Does this sound like Lyme?

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Taytay459
New Member


Date Joined Feb 2018
Total Posts : 10
   Posted 2/22/2018 9:01 AM (GMT -6)   
June 2017 I developed a perfect bullseye rash on my forearm. Went to urgent care, tested positive for lyme, and was put on doxycycline. Found a LLMD right away, took doxy, nystatin and probiotics for 6 weeks. At this point I had joint pain, mostly in my knees, muscle weakness in arms, twitching and pressure in throat. All symptoms were gone almost instantly after starting treatment....rash was gone within 2 weeks. about a month after stopping treatment knee pain, neck pressure returned...this time with throbbing, tingling and heart palpitations. Had leftover doxy, so took it for another two weeks...all symptoms disappeared. 2 months later, come January 2018 fell sick with what seemed like a flu, knee pain started....Throat pressure, and muscle cramps and spasms, twitching. Went to doc, was put on plaquenil and doxy for 30 days. All hell broke loose, and have not felt right since. Heart palps, tingling in hands and feet, crawling sensations, numbness, on and off pain everywhere, lower back pain becomes unbearable. Chills, can't get comfortable in any temp. Almost constant on and off pressure in head, ringing and pressure in ears, sound and light sensitivity, off balance, dizzy spells. Stiff legs, hard to walk. Come and go brain fog, where I can heardly hold a normal conversation. Worsening anxiety and mood swings. Shaking that can last hours, burning stabbing sensations in feet. Feels like someone breaks glass on hands and feet and side of head. Jaw pain. All comes and goes. But pretty consistently hits at some point throughout every day...feels the worst in the morning. Was put on a night shift in late November and was experiencing insomnia during the day right before I started feeling ill again...Not sure if this could have caused and kind of relapse? The last doctor who put me on doxy said it was most likely a herx reaction. But its been a month....so went to another infectious disease doctor. He did blood work and said I do not have lyme because 2 weeks of doxy should have knocked that out....Also said everything in my blood is normal. Went to a neurologist for another opinion yesterday and was told I do not have lyme because 2 weeks should have knocked that out, and I probably never had it because a second blood test showed up negative. They are testing blood again, for lyme and possible coinfections (which I have never been tested for) and other vitamin definciencies. Scared that everything will be normal...because I don't think I can handle feeling this way much longer. Ran out of doxy and plaquenil and feel worse than ever....Started some herbs, cats claw, grapefruit seed extract, larginine, reservratrol, and turmeric and feel like Ive been run over by a bus...mentally I am not all there anymore. New doc wants me to stop all treatments...Scared that this will do more harm then good. Getting depressed as my options are seeming less and less. Is it possible for lyme to linger like this??? Before my diagnosis, I have had horrible mood swings....anxiety, and random days of joint pain...in hands, legs and neck for most of my teenage years, always thought it was terrible PMS and I did too much physical work etc. Could the rash have come on late, never saw a tick?

Post Edited (Taytay459) : 2/22/2018 9:02:48 AM (GMT-7)


Szabo246
Veteran Member


Date Joined Sep 2017
Total Posts : 505
   Posted 2/22/2018 9:10 AM (GMT -6)   
Hi there... I’m really sorry you’re feeling so terrible, there is hope though and you’re in the right place to get some great advice. I’m far from an expert but I’m sure others will
Be along soon.

My immediate thought was that you were undertreated and need to find an llmd.

Stay positive, things will turn around for you it’s just a matter of knowing what will work which is unfortunately different for everyone.

Taytay459
New Member


Date Joined Feb 2018
Total Posts : 10
   Posted 2/22/2018 9:28 AM (GMT -6)   
Thank you...I think I'm looking for a quick fix to what needs to be a journey....and letting it get to me. Just an overwhelming day!

Szabo246
Veteran Member


Date Joined Sep 2017
Total Posts : 505
   Posted 2/22/2018 9:34 AM (GMT -6)   
We all have them trust me. We also get through them smile the journey can be long but from what I’ve experienced and read from others, once you’re on the right healing plan for you, symptoms go... of course they sometimes come back as this is lyme but progress can and will be madesmile do you have an llmd?

Taytay459
New Member


Date Joined Feb 2018
Total Posts : 10
   Posted 2/22/2018 9:38 AM (GMT -6)   
I don't think I do. The doctor I originally was going to seemed to know what he was talking about, and he has lyme and babesia in remission himself. But I felt like I wasn't being listened too when I would try and ask about ever increasing symptoms that don't seem to go away...So that is why I have been doctor jumping, only to be told I should be fine according to blood work. Not sure how to find a good llmd.

Taytay459
New Member


Date Joined Feb 2018
Total Posts : 10
   Posted 2/22/2018 9:40 AM (GMT -6)   
I hope that you are doing well on your journey Szabo246....and that you have found your right healing plan!

Szabo246
Veteran Member


Date Joined Sep 2017
Total Posts : 505
   Posted 2/22/2018 10:04 AM (GMT -6)   
If you post a new thread entitled looking for an llmd in ..... ( wherever you’re from) I’m sure you will get some help. I’m seeing a doc at the moment and I’m on a herbal protocol for Lyme babs and bart, it’s going ok, although I always get worried when new symptoms appear, sometimes it’s a herx and I have to up my detoxing.

RedLabel
Regular Member


Date Joined Feb 2017
Total Posts : 217
   Posted 2/22/2018 10:17 AM (GMT -6)   
Really sorry to hear your struggles. Yes, all those symptoms can be lyme related. I've had most of them on and off myself, and the child feeling at any temperature has been extra bad lately.

Try to do find a new LLMD if you're not happy with the first one you had
Lyme, CPN, Yersinia, Coxsackie, CMV and Bartonella after LLMD visit.
CD57 0, 2, 0, 3

Started treatment in May 2017
Currently on Azithromycin, Doxycycline, Plaquenil, Rifampicin, Delimmun

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 2040
   Posted 2/22/2018 1:05 PM (GMT -6)   
Sounds like you had these infections (Lyme, bartonella, babesia) long before the bulls eye rash appeared. It's a controversial opinion that some Lyme experts have.

Your symptoms as a teenager before the bullseye rash sound much like my experience.

Herbs are very potent. Start at tiny doses - a few drops of tinctures, 1/16th - 1/8th tsp powdered herbs. Herbs do work and most certainly will cause herxes.
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