Parasite treatment and rage/anger

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frikfrak
Regular Member


Date Joined Feb 2013
Total Posts : 47
   Posted 2/24/2018 7:59 AM (GMT -6)   
Hi,

Started giving my DS (27) Albenza and 2 days in he became extremely angry...nothing I was doing, just angry, slamming doors, grabbing things out of my hand.....very scary for me.

So I was giving it to him for 3 days and then stopped for 3/4 days....took about 3 days for him to be his "normal". He's very passive / easy / calm but once I start treating him he gets into a rage at times.

Before that I gave him Ivermectin and didn't really notice any difference.

Our story is very long so I won't bore you....have tried everything.

He has been on Albenza in the past....did the complete 6 week parasite protocol years ago a few times.
First time we did it, seemed to help but after that no response. I don't recall him getting like this back then.

My DS was diagnosed in Dec. 2009 with lyme (10 bands positive) / babesia (positive on blood work) and possible bart (had the rashes / tested negative on blood work). Was treated for all with several top LLMDs but nothing has helped. Even tried IVIG.

Anyway still trying. We been on herbs / buhners / and many different herbs and supps thruout the years. Sometimes when I think something might be helping then BAM...stops and son retreats back into his world.

What I really need to know is how to calm him down, not just when he rages but all day calm. He goes to a center during the day because I work. If he exhibits any kind of anger they won't let him go.

He doesn't sleep either and constantly laughs....just sits in a chair and has laughing fits. I know, possible yeast...been treating that forever too.

He hasn't been on any antibiotics for a long time now, stop giving because of possible yeast and it wasn't helping anyway.

I'm coming to the realization that maybe I'm the problem. When he starts to show rage/anger/ too much confusion/ doesn't eat much / losing weight I stop whatever I'm doing. I'm really afraid he'll come at me.

He's was on antibiotics for years and nothing was working. Doctors honestly I think gave up, even they didn't know what to do anymore.

Does anyone know of something I could give him that will work for sure, for the rages?

I know detoxing is very important and I'm pretty sure he doesn't detox well. Over the years we have tried all the herbs / binders.

We do lemon water but I know during the day he doesn't do anything at the center, not even drink water. They only give him something to drink at lunch. I try and have him drink when he's home but if he won't drink what can I do. If I push him he gets mad.

He also won't do certain things...baths, forget colonics, exercise....i try and at least go for walks.

He's mentally disabled now and doesn't speak so can't ask how things are affecting him. And if I push for him to do something he'll get very angry.

I don't want to stop trying but I can't have him rage.

One good thing is he will take whatever pill I give him so giving supps and herbs aren't a problem. Currently just taking vitamin d / milk thistle / high dha fish oil / magnesium tauate / turmeric.

Was also doing pinella/burbur, finished half bottle and didn't notice any change...he raged while on it.

I really think he has parasites and thinking bartonella.

Thinking about doing Dr. Jernigan's plan....only one we have't tried yet. He suggests alot of detoxing, most of which my DS won't do. Would love to take him to the clinic but not sure its possible.

Again, I have to do everything, my DS can't do for himself so it's very hard / its just us.

Should I just go super slow on anything I give.

Any help is very appreciated.
frikfrak

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 1682
   Posted 2/24/2018 8:31 AM (GMT -6)   
frikfrak,

I'm so sorry for all you and your son are going through. You mentioned Buhner. Do you have any of his books? He does suggest specific herbs for anger/rage. I have not tried all of them. I do take Gou-teng (Chinese cat's claw) that he says is crucial for neuroborreliosis. Kudzu root has been the most helpful for me for the brain inflammation and psych symptoms, but not everyone who's tried it notices benefit from it.

Honestly, the thing I thought of that may be your best hope as far as figuring out what to do for him is booking a consultation with Buhner's partner, Julie McIntyre. From what I understand, she has unique experience in working with patients much like your son. I know an old member who doesn't come here much anymore, rowingmom, consulted with Julie and found her to be helpful. Rowingmom's daughter's story of recovery is nothing short of miraculous and moves me to tears every time I read it.

Here's a link to her story.

/www.healingwell.com/community/default.aspx?f=30&m=3178304

frikfrak
Regular Member


Date Joined Feb 2013
Total Posts : 47
   Posted 2/24/2018 9:31 AM (GMT -6)   
Hi,

Thank you. I have actually talked with RowingMom several times. She was a huge help but again, I thought it was helping but then seemed to stop.

I will look into the herbs you mentioned, he was not on any of those.

frikfrak

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 1682
   Posted 2/24/2018 9:38 AM (GMT -6)   
frikfrak,

Has he recently been evaluated for histamine intolerance or mast cell issues? We have another current member with extreme psych symptoms who'd tried lots of things including Buhner's protocols and couldn't get anything to work. He recently found out he has histamine issues that were increasing his symptoms. He also just started seeing the bartonella guru Dr. M. Here's a link to his recent post. His name is Aerose91. If he sees your post, I'm sure he'll respond. He's not able to come on the forum all the time, though, just so you know, but I believe he does have his email enabled.


