, etc.) However my babesia test was positive. the only symptoms i can relate to babesia maybe cold hands/feet, low body temp, itchy skin, fatigue. some of these symptoms overlap with lyme and bartonella.

so, how do people typically know when treatment has been effective - should i expect one or two (or more) of my symptoms to be resolved? given some of these symptoms overlap with other coinfections, how do you really know? i have read that the general thought has been 4 months minimum of treatment, to be in alignment with the red blood cell life cycle.. however my symptoms are not bad. will i lose ground if I stop treating for 3, 5, or 7 days to see if symptoms flare back, then restart treatment again?

thanks

sierraDon
Regular Member


Date Joined Aug 2016
Total Posts : 184
   Posted 2/15/2018 7:47 AM (GMT -6)   
Just to note, I am pretty certain that I was infected 21 months prior to starting treatment (so less than 2 years.)

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 1682
   Posted 2/15/2018 8:22 AM (GMT -6)   
I don't know much about abx, but I would stick with the treatment for as long as your doctor recommends even though you don't have much symptoms. If your test is positive, you want to get rid of it. Treatment for these infections takes time. At 4 weeks, you're very early into treatment.

tickbite666
Veteran Member


Date Joined Mar 2014
Total Posts : 1604
   Posted 2/15/2018 8:57 AM (GMT -6)   
Take your break after 120 days. Until then just blast away. My worse time fighting babs was between weeks 4 and 9 of my first battle. I then did another 12 months for my second fight that started 6 months after ending the first. Most of the second round was with double Mepron dose, a few breaks switching to Coartem, and also taking CSA blend, plus all of my Lyme ABX including IV.

Rikky1
Veteran Member


Date Joined Jun 2015
Total Posts : 2860
   Posted 2/15/2018 10:30 AM (GMT -6)   
If you are positive you still have it and need to get rid of it. Not just symptom free but dead and buried else it'll come up and bite you later on.

Dr. J feels your liver and spleen and if they aren't swollen you've 'turned the corner'. Babs hangs out there and uses them as a staging area to infect red blood cells throughout your body. Don't know any other LLMD that does this but its been his tried and true approach for a long while and he's treated thousands of folks with this disease.

FYI took me 8 straight months of hitting babs hard to get my liver/spleen to go back to normal. Note I have very little to no babesia symptoms during this time so using my symptoms only would've left babesia hanging around and blocking progress against other pathogens which tend to work synergistically with babesia to stay afloat in your body.

Others say you have to outlast the life cycle of a red blood cell which is 120 days. There are problems with only using this approach which is too lengthy to write about here.

Still others say treat 3 months past symptoms.

sierraDon
Regular Member


Date Joined Aug 2016
Total Posts : 184
   Posted 2/15/2018 11:20 AM (GMT -6)   
OK thanks a lot. are the liver and spleen always swollen? or is that in more chronic long term cases.

i had a xray not too long ago, there were no indications of anything abnormal.
New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, June 25, 2018 4:25 AM (GMT -6)
There are a total of 2,974,912 posts in 326,222 threads.
View Active Threads


Who's Online
This forum has 161315 registered members. Please welcome our newest member, Noluck.
301 Guest(s), 2 Registered Member(s) are currently online.  Details
WorriedUCer, Patrick M