my hunger hormone is stuck ON

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BabsBunny
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Date Joined Mar 2017
Total Posts : 563
   Posted 2/17/2018 9:51 PM (GMT -6)   
For the last two weeks or so, I have been getting insatiably hungry after dinner. Only in the evening, only after dinner. A crazy, starving, anxiety-ridden HUNGER.

My problem is that my diet is so limited by sensitivities, Candida, and histamine/mast cells that I don't know how to stop it. My first suspicion is that I need more fat. It would make sense because I used to eat a lot, especially with mepron, but I've slowly become sensitive to every source. Peanut butter was the first to go. Almond butter now seems to be a problem as well. Coconut makes me itch. Avocados and most/all nuts are forbidden on a low-histamine diet. I've been drowning everything I eat in olive oil but its not helping.

Same with protein - nuts and anything but fresh meat is forbidden. I stopped the protein powder because peas are forbidden, and I was concerned about free glutamates, as Ive been having a lot of mental issues. But eating local, fresh or immediately frozen, meat and finding no-preservative wild-caught fish is *bleeping* expensive. My grocery bill has gotten ridiculous, as my diet as shrunk to almost nothing.

How do I get enough fat and protein on a low-histamine diet?!?!

I tried bulking up my food with psyllium husk and chia. Maybe I should try hemp protein? I read about chicory root, but I really really really really don't want to buy any more supplements. I have so many I spent so much money on then had to quit, bottles and bottles of unused pills that can't be returned or resold.

what if it's not dietary? my brain has been so off this month, I know there's all kinds of weird imbalances going on in there. shakehead
Lyme, Babesia, Bartonella. Symptoms began 5/2016, didn't start treatment until 9/2016. Slow but steady recovery.

*twitch twitch*

The Dude Abides
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Date Joined May 2017
Total Posts : 1157
   Posted 2/17/2018 11:47 PM (GMT -6)   
Coming from a Low-Carb/Primal/Paleo background (which, thankfully, I eventually ditched), I have some small sense of food restrictions and the troubles it can create.

Not only did my grocery bill balloon to around $1,000 USD per month, as a single person, it made me neurotic about food quality (aspiring to an unattainable level of "purity"), a disordered eater (not an eating disorder), and eating-out at restaurants was difficult - not only for me, but my guests and the poor waitstaff.

Now, when I see people eating "clean," I have a lot of empathy.

From what I understand, the protein requirements for humans is less than commonly believed. Generally speaking, if we eat a diet that is (1) varied, (2) calorie-sufficient, and (3) comprised of whole foods, we should get the macronutrients we need.

As for drowning all your foods in olive oil, that will certainly increase your calories, but that's probably not ideal for long-term health. If your body composition is anything other than lean, loading-up with extra fat is likely even more of a bad idea.

I agree with you about the high cost and inconvenience of boutique foods and supplements. I've greatly reduced both and it's helped save money and reduce stress. I think we do better, once we stop intellectually interfering with our biology.

- Do you have any food allergies?
- How were you able to diagnose Candida?
- What foods are you "allowed" to eat, besides meat, that you're also able to tolerate?
- Since limiting more and more foods, have you felt better or worse?
- I'm not familiar with histamine/mast cells, so forgive the dumb question, but how does this affect you?

BabsBunny
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Date Joined Mar 2017
Total Posts : 563
   Posted 2/18/2018 4:17 PM (GMT -6)   
Well, we need fat. Our brains are made of such. I also need fat for absorbing medications, and all my favorite options - nut butter, coconut oil, avocado, are off the table.

1) I do not have protein-induced allergies or anything that comes up in a blood test. My sensitivities are many and increasing. Most cause neurological symptoms. Peanuts make me depressed. Dairy casein and corn-derived products give me rage within hours. Soy will make me physically ill in 20 hours. Gluten bloats me. Squash makes me itchy. Coconut oil just recently started making me itchy too

2)Candida symptoms and positive antibodies on blood test.

