Posted 2/15/2018 8:57 PM (GMT -6)
I was feeling better while on abx until I added Mepron, which can make me feel pretty crummy. Threw off my pattern and now it's all mixed up.
"This too shall pass. It might pass like a kidney stone, but it will pass."
Posted 2/16/2018 7:05 AM (GMT -6)
same here, I have no distinct patterns through my two weeks ON and three weeks OFF schedule. Only issue I have observed is 3 or 4 days into my ON ABX protocol I have some minor sx flare or herx.
Posted 2/16/2018 11:59 AM (GMT -6)
Sometimes I wonder, for some situations, if the abx is forcing them in hiding, but when stopping, they come out and wreck havoc...

My kids, for the most part, have no pattern in regards to their various treatments over the years - with a few strong exceptions.
Kid#1: Extremely sick for several years, very difficult to treat, but doing great now!
Kid#2: Still sick now despite being treated for years but doing better (not well yet).
Kid#3: Generally good but relapsing off/on.
Me: Adv Labs positive 2016 (suspected I passed to my kids)-not as sick as others, mostly battling fatigue and yeast issues (heart/kidney issues resolved)
Treating with herbals now.
Posted 2/20/2018 10:14 AM (GMT -6)
I'm about finished with my Dr J protocol. I'm about at the 13 month mark and while I feel a little better it's not much. My big issue is brain fog, if I could get rid of that I could handle any other symptoms.

My experience is actually the opposite of most of you. I usually feel horrible when I'm on them. a few hours after taking them I don't feel as bad but iv'e always hated being on them and always look forward to my off weeks. Not to say I feel tons better on my off weeks but I never looked forward to getting back on them.
I'm actually meeting with my dr in a few weeks to look at other things that may be wrong with me. We have started focusing on mold. I've been taking cholestyramine the last week or so. I think it may be working some? who knows it's hard to tell at this point.
Posted 2/20/2018 1:36 PM (GMT -6)
Joe - are you seeing Dr. J in DC?

You mentioned the mold focus...and that doesn't sound like that Dr. J.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
Posted 2/20/2018 1:47 PM (GMT -6)
No I'm not seeing Dr J. There is an LLMD that went to learn Dr J protocol and she follows it to a T. One of the NP there has really started focusing on mold so I'm going to revisit that.

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