/www.healingwell.com/community/default.aspx?f=30&m=3979712

frikfrak
Regular Member


Date Joined Feb 2013
Total Posts : 47
   Posted 2/24/2018 10:32 AM (GMT -6)   
thank you, i will have his LLMD test for both.

JustPiccd
Regular Member


Date Joined Dec 2017
Total Posts : 84
   Posted 2/25/2018 8:19 AM (GMT -6)   
What about Dr. B. in NJ (who deals a lot with psych issues resulting from Lyme)? If you haven't at least listened to his lectures on YouTube, I recommend it. There are, in short, multiple causes of brain/neuro symptoms from Lyme including psych symptoms, so addressing all of the angles is important. Also, from Dr. B's work, the fear you feel seems pretty legitimate as in *rare* cases these symptoms do lead to violent acting out. So take safe precautions around that, as from what Dr. B. has said these actions often tend to be impulsive and often a result of intrusive thinking, and they beg the question of how much restraint that person is even capable of right in the moment.

I like the combination of Alka Seltzer Gold (in water) plus lemon (and can also add glutathione, just don't know that I would if someone is having rage as it could *over* detox them and dump toxins into the bloodstream) for herx reversal. W/ antiparasitics esp., I've found coffee enemas to reverse reactions the quickest too.

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 1682
   Posted 2/25/2018 9:00 AM (GMT -6)   
frikfrak,

Two things that trigger rage the most for me are chemicals and mold. Fragrance is the worst. There are some fragrances I've come in contact with that instantly set me off in a rage. I can smell things that normal people can't and from far away. That could be from Lyme, but I really believe mine is caused from bartonella.

If your son is sensitive to light, sound, or touch, then he is likely sensitive to smells too. EMF sensitivity goes along with all these as well. My sensitivities are worse when I'm very toxic or herxing.

If he is knowingly or unknowingly being exposed to mold at home or at the care center, that could definitively be a contributing factor.

Just some things to be aware of.

frikfrak
Regular Member


Date Joined Feb 2013
Total Posts : 47
   Posted 2/25/2018 5:26 PM (GMT -6)   
Hi,

My son was a patient of Dr. B long ago but we stopped going when nothing was working. I think I will call and see if he will see us again. Luckily we only about 1/2 hr from his office.

As for mold, we had the house tested, nothing was found and not sure about the care center except I know it was all redone years ago. He doesn't seem highly sensitive to anything that I can tell. Doc did do blood work for mold (c4a I believe) but levels were fine.

Thank you all for your help. Currently he's just fine but then again i did stop the parasite meds until we see the doctor.

frikfrak

Tashin
New Member


Date Joined Feb 2018
Total Posts : 15
   Posted 2/25/2018 6:53 PM (GMT -6)   
Hi frikfrak,
You are not the problem! You are being an amazing mother and your son is so lucky to have you. These tick borne/parasite diseases are so frustrating. I've only been dealing with this for 6 months and I already feel it's too much. You sound like you've seen everyone, so probably familiar with all of these- but in any case it's been a few years since he was diagnosed, the original antibiotic protocols he had may not have included cyst busters as this is quite recent knowledge. Did he ever take Tinidazole specifically (combined with nattokwinase and enzymes) whilst on the antibiotic/parasite protocols? Rages are most associated with Bartonella and molds. I'm not sure what his developmental issues are but there is quite some research on dysbiosis in the gut with autism and other developmental disorders, so he could be predisposed to fungal growth. Take the tests with a grain of salt, not so reliable. It would be worth trying an antifungal such as Itraconazole if you haven't. Is he on varied probiotics? Activated cell wall chlorella and cholestyramine are supposed to be good to help bind. Using detox supports while killing on antibiotics/herbs? (NAC, R lipoid acid, glutathione, quercitin, reservatrol). Plenty of sunlight with D3 supplements, as well as D levels checked and supplemented. Also need a herbal blood thinner such as Hawthorne. One of the biggest factors with supplements is quality. Studies show most don't contain what they say. in my research I've found Mediherb/Standard process are the most trustworthy herbals (I have also taken some from Nutrimedix and woodland essence, just going on reputation). Pure encapsulation though expensive, are dependable. Has he had DNA analysis to check for things like methylation status, which may give you an idea which detox pathways may be compromised? Lastly diet, have/can you try an extensive elimination diet? I know that can be difficult so if not possible have you tried going grain, dairy, egg, nightshade, nut, and legume free ( ALL whole grain cereals -due to agglutinins/lectins). All the best, you are doing everything right!

Tashin
New Member


Date Joined Feb 2018
Total Posts : 15
   Posted 2/25/2018 8:01 PM (GMT -6)   
Oh sorry, I meant to answer your original question re support for anxiety...you can try motherwort. This page explains some other anti anxiety herbals (http://www.susunweed.com/An_Article_Fear_AW1.htm.oh) and I forgot to mention that I've found that supporting my liver has been a big factor. Silymarin from mediherb, drinking fresh squeezed ginger juice in coconut water and acupuncture to drain and regulate function all helped me a lot. I have studies on a lot of the things I've mentioned if you want just let me know...
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