3) I'm trying to balance a diet for low histamine, low inflammation, Candida, leaky gut, etc. Meat has to be fresh because of histamine. The longer it sits, the more histamine develops. I am not supposed to have nightshades because of histamine, though I haven't noticed a correlation in eating them and how I feel. I'm kind of testing that now. I can't go through all the vegetables that are and aren't allowed. The histamine lists conflict, and of course I'm trying to stay low in oxalates. Beans are high in histamine AND lectins. Most nuts and seeds are as well. Root veg and fruit high in sugar and carbs are out because of Candida. I do eat fruit considered lower in sugar, but not much. The big gut healer, Bone Broth, is out because it's super high in histamine. All the "histamine" foods I can add back in after I eliminate them and find out individually which ones bring back the itching and mood swings.

4) I feel a million times better off dairy, soy, and corn. The others are a matter of healing leaky gut and reducing histamine. I do feel better on the strictest diets - much less bloating, less itching, less brain fog. It's just the insatiable hunger that's creeped up lately that's driving me crazy. And that happened when I cut out nut butter and coconut oil - both make me itchy.

5) MCAS is not hives and anaphylaxis for me, but some itching, mood swings, brain fog, acid reflux, increasing food and chemical sensitivities.

All those things - MCAS, Candida, Leaky Gut, Lyme, antibiotics - end up causing the same types of symptoms and work in this awful loop that cause and exacerbate each other.

I eat local farm-raised chicken, eggs, occasionally beef, and frozen fish. The most common veg I eat are asparagus, celery, cabbage, green leaf lettuce, zucchini, onions, garlic, radish, occasional sweet potatoes, carrots, snap peas. For grains, rice, quinoa, millet. I was having oatmeal but I wanted to eliminate it because it comes up on all the "bad" lists, and see if I feel better without it. I try to add psyllium husk and chia to bulk things up.

I try to tell myself "moderation" and allow myself more "unapproved" things but when the deep maddening itch comes back in my heel and legs, and I feel depressed all the time, I just don't want to eat those things anymore.

Intuition
Regular Member


Date Joined May 2017
Total Posts : 55
   Posted 2/18/2018 11:19 PM (GMT -6)   
BabsBunny,

So sorry that you are having all of these issues. As far as cost goes, I've found that purchasing fresh meats (chicken and ground beef) and frozen wild seafood (gulf shrimp) in bulk helps me cut down significantly on my grocery bill. I'm not sure if you have wholesale clubs near you (BJ's / Costco) but it's worth getting a free daily or weekly pass and checking out the selection. I'll buy several pounds of fresh lean meat at a time, portion it out, and freeze it. Then I just throw a portion in the refrigerator the night before I plan to cook it and I don't notice a loss in taste or texture. It's probably not going to be the quality of something local, organic and farm-raised, but I found it to be a good cost-effective compromise.

For the hunger pangs, I'm not sure if you take supplements regularly, but I've found success with 5-HTP taken daily for reducing my appetite and boosting mood a bit. Hope this helps. Best of luck!

The Dude Abides
Veteran Member


Date Joined May 2017
Total Posts : 1157
   Posted 2/19/2018 1:33 AM (GMT -6)   
Hi, BabsBunny (perhaps my favorite screen name):

Of course, I agree with you that we need fat. But, we certainly don't need loads of it.

While you're obviously not doing so, there's a current fad of people gorging on fats, because they're "good" fats. In my original post, I was simply suggesting that whatever fat comes-along with the whole foods we're eating should probably be sufficient. Obviously, chicken, eggs, beef, and fish all have fat.

Someone put it to me this way: If a person eats a 2,000 calorie diet and wishes to keep their fat intake between 10% and 15% of calories, that's only 1.67 to 2.5 tablespoons of oil. Of course, that doesn't include any other items in the diet.

Anyway, whatever your dietary choices, I support your decisions. I've read many of your posts and it's obvious that you're an intelligent and informed person. So, please forgive me, if my tone and/or line of inquiry was off-putting or just plain annoying. smile

Thank you for taking the time to respond to my original questions. I'd hoped that perhaps I could offer some advice, based on the challenges you're facing. But, after reading your responses, it's clear you've already done a lot of research, self-experimentation, and invested a lot of time and money into looking for solutions.

Alas, I regret that I don't have anything useful to bring to the conversation. I'm sorry you're suffering so much and dealing with so many hurdles.

