Can anyone help me with my test results too

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tonyaraven
Regular Member


Date Joined May 2017
Total Posts : 398
   Posted 2/24/2018 1:25 PM (GMT -6)   
Hello! So I've been treating Babesia for almost a year, although I started super slowly and took awhile to titrate up. We tested the first time for babesia and bart over a year ago, bart was negative but Babesia was positive IgG Serum result was 80 (reference range is negative: <40). So my llmd said this was a very strong positive. We retested recently and this is what showed: IgM positive at 40, but IgG was negative. The reference says anything = or greatly then 40 is an active infection. So I don't get it! Does this mean I haven't treated long enough? I'm very confused. I'll throw in some other results too in case any of you have any input on them! My homocysteine was slightly high at 12.5 (reference range 4.5-12) and Girlie mentioned that CD57 isn't super accurate but I'll include that too: CD57 is 48, back when I first started having symptoms it was 70, so it's dropped vs getting better. It all puzzles me with my treatment. I've spent thousands and thousands of dollars (like a lot of us) and just question if I'm doing the right thing. I'm ready to just do herbs and let go of antibiotics and malarone, but not sure if this is a good idea or not. Anybody have any advice?? Thanks in advance!

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32691
   Posted 2/24/2018 1:49 PM (GMT -6)   
Tonya - I'm not very familiar with the Babesia test results...but I don't think they can be counted on to monitor progress.
You need to treat until you're symptom free.

How are you feeling? Have many symptoms subsided?


Are you going to be treating bart?
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

tonyaraven
Regular Member


Date Joined May 2017
Total Posts : 398
   Posted 2/24/2018 2:20 PM (GMT -6)   
Hi Girlie, I think the hardest thing for me if right from the beginning I go through periods where I feel fine and then out of no symptoms flare up. So every now and then I think, wow I'm better and then bam it starts all over again. I'm so scared this will be the way of life for me from now on, which is miserable to never know when the next truck is going to hit me!! I started BLT for bart, I guess it targets lyme too. My llmd wants me to do rifampin but to be honest I'm so burnt out on antibiotics. If I saw a real big improvement I would be game to continue but I really can't say things are a whole lot different from when I first started. In the very beginning things were bad, lots of horrible symptoms but even then I'd have some good periods. I think adjusting my diet (no gluten, low sugar and dairy) was a big help. My llmd will say that it seems like I'm really improving but I really don't know if that is the case because again my cycles aren't that much different.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32691
   Posted 2/24/2018 3:17 PM (GMT -6)   
So on the flares - do you not have less symptoms compared to before or early in treatment?


Do you not have more days of feeling well?

So, sounds like you've only treated lyme and Babs so far?
If so, then that is most likely what is keeping you stuck.

Bartonella most likely needs to be addressed..
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

tonyaraven
Regular Member


Date Joined May 2017
Total Posts : 398
   Posted 2/24/2018 6:59 PM (GMT -6)   
Thanks Girlie. I guess I will just continue with the BLT and hope it gets at the Bart assuming that is the problem. It seems like a number of people said Bart can cause abdominal pain and so I wonder if that is what's going on with me now, I'm having loads of abdominal discomfort.
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