Good videos, articles etc. about chronic neuro Lyme

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Date Joined Nov 2017
Total Posts : 56
   Posted 2/19/2018 11:35 PM (GMT -6)   
My aim is to share some info with the people who know my family. I'd like them to get it what we're going through (yeah we all do right?), and I hope I'd find someone who could help me get the money for treatment... or something.

So videos, blogs, articles, studies...? Something not too complicated and not too long (Under Our Skin is too long and slow for non-native-speakers). Something that doesn't feature only wheelchair patients and others whose illness you can clearly see... because I'm not one of them. My symptoms are annoying, weird, constant... like head pressure, light sensitivity, strange nerve sensations, intoxicated feeling etc. etc. etc. My Lyme reactivated after seven years by antibiotics and stress. Or this is what it seems.

Something that explains the SEVERITY of this disease. If they have come across some newspaper articles only, they have no idea, they might think it's only sore knees and fever... sigh. I'd like them to understand at least to some extent that this global mystery epidemic is not just an illness that you know you have, but it is something that you can feel _under your skin_ all the time and not only that: it also affects every part of you and your life, it's a whole new world, it's about everything.

Please make this a bit easier, I can't review all of them now. xx

Post Edited (Eaglet) : 2/20/2018 3:26:01 PM (GMT-7)

Forum Moderator

Date Joined May 2014
Total Posts : 33939
   Posted 2/20/2018 3:49 AM (GMT -6)   
Here's one shorter video - Avril Lavigne telling her story:

Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Regular Member

Date Joined Sep 2017
Total Posts : 397
   Posted 2/20/2018 10:26 AM (GMT -6)   
One of my favorites here. I made my wife watch with me. I don't know how to paste clickable hyperlinks if someone wants to edit. Otherwise, copy and paste.


Edited just to make hyperlink.

Post Edited By Moderator (Girlie) : 2/20/2018 8:56:25 PM (GMT-7)

Regular Member

Date Joined Nov 2017
Total Posts : 56
   Posted 2/20/2018 5:24 PM (GMT -6)   
Thanks. Any more suggestions? I have seen the first one, but second one is new to me. Will consider. I just hope to find something that features "reactivation" and these things that make it all even more mysterious...

But yeah, maybe I'll just start somewhere and see if I catch something! Thank you so much, I will view those videos with care.

Post Edited (Eaglet) : 2/21/2018 6:54:04 PM (GMT-7)

Regular Member

Date Joined Jun 2017
Total Posts : 92
   Posted 2/20/2018 9:37 PM (GMT -6)   

I just wanted to thank you so much for posting this interview with Dr. Phillips and Dana. I just finished watching it and plan on sending it to family and friends. They make so many excellent's a must see for all of the doubters....thanks again.

Regular Member

Date Joined Sep 2017
Total Posts : 397
   Posted 2/22/2018 11:52 AM (GMT -6)   
You bet!!!! glad to help!!

Regular Member

Date Joined Feb 2017
Total Posts : 217
   Posted 2/22/2018 11:59 AM (GMT -6)   
Great interview
Lyme, CPN, Yersinia, Coxsackie, CMV and Bartonella after LLMD visit.
CD57 0, 2, 0, 3

Started treatment in May 2017
Currently on Azithromycin, Doxycycline, Plaquenil, Rifampicin, Delimmun
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