Have you considered consulting with Joseph Cohen over at SelfHacked.com?

Sincerely,
The Dude

Georgia Hunter
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Date Joined May 2012
Total Posts : 2132
   Posted 2/19/2018 6:45 AM (GMT -6)   
How many calories are you eating on a daily basis? How much do you weigh? How tall are you? All are important when determining what is going on and why you are hungry.

BabsBunny
Veteran Member


Date Joined Mar 2017
Total Posts : 563
   Posted 2/19/2018 9:26 AM (GMT -6)   
Georgia Hunter said...
How many calories are you eating on a daily basis? How much do you weigh? How tall are you? All are important when determining what is going on and why you are hungry.


I haven't counted calories in years. Just eat whole foods or processed snacks with simple ingredients. Meals generally include a meat, vegetables, some grain, and occassional piece of fruit, homemade GF bread, or rice cakes. Until recently I loved almond butter and nuts.
I'm 5'6" and just slightly overweight on the BMI (wretched thing), even though I've lost 30 pounds in the last 18 months and every time I scratch my back, my fingers slip in between my rib bones. I can see them, front and back. The weight is all in these American thighs.

The reason I suspect its fat, protein, or the low-histamine diet is because this came on quite suddenly along with a steep increase in neurological symptoms. The last Babs herx threw me into severe anxiety and depression, bradycardia, low body temp. At the same time I started a low-histamine diet, and in a few days noticed less acid reflux, and less itching. But getting itchy with coconut oil was a big blow. I didn't normally eat almond butter so much, but it was my last source of fat. I am tracking my diet with the Cara app, and it takes some time and adjusting to interpret but its pretty clear almonds, almond butter, and almond milk are all common on my worst days.

Now, that might be because when I feel bad, I freak out trying to remedy the situation - like increase my fat and protein intake to stop being hungry- or I'm too sick to cook so I have to go with my frozen leftovers and rely heavily on the pantry items - rice cake, almond butter, oatmeal. So whether almonds are the chicken or the egg, I don't know. Only an elimination diet can figure that out, and that's where I'm stuck now. Trying to maintain a healthy elimination diet without starving.

I do believe there's a hormonal element - if the anxiety, shaking, low HR, etc is a glutamate or ammonia overload, as seems to fit my symptoms, there's a chemical imbalance in my brain, and it would seem fitting that one of those chemicals is a hunger regulator. I've read that the babesia symptoms of air hunger and heart arrhythmia don't show up on the tests because its not a physical problem - it's a neurological/nervous system glitch that isn't communicating with your brain that there is sufficient oxygen, electricity, etc. That except in rare cases, it's just a sensation. So is my brain not getting the signal that I'm full and well-nourished? Or am I actually malnourished?

Until I'm able to see my ND, I don't know, but the hunger is driving me crazy. I was hoping there was support for this situation and other MCAS sufferers, but I can't find anything. But if I ever figure it out, I"ll be sure to get the info out there for the future!
Lyme, Babesia, Bartonella. Symptoms began 5/2016, didn't start treatment until 9/2016. Slow but steady recovery.

*twitch twitch*

BabsBunny
Veteran Member


Date Joined Mar 2017
Total Posts : 563
   Posted 2/19/2018 9:39 AM (GMT -6)   
The Dude Abides said...

Anyway, whatever your dietary choices, I support your decisions. I've read many of your posts and it's obvious that you're an intelligent and informed person. So, please forgive me, if my tone and/or line of inquiry was off-putting or just plain annoying. smile

Thank you for taking the time to respond to my original questions. I'd hoped that perhaps I could offer some advice, based on the challenges you're facing. But, after reading your responses, it's clear you've already done a lot of research, self-experimentation, and invested a lot of time and money into looking for solutions.

Alas, I regret that I don't have anything useful to bring to the conversation. I'm sorry you're suffering so much and dealing with so many hurdles.

Have you considered consulting with Joseph Cohen over at SelfHacked.com?

