>> So then it's side effects from the herbals? Maybe it's just one herb in particular that you were taking?
In the beginning, I added them so unbelievably slowly - one by one. I reacted to the cytokine remodulators and went off those. So, I really don't believe it's a herbal reaction. I think something atypical is going on with me.
>> Have you consulted with one of Buhner's recommended herbalists to see what they say?
No. But I've wanted to. But somebody recently posted they contacted Buhner's recommended herbalists and couldn't get in anywhere. I think I'd go a different route and see a NP who does Bryon White if I could. But at this point, I'm self-treating instead.
To be honest, treating four of us is really expensive after all these years, and my kids are higher priority than myself.
>> But when your symptoms get better...they are still there...just not as bad?
That depends on the symptoms. When I stopped the cytokine remodulators, it took several weeks but the pain went away. When I stopped the HBOT (hard chamber triggered some heart issues), I believe one of the lyme herbals actually calmed my heart symptoms, and I rarely have symptoms from that anymore (and certainly nothing as severe as it almost stopping symptom).
My elbows and foot pain is about
80-90% better after stopping the herbals. I did not have daily chronic foot pain until I started the herbals. My elbow pain was from an injury, but they would not heal while on herbals. When I went off the herbals, they greatly improved and finally felt like they were healing.
I feel that herbals may be causing inflammation for me, for reasons I don't fully understand.
I don't believe that herxs last months and months with no improvement. I believe those tend to be more flares (IMO). Worsening of symptoms isn't always a herx, and I think it's difficult to always know.
Thanks for brainstorming, Girlie. I appreciate it.