Urgent: in need of a lyme literate neurologist in az

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doors12
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Date Joined Jul 2006
Total Posts : 716
   Posted 2/21/2018 12:50 PM (GMT -6)   
Does anyone know of one? Please email me if you can! This is urgent!


Doors12

Girlie
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Date Joined May 2014
Total Posts : 33873
   Posted 2/21/2018 4:50 PM (GMT -6)   
Doors12 - I checked my list of LLMD's in Arizona and I don't have one listed as a neurologist.

Hopefully someone will be along with a name.


Are you willing to go to a different State? Maybe you'd find one that way.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

goshawk
Forum Moderator


Date Joined Sep 2016
Total Posts : 2299
   Posted 2/21/2018 4:56 PM (GMT -6)   
Hi doors12,

I would try doing a llmd search at ilads.org/ilads_media/physician-referral/

and possibly one might turn up that is a neurologist or you could contact the llmd's that they give you information on and ask them if they know of a Lyme literate neurologist in Arizona.

Hope this helps, please take care, Jo

goshawk
Forum Moderator


Date Joined Sep 2016
Total Posts : 2299
   Posted 2/21/2018 4:59 PM (GMT -6)   
also not sure if your familair with this group buy maybe you can find someone through their support groups that know of one.

www.azlyme.org/

doors12
Veteran Member


Date Joined Jul 2006
Total Posts : 716
   Posted 2/21/2018 7:31 PM (GMT -6)   
Girlie, unfortunately travel out of state is not an option right now...

Goshawk- I submitted a request to ilads

Thank you guys, I will continue to hope there is one in AZ, I'm in bad shape having to completely stop houttunyia out of work

goshawk
Forum Moderator


Date Joined Sep 2016
Total Posts : 2299
   Posted 2/22/2018 4:53 AM (GMT -6)   
Keep fighting and searching....and lets hope that you will find a neuro llmd soon.



Bumping for more views

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33873
   Posted 2/22/2018 12:24 PM (GMT -6)   
Bump
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

doors12
Veteran Member


Date Joined Jul 2006
Total Posts : 716
   Posted 2/22/2018 12:28 PM (GMT -6)   
Update: ILADS did not have one in my area...

I am having to stop houttunyia the herx is too severe, I can't deal with the waking at 3am and the anxiety
Positive test for lyme disease antibodies, brucella, babesia, bartonella, ehrlichia, mycoplasma 2015
Pancolitis Ulcerative Colitis (Mild to Moderate) dx in 2006 diagnosis changed to acute infectious colitis 2015
3/2014 heterozygous mthfr
Herbal treatment with addition of Alinia/tinidazole

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33873
   Posted 2/22/2018 1:44 PM (GMT -6)   
doors12 said...
Update: ILADS did not have one in my area...

I am having to stop houttunyia the herx is too severe, I can't deal with the waking at 3am and the anxiety



Can you just scale back the dose...maybe just a couple drops per day?

Have you tried Sida Acuta and/or JK?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

doors12
Veteran Member


Date Joined Jul 2006
Total Posts : 716
   Posted 2/22/2018 10:59 PM (GMT -6)   
Girlie, I'm on sida full dose for many months with no problem but the houttunyia was way strong to me...I can't function on it, the sad thing is I think it was helping but I have too many responsibilities to continue it right now, the insomnia alone has been awe inspiring...
Positive test for lyme disease antibodies, brucella, babesia, bartonella, ehrlichia, mycoplasma 2015
Pancolitis Ulcerative Colitis (Mild to Moderate) dx in 2006 diagnosis changed to acute infectious colitis 2015
3/2014 heterozygous mthfr
Herbal treatment with addition of Alinia/tinidazole

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33873
   Posted 2/23/2018 2:28 AM (GMT -6)   
doors12 said...
Girlie, I'm on sida full dose for many months with no problem but the houttunyia was way strong to me...I can't function on it, the sad thing is I think it was helping but I have too many responsibilities to continue it right now, the insomnia alone has been awe inspiring...


How much houttuynia are you taking?

If it's already a low dose...then maybe just stop it and take Sida Acuta and JK.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

doors12
Veteran Member


Date Joined Jul 2006
Total Posts : 716
   Posted 2/23/2018 10:00 AM (GMT -6)   
I had gotten up to 20 drops but I have now stopped it altogether for about a day and a half, it is scary because I still couldn't sleep last night even with a pharma sleep aid and I can't even nap during the day. I had been having alternating nights of poor sleep and early awakening while on the hty for the past couple months

I am praying that it is a herx that will die down soon and not some kind of more extended immune response that may take longer to go away
Positive test for lyme disease antibodies, brucella, babesia, bartonella, ehrlichia, mycoplasma 2015
Pancolitis Ulcerative Colitis (Mild to Moderate) dx in 2006 diagnosis changed to acute infectious colitis 2015
3/2014 heterozygous mthfr
Herbal treatment with addition of Alinia/tinidazole
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