Sincerely,
The Dude


1. Thanks. I've very suddenly been met with "the look" at least 4 times in the past month or so by acquaintances in the medical field who are obviously very Lyme ILLiterate. They are suggesting my doctor is a quack, that infections just can't keep surviving abx, and every. single. time: "you need to go to Johns Hopkins." I simply can't explain why JH is the arch-nemesis of Lymies without sounding like I've shut myself in an echo chamber and succumb to conspiracy theories. Those people are getting in my head and not helping the anxiety at all. I have to go back and look at my positive tests and admire my prolific Babesia smear to tell myself I really AM sick.

2. Likewise, didn't mean to sound annoying or put-off. It's been a trying year thus far. I think these issues are good to discuss so they're easier to find in the future for anyone else looking for answers.

3. I'll look into that now.
Lyme, Babesia, Bartonella. Symptoms began 5/2016, didn't start treatment until 9/2016. Slow but steady recovery.

*twitch twitch*

BabsBunny
Veteran Member


Date Joined Mar 2017
Total Posts : 563
   Posted 2/19/2018 9:49 AM (GMT -6)   
Intuition said...
BabsBunny,

So sorry that you are having all of these issues. As far as cost goes, I've found that purchasing fresh meats (chicken and ground beef) and frozen wild seafood (gulf shrimp) in bulk helps me cut down significantly on my grocery bill. I'm not sure if you have wholesale clubs near you (BJ's / Costco) but it's worth getting a free daily or weekly pass and checking out the selection. I'll buy several pounds of fresh lean meat at a time, portion it out, and freeze it. Then I just throw a portion in the refrigerator the night before I plan to cook it and I don't notice a loss in taste or texture. It's probably not going to be the quality of something local, organic and farm-raised, but I found it to be a good cost-effective compromise.

For the hunger pangs, I'm not sure if you take supplements regularly, but I've found success with 5-HTP taken daily for reducing my appetite and boosting mood a bit. Hope this helps. Best of luck!


The problem with "fresh" meats is that, unless they are immediately frozen soon after butchering, they quickly develop high levels of histamine. (A low-histamine diet is, I think, THE most exasperating diet restriction I've met while dealing with Lyme. For people without infection, it does allow a lot more starches and dairy, but with lyme and Candida, I'm doubly restricted. It's CRAZY. And you will find 5 different lists with differing opinions on what is and is not low in histamine. However, its thought overactive mast cells are the cause of many food sensitivities - so the restrictive diet will heal your restrictions, if successful). Anyway, all lists agree that meat that's been sitting on a grocer's shelf for an uncertain amount of time is OFF LIMITS. It must be frozen, or received from the butcher himself. I don't think Costco can offer that.

Only place I can get quick-frozen quality meat is local farms. The question or myself is whether to go to the grocery store freezer and find turkey or chicken. But it will certainly be stuffed full of GMO corn and soy (both of which alone I have issues with). Whether or not those elements will be present enough in the meat to affect me, I don't know. I've read too much about factory farms to be comfortable with it, but at this point, I realize I might have to relax and just drink the poison to survive. I did eventually overcome my fear of WALKING IN GRASS (thanks to ticks), so perhaps I can overcome my fear of conventional meat. It just really concerns me how distorted agriculture has become in the last century.

I DO take 5-htp. I do have permission to raise my dose if needed, perhaps I should look at that. Just read it should be taken 30 minutes before a meal for best absorption, so maybe I'll be more careful to do that. Just... when I'm hungry all the time, there IS no time between meals! turn
Lyme, Babesia, Bartonella. Symptoms began 5/2016, didn't start treatment until 9/2016. Slow but steady recovery.

*twitch twitch*

Rikky1
Veteran Member


Date Joined Jun 2015
Total Posts : 2922
   Posted 2/19/2018 9:55 AM (GMT -6)   
your 'hunger hormone' is probably babesia messing with your brain signals. my wife has this also she gets insatiable hunger even though she's not hungry.

she eats small meals when this comes on to push it back some.

BabsBunny
Veteran Member


Date Joined Mar 2017
Total Posts : 563
   Posted 2/19/2018 11:25 AM (GMT -6)   
Rikky1 said...
your 'hunger hormone' is probably babesia messing with your brain signals. my wife has this also she gets insatiable hunger even though she's not hungry.

she eats small meals when this comes on to push it back some.


