Prolonged Flagyl Herx

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Hoagie
Veteran Member


Date Joined Jul 2017
Total Posts : 619
   Posted 2/22/2018 1:13 PM (GMT -6)   
I'm at the point where I think Flagyl is doing more harm than good. I started treatment August last year. Was doing Mino, Zith, and Flagyl. Flagyl was only on every 3rd week and for only 2 days. However, I got worse during that period. I ended up completing 3 cycles and had to go on short term disability due to walking/balance issues.

Went and saw Dr J in DC. He changed up my protocol, but still had Flagyl 2 days out of every 3 weeks. Ended up stopping all abx the end of November and going to Mexico for 2 weeks. I seemed to stabilize and actually started getting better towards the end of January.

I started back on Dr J's protocol when I started feeling better. I continued to make strides until my 2nd course of treatment. This past weekend I took Flagyl twice on Saturday and Flagyl, Mepron, Omnicef, and Septra on Sunday. I felt decent Sunday morning. But, come afternoon, I could barely walk, fatigue, and heavy tinnitus. The elevated symptoms have not subsided since late Sunday, and it is now Thursday. Needless to say, I doubt I will be touching Flagyl again.

I see my LLMD next Wednesday. And there is no doubt that he will have me halt abx. He was ready to put me on IV abx. And I still think that may be beneficial. It seems the trouble begins with the Flagyl.

Wondering if I should go completely holistic at this point.

Anyone else have similar issues with Flagyl? Before I started seeing my new LLMD, I figured I would just ride out the herx. But, he believes herxes should be very minimal to none. That herxing is counterproductive.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32685
   Posted 2/22/2018 1:43 PM (GMT -6)   
Hoagie - are you still seeing Dr. J? Or do you have new one again.

(Is that who you will be seeing on Wednesday?) I'm wondering if he is the one who said that herxes should be very minimal to none and that it's counterproductive.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Hoagie
Veteran Member


Date Joined Jul 2017
Total Posts : 619
   Posted 2/22/2018 3:36 PM (GMT -6)   
Girlie said...
Hoagie - are you still seeing Dr. J? Or do you have new one again.

(Is that who you will be seeing on Wednesday?) I'm wondering if he is the one who said that herxes should be very minimal to none and that it's counterproductive.
I'm not seeing Dr J any longer due to distance and price. My new LLMD wanted me to stay on the current protocol until I see him again and he will assess me from there. He used to work with Dr J when Dr J had a practice in NC. Apparently, they still talk back and forth when he comes up with a case that he needs some advice on. And vice versa. Dr P, my new LLMD, takes a more integrative approach and focuses very heavily on nutrition and detox. He is the one that believes herxes should be very minimal.

I have been going up to Raleigh weekly for nutritional and detox IVs leading up to my follow up next week. His plan was to get a PICC procedure ordered for me and start me out on 2 months of IV treatment. But, we'll see. Maybe I'm supposed to get worse before I get better. That girl from Under Our Skin almost died 3 months in to her treatment. So, I'm not sure if it's good or bad that I get so much worse on the Flagyl.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32685
   Posted 2/22/2018 3:48 PM (GMT -6)   
Oh I didn't realize that the blonde girl from UOS almost died...yikes.


Would you email me with Dr. P's name and location. I'd like to add him to my list if he's not already on it.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Hoagie
Veteran Member


Date Joined Jul 2017
Total Posts : 619
   Posted 2/22/2018 3:55 PM (GMT -6)   
Girlie said...
Oh I didn't realize that the blonde girl from UOS almost died...yikes.


Would you email me with Dr. P's name and location. I'd like to add him to my list if he's not already on it.
Yeah. In the doc, her husband said she stopped breathing and she had to go to the ER.

Emailing you now.
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