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New Member

Date Joined Feb 2018
Total Posts : 1
   Posted 2/21/2018 7:47 AM (GMT -6)   
Hi all.

First off I am self diagnosed. As I sit here typing this I am having trouble with my vision. One minute its fine the next I can't half read, everything becomes fuzzy, blurry. Its like I go from 20/40 to 20/100 in a second. The reason I am writtting is I am a veteran and I go to the VA Medical Center. My neurologist ran a blood test but it was not conclusive. Of course I know the blood tests are not reliable. He seems to think based on my symptoms that I probably have it. He suggests going to Dr Jemek in DC but I cant afford to travel plus I do not have insurance. So here I am needing help but no money no insurance. The VA cant treat me for it because the infectious people there do not think I have it. I am hoping to be able to go to either a LLMD or a Nature Path Dr. Now, which would be the least expensive? I know the LLMD specializes in Lyme but here in central NC I am limited to only a couple of each type within a hour driving distance. See part of my issue is most days I cant drive because of brain fog, light sensitive, loss of balance. I want to see someone but I may have to just go to health food store and buy the herbs that Dr Butnear suggests in his book. The worst thing is I hate to go to one of these drs and a month after spending money realize this guy does not know what he is doing. If I call they always say well come in we will see you. But I do not know who is good who is not. I hear the LLMD dr in Winston Salem is good but I also hear it could cost 2000 plus the first visit so that's out!!!
Any ideas or suggestions? How would you all go about handling this situation?

Forum Moderator

Date Joined May 2014
Total Posts : 33785
   Posted 2/21/2018 1:20 PM (GMT -6)   
Hi Todd, welcome
thank you for your service.

I'm sorry you've got Lyme, but glad you found your way here.
This is a great group of people for support and information.

I wouldn't necessarily go to the 'cheapest' Dr. you can find. You do want one that has good reviews and will treat the disease (including the coinfections) appropriately.
If the Dr. isn't treating could end up being more costly in the long run.

You can email me and I will give you a few suggestions...and they are less than $2000 for the initial consult.
(The initial consult is often more expensive than the follow-ups - FYI)

Many (most?) of the LLMD's don't take insurance , unfortunately.

You could start with the Buhner herbs - lots of help on this forum if you choose that route.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Forum Moderator

Date Joined Sep 2016
Total Posts : 2291
   Posted 2/21/2018 5:30 PM (GMT -6)   
Hi Todd,

Welcome to our forum. I am sorry that you have Lyme ,but is it good you have found us.

Do you know what test they ran for Lyme and with what lab?

I'm just asking because I wonder if the VA would cover more testing for you through IGENIX. Your neurologist(who sounds like a good one) just has to sign the request.

That way if you get the better testing and it shows positive, then The VA would have to cover your care hopefully.

Igenix is known to have better testing than just the regular common Elisa test for Lyme.

There are also co infections that you should be tested for like Bartonella, Babesia and others.

The Lyme bacteria rarely travel alone so its good to either check for the other co infections or be clinically diagnosed by an LLMD by your symptoms.

I want to say thank you for your service, I am so very grateful to you for your protection of me and my family as an American and also for protecting our freedoms.

If you do decide to go the herbal route, there are many knowledgeable members here that will offer help with questions and offer support when needed.

Take care and I wish you the best of healing, Jo

Regular Member

Date Joined May 2017
Total Posts : 140
   Posted 2/21/2018 9:14 PM (GMT -6)   
Hi Todd! I actually go to an LLMD in Raleigh and I believe the charge for my first visit was $200. My insurance actually pays for my visits and paid for my bloodwork so far but you might want to give her a try. I don't think I am allowed to say the doctors name on here but you can email me and I will give you her info. I have only been a couple of times but I like her so far.

I think starting on Buhner's herbs would probably be a very good start too. So sorry you have to deal with this disease but am glad you found this forum. I am somewhat new myself and it has helped me so much!
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