Very good possibility. It has happened occasionally in the past, but this time it is worse and gnawing hunger to the point of anxiety. Then again, this whole "herx" has been worse and extreme to the point of anxiety.

I miss the old symptoms of brick-limbs and fatigue. When I wake up feeling like I got run over by a bus, I'm actually really excited to have that feeling rather than the neuro symptoms.

New one today: my whole face is numb. sad
Lyme, Babesia, Bartonella. Symptoms began 5/2016, didn't start treatment until 9/2016. Slow but steady recovery.

*twitch twitch*

Aerose91
Veteran Member


Date Joined Feb 2016
Total Posts : 574
   Posted 2/19/2018 2:22 PM (GMT -6)   
I had this for 3 years straight. Every day, after every meal i would get so hungry and such intolerable cravings that i would be trembling and lose my gait. I couldn't function because i was thinking about sugar so bad.

For me it was histamines and a klebsiella infection in my gut. For klebsiella i eat low starch and low sucrose and then a low histamine diet as well. The cravings are much, much reduced since then. Also, klebsiella produces histamines.

What im doing now is im about to start olive leaf extract and black cumin seed oil for the klebsiella because i don't think it's gone, eat low histamine/low starch and i take histamine reducing probiotics at night- either GutPro or Digesta Guard. If i eat even a lick of almond butter my hunger goes through the roof.

I believe that if we can kill off the histamine producing bacteria (klebsiella and obviously lyme & co's) then our histamine sensitivity should come down. Fingers crossed that is correct because these insane restrictions from histamine intolerance really blow.

Rikky1
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Date Joined Jun 2015
Total Posts : 2922
   Posted 2/19/2018 5:03 PM (GMT -6)   
olive leaf extract and black cumin seed oil is a very powerful combination to rid yourself of pathogens so take it low and slow and pulse them both so you give your body a rest so the immune system doesn't take an extended vacation.

Aerose91
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Date Joined Feb 2016
Total Posts : 574
   Posted 2/19/2018 10:28 PM (GMT -6)   
I used OLE and colloudal silver on it before and it didnt work so im swapping for the cumin oil because ive read that it's more specific for gram-negatives. Ill start that first then see if i need the OLE

BabsBunny
Veteran Member


Date Joined Mar 2017
Total Posts : 563
   Posted 2/19/2018 11:44 PM (GMT -6)   
Aerose91 said...
I had this for 3 years straight. Every day, after every meal i would get so hungry and such intolerable cravings that i would be trembling and lose my gait. I couldn't function because i was thinking about sugar so bad.

For me it was histamines and a klebsiella infection in my gut. For klebsiella i eat low starch and low sucrose and then a low histamine diet as well. The cravings are much, much reduced since then. Also, klebsiella produces histamines.

What im doing now is im about to start olive leaf extract and black cumin seed oil for the klebsiella because i don't think it's gone, eat low histamine/low starch and i take histamine reducing probiotics at night- either GutPro or Digesta Guard. If i eat even a lick of almond butter my hunger goes through the roof.

I believe that if we can kill off the histamine producing bacteria (klebsiella and obviously lyme & co's) then our histamine sensitivity should come down. Fingers crossed that is correct because these insane restrictions from histamine intolerance really blow.


Is GutPro good? I’ve had my eye on it but they won’t tell me the specific strains :-(
Lyme, Babesia, Bartonella. Symptoms began 5/2016, didn't start treatment until 9/2016. Slow but steady recovery.

*twitch twitch*

Georgia Hunter
Veteran Member


Date Joined May 2012
Total Posts : 2132
   Posted 2/20/2018 6:53 AM (GMT -6)   
BabsBunny said...
Georgia Hunter said...
How many calories are you eating on a daily basis? How much do you weigh? How tall are you? All are important when determining what is going on and why you are hungry.


I haven't counted calories in years. Just eat whole foods or processed snacks with simple ingredients. Meals generally include a meat, vegetables, some grain, and occassional piece of fruit, homemade GF bread, or rice cakes. Until recently I loved almond butter and nuts.
I'm 5'6" and just slightly overweight on the BMI (wretched thing), even though I've lost 30 pounds in the last 18 months and every time I scratch my back, my fingers slip in between my rib bones. I can see them, front and back. The weight is all in these American thighs.

