Weird head/neck sensation

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Lizzy62
New Member


Date Joined Feb 2018
Total Posts : 5
   Posted 2/22/2018 12:16 PM (GMT -6)   
Hi there,

I'm new to this forum and have been diagnosed with chronic lyme disease half a year ago.
I'm struggling with a weird symptom I haven't heard anyone mention, so I'm hoping someone can comment on this wether they recognize it / have heard of it before smile.

When I get tired or stretch my limits, I often get something that I call the 'shivers', but it's not the cold chills. It's like a really uncomfortable feeling in my head, so uncomfortable that it sends shivers down my spine (the way someone scratching a chalkboard would). It's not exactly pain, or pressure, more like an inflamed / agitated feeling. Sometimes it will move to my neck and my muscles there will cramp up because of it.

The only thing that helps is lying down without noise or light and applying pressure to my head, but it can last for hours and I can't do anything or the feeling will get even worse.

Does this sound like a lyme-related symptom to anyone? I would appreciate any comments!

aphysicalwreck
Veteran Member


Date Joined Sep 2012
Total Posts : 647
   Posted 2/22/2018 12:40 PM (GMT -6)   
Yes. I sometimes get that but I get more head tingling big time!!

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32685
   Posted 2/22/2018 1:08 PM (GMT -6)   
Lizzy62 said...
Hi there,

I'm new to this forum and have been diagnosed with chronic lyme disease half a year ago.
I'm struggling with a weird symptom I haven't heard anyone mention, so I'm hoping someone can comment on this wether they recognize it / have heard of it before smile.

When I get tired or stretch my limits, I often get something that I call the 'shivers', but it's not the cold chills. It's like a really uncomfortable feeling in my head, so uncomfortable that it sends shivers down my spine (the way someone scratching a chalkboard would). It's not exactly pain, or pressure, more like an inflamed / agitated feeling. Sometimes it will move to my neck and my muscles there will cramp up because of it.

The only thing that helps is lying down without noise or light and applying pressure to my head, but it can last for hours and I can't do anything or the feeling will get even worse.

Does this sound like a lyme-related symptom to anyone? I would appreciate any comments!


Hi Lizzy - welcome!

I have the 'shivers' . Mine can be worse in the cold, but what often triggers mine is something exciting, or 'moving'...If I go to the theatre to watch a movie, I am shivering - up and down my spine.
Sometimes a really good song I hear will do the same.
Mine doesn't start in my head, but it definitely goes down my spine and can last several minutes.

Yes, it sounds like lyme and/or confection symptom. Do you have any other symptoms? Did you have a tick bite?

I suggest you get a Lyme disease test done - Do you have a Dr. that would be willing to sign the lab req?

You can get a Lyme WB IgM and IgG for $250.


/igenex.com

You call them and they will send you a test kit. Fill out the lab req , have your Dr. sign, get the blood drawn and Fedex it to Igenex (on a Monday or Tuesday)
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Pet64
New Member


Date Joined Feb 2018
Total Posts : 1
   Posted 2/22/2018 8:35 PM (GMT -6)   
My son would get what he would describe as a buzzing feeling in his neck and back of his head. Has gone away now. Dont know what caused it or why it went away. He has chronic lyme

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32685
   Posted 2/22/2018 8:41 PM (GMT -6)   
Hi Pet64, welcome to our community.

I'm sorry your son has lyme...but am glad you found your way here.

How long has your son been in treatment?


We do encourage all new members read through the information contained in the "New to Lyme?..Start Here!" thread. It's packed full of useful information: symptom lists, detoxing ideas, and much more.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

MooseSafari
Regular Member


Date Joined Jan 2018
Total Posts : 78
   Posted 2/23/2018 3:00 AM (GMT -6)   
Lizzy, try some minerals and see if that helps. I got some relieve when I started to take some extra zink and magnesium one year ago. Maybe try vitamin D too.
And take a look at your water/drink consumtion. I got positive response when I cut down on the amount of my every day Tea , but could also be reversed, try then to drink more between meals instead. Try experiencing what is lacking. And a good idea is to cut down on refined sugar in all forms too (that includes fruits like oranges etc.)
Hope this will help you, I know what you are talking about and you have my total sympaty/compassion. May you be well soon.

Lizzy62
New Member


Date Joined Feb 2018
Total Posts : 5
   Posted 2/24/2018 7:32 AM (GMT -6)   
Thanks for all the replies! So sorry you guys have to deal with this too..

I have already been diagnosed with Lyme's, though it was a year later after I got the classic rash (thanks to a really bad doctor who insisted it wasn't Lyme's disease at the time...)

But it's nice to know that some people can relate smile.

@MooseSafari, thanks for the suggestions! I already take some supplement but no magnesium and zink yet.. Will give that a try!
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