The reason I suspect its fat, protein, or the low-histamine diet is because this came on quite suddenly along with a steep increase in neurological symptoms. The last Babs herx threw me into severe anxiety and depression, bradycardia, low body temp. At the same time I started a low-histamine diet, and in a few days noticed less acid reflux, and less itching. But getting itchy with coconut oil was a big blow. I didn't normally eat almond butter so much, but it was my last source of fat. I am tracking my diet with the Cara app, and it takes some time and adjusting to interpret but its pretty clear almonds, almond butter, and almond milk are all common on my worst days.

Now, that might be because when I feel bad, I freak out trying to remedy the situation - like increase my fat and protein intake to stop being hungry- or I'm too sick to cook so I have to go with my frozen leftovers and rely heavily on the pantry items - rice cake, almond butter, oatmeal. So whether almonds are the chicken or the egg, I don't know. Only an elimination diet can figure that out, and that's where I'm stuck now. Trying to maintain a healthy elimination diet without starving.

I do believe there's a hormonal element - if the anxiety, shaking, low HR, etc is a glutamate or ammonia overload, as seems to fit my symptoms, there's a chemical imbalance in my brain, and it would seem fitting that one of those chemicals is a hunger regulator. I've read that the babesia symptoms of air hunger and heart arrhythmia don't show up on the tests because its not a physical problem - it's a neurological/nervous system glitch that isn't communicating with your brain that there is sufficient oxygen, electricity, etc. That except in rare cases, it's just a sensation. So is my brain not getting the signal that I'm full and well-nourished? Or am I actually malnourished?

Until I'm able to see my ND, I don't know, but the hunger is driving me crazy. I was hoping there was support for this situation and other MCAS sufferers, but I can't find anything. But if I ever figure it out, I"ll be sure to get the info out there for the future!

You sound like you are malnourished. I don't know what you need, but a quality multivitamin would be in the equation. I like All-in-One from Hollisticheal.com. You should take 3 per day.

Aerose91
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Date Joined Feb 2016
Total Posts : 574
   Posted 2/20/2018 12:20 PM (GMT -6)   
Have you gone to their website? There's a photo on there.

https://www.corganic.com/products/gutpro

Gutpro worked well for me when i was at my worst, i trust it

The Dude Abides
Veteran Member


Date Joined May 2017
Total Posts : 1157
   Posted 2/20/2018 1:31 PM (GMT -6)   
Georgia Hunter said...
You sound like you are malnourished. I don't know what you need, but a quality multivitamin would be in the equation. I like All-in-One from Holisticheal.com. You should take 3 per day.


Here's a link to the "All-in-One" multi-vitamin/-mineral Georgia Hunter mentioned:

www.holisticheal.com/all-in-one-multi-vitamin-mineral-120-capsules.html

This multi-vitamin/-mineral was also mentioned by him in the following thread:

"24-7 hungry for last week- anyone know why? Georgia?"
/www.healingwell.com/community/default.aspx?f=30&m=3940521

BabsBunny
Veteran Member


Date Joined Mar 2017
Total Posts : 563
   Posted 2/20/2018 5:19 PM (GMT -6)   
Aerose91 said...
Have you gone to their website? There's a photo on there.

https://www.corganic.com/products/gutpro

Gutpro worked well for me when i was at my worst, i trust it


Yes... that's why I have my eye on it... I contacted them asking about the specific strains (i,e numbers, not just the species) and they said its proprietary info they won't give me.

But if it was good for your histamine intolerance, then I will give it a go.

BabsBunny
Veteran Member


Date Joined Mar 2017
Total Posts : 563
   Posted 2/20/2018 5:24 PM (GMT -6)   
Georgia Hunter said...

You sound like you are malnourished. I don't know what you need, but a quality multivitamin would be in the equation. I like All-in-One from Hollisticheal.com. You should take 3 per day.


I won't be adding any multivitamins - i'm on individual ones as needed. Most, if not all, have fillers or at least ascorbic acid derived from corn.

Malnourishment doesn't make sense to me because it only happens some nights in conjunction with anxiety and panic. If I was lacking essential minerals, shouldn't I feel like crap all the time?

It might be an adrenal issue. It might be Babs brain issue...

I'm just going to keep plugging away at treatment, eating more, and trying to get in chia, flax, hemp, or other less expensive forms of protein and fat.

Thanks everyone
Lyme, Babesia, Bartonella. Symptoms began 5/2016, didn't start treatment until 9/2016. Slow but steady recovery.

*twitch twitch*

Rikky1
Veteran Member


Date Joined Jun 2015
Total Posts : 2922
   Posted 2/20/2018 7:21 PM (GMT -6)   
Babs you have to stay persistent and keep beating down Babesia. this can take a VERY long time before these signals go back to normal. my wife has been dealing with this for almost a year. crazy.

Aerose91
Veteran Member


Date Joined Feb 2016
Total Posts : 574
   Posted 2/20/2018 7:52 PM (GMT -6)   
BabsBunny said...
Aerose91 said...
Have you gone to their website? There's a photo on there.

https://www.corganic.com/products/gutpro

Gutpro worked well for me when i was at my worst, i trust it


Yes... that's why I have my eye on it... I contacted them asking about the specific strains (i,e numbers, not just the species) and they said its proprietary info they won't give me.

But if it was good for your histamine intolerance, then I will give it a go.


Oh, yes. Amounts, i dont know but it did help me. It repopulated my bifidobacteria when i kept showing none on stool tests and didn't aggrivate histamines or acidity

BabsBunny
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Date Joined Mar 2017
Total Posts : 563
   Posted 2/21/2018 4:02 AM (GMT -6)   
Aerose91 said...


Oh, yes. Amounts, i dont know but it did help me. It repopulated my bifidobacteria when i kept showing none on stool tests and didn't aggrivate histamines or acidity


Did you order it from the website, or can I get it somewhere with at least cheaper/ free shipping?
Lyme, Babesia, Bartonella. Symptoms began 5/2016, didn't start treatment until 9/2016. Slow but steady recovery.

*twitch twitch*

HOPEFilled
New Member


Date Joined Apr 2018
Total Posts : 1
   Posted 4/24/2018 9:05 PM (GMT -6)   
I can relate to the insatiable hunger. I've been starving since March 2013 and it wasn't til August 2016 that I discovered I have Lyme (and later learned Bartonella). Ironically, the only relief from hunger came when the lyme made itself known and the pain and nervous system symptoms came on full blast.

Recently, a nutritionist steered me to research by Datis Kharrazian and is wondering if something is up with my vagus nerve. I find this pretty intriguing and am thinking of trying a few of his methods (though my neighbors may not appreciate the loud singing idea).

https://www.youtube.com/watch?v=-uGPhHOKQts

I also looked up a Vagus Nerve website
https://www.selfhacked.com/blog/28-ways-to-stimulate-your-vagus-nerve-and-all-you-need-to-know-about-it/

I thought it was interesting to read that a few of the things listed have helped me with the hunger: gum chewing, sleep, the sun, exercise (I've often joked that if I lived on a treadmill I'd be great), yoga, prayer, carbs (crave carbs big time). I've also read about bitter herbs and the scent of grapefruit (those have helped a little too).

The tricky part is figuring out the root of what's messing with this nerve: Bartonella, Lyme, Babesia (which I've never been diagnosed with), the liver, the stomach, parasites, the brain or candida? Gosh-- I keep praying God will point me to the right one.

I hope the websites help anyone else out there who is STARVING! I'm going to do more research and will post if I find anything. Meanwhile if any of you figure out any of this, please let me know.

Notime4lyme
Regular Member


Date Joined Dec 2017
Total Posts : 385
   Posted 4/25/2018 11:20 AM (GMT -6)   
That was one of the strange things about getting Lyme. I was so hungry all the time. I would buy these huge scones and eat the whole thing.

The whole thing seemed to come with not being able to tell how much I had eaten or how much weight I gained. I used to be able to tell if I needed to gain weight looking in the mirror, but I have water retention all over so I can't tell.

Now the hungry feeling only comes once in a while when I am feeling especially bad. I know I'm getting worse if I keep feeling hungry for no reason.
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