Muscle Pain, Stiffness, Weaknesses

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WalkingbyFaith
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Date Joined Aug 2017
Total Posts : 1988
   Posted 2/24/2018 6:19 PM (GMT -6)   
Muscle soreness, stiffness, and weakness has been a lot worse for me lately. Back, calves, upper arms/shoulders.

Does any one of the infections particularly cause muscle pain?

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33798
   Posted 2/24/2018 6:54 PM (GMT -6)   
I had it early on - first weakness - very bad at the same time I lost the 14 lbs.

Then later on muscle pain...it actually hurt to press on my muscles. That only lasted a few months though.

I only have the stiffness in the frozen shoulder affected areas.
PT has greatly helped with that - range of motion, strengthening exercises.


I think it could be from any of the infections.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Lymess
Regular Member


Date Joined Nov 2017
Total Posts : 49
   Posted 2/24/2018 8:05 PM (GMT -6)   
I have muscle soreness. Feels like after a tough workout and your muscles are super sore, but you haven’t done anything to make them sore. I find I am much better during day as I am moblie and keep my body as fluid as possible. Also I am busy chasing little ones so I don’t have time to concentrate on the pain as much as at night when I lay down or am sleeping. Yoga definitely helps both my muscles and joints. It takes a lot to muster up the energy but I try to do light weight training and yoga to keep my muscles active with blood flow and joints fluid

NorCal
New Member


Date Joined Nov 2017
Total Posts : 16
   Posted 2/24/2018 10:34 PM (GMT -6)   
Lymess,

I feel exactly the same as you, achy like the day after from lifting weights. Muscle pain is my problematic symptom, I assume it is lyme/bart which is creating the pain. What do you suspect causes your muscle pain?
Best,

Jon

Symptoms started 2001; misdiagnosed for years. CDC Bb diagnosed in 2016. Hashimoto 2017. Grew up near Cape Cod, MA playing in the forests and creeks

Started treatment in 2016
Buhner's protocol, lots of supplements, paleo diet 2016-17 - no noticeable pain relief benefits
Doxy/Plaquenil/Rifampin Nov 17- present - No noticeable benefit

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 1988
   Posted 2/24/2018 10:40 PM (GMT -6)   
All along I've suspected bart was causing mine, but I tend to think all my symptoms are bart. That's why I wanted opinions from others.

NorCal
New Member


Date Joined Nov 2017
Total Posts : 16
   Posted 2/24/2018 11:57 PM (GMT -6)   
Muscle pain has slowly migrated around my body over the course of 15 years; started in neck, then upper back, lower back legs and arms. When the pain migrates it dissipates from the previous area not completely, but an improvement in one area only to irritate another muscle group.
Best,

Jon

Symptoms started 2001; misdiagnosed for years. CDC Bb diagnosed in 2016. Hashimoto 2017. Grew up near Cape Cod, MA

Started treatment in 2016
Buhner's protocol, lots of supplements, paleo diet 2016-17 - no noticeable pain relief benefits
Doxy/Plaquenil/Rifampin/ Pulsing Tindamax Nov 17- present - No noticeable benefit

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 5081
   Posted 2/25/2018 2:07 AM (GMT -6)   
I had it all over for years, started in my neck and gradually spread everywhere...what a relief for that to be mostly over. My Dr assumed it was lyme, we never really know though.

Part of the cause was also Candida. Best thing about candida is the simple, cheap, accurate antibody testing that any regular Dr and lab can do.
Had initial lyme symptoms late 80's, then again and with bullseye early 90's. Ended ABX for Lyme in 2015. Rebuilding / fine tuning / fixing muscles since then; member "10 Percenters Lyme Club". What an adventure this has been. Hashimotos adds to the enjoyment.

Spanish
Regular Member


Date Joined Sep 2017
Total Posts : 146
   Posted 2/25/2018 2:19 AM (GMT -6)   
I was going to post about this exact same problem, I started plaquenil to help with this just this week and symptoms seem to be getting worse everyday. Does anyone know if it is normal for this to get worse with starting treatment.

I have already been taking mino for a few months but this hasnt helped the aches

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33798
   Posted 2/25/2018 3:05 AM (GMT -6)   
Spanish said...
I was going to post about this exact same problem, I started plaquenil to help with this just this week and symptoms seem to be getting worse everyday. Does anyone know if it is normal for this to get worse with starting treatment.

I have already been taking mino for a few months but this hasnt helped the aches


Yes, symptoms can get worse with starting treatment....or changing treatment.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 1988
   Posted 2/25/2018 9:47 AM (GMT -6)   
astroman said...
I had it all over for years, started in my neck and gradually spread everywhere...what a relief for that to be mostly over. My Dr assumed it was lyme, we never really know though.

Part of the cause was also Candida. Best thing about candida is the simple, cheap, accurate antibody testing that any regular Dr and lab can do.


I had the candida antibody test at the end of November. It was negative. I know I do have candida in my GI tract. I had an awful die off reaction the day after taking just one capsule of S. boullardii in early November. I haven't taken one since. I was on 7 days of abx in December, and after that my sugar cravings increased. I need to change my diet, but for some reason it seems to be the hardest thing in the world to do. I did better for a few days and then failed again.

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 1988
   Posted 2/25/2018 10:28 AM (GMT -6)   
astroman said...
I had it all over for years, started in my neck and gradually spread everywhere...what a relief for that to be mostly over. My Dr assumed it was lyme, we never really know though.


astroman,

Did you ever treat bartonella? I've wanted to ask you about that, as most of the symptoms you talk about relate to muscles and tendons. I know I've read that bartonella can cause symptoms in those areas.

NorCal
New Member


Date Joined Nov 2017
Total Posts : 16
   Posted 2/25/2018 10:56 AM (GMT -6)   
Spanish,

My experience is that symptoms have become more intense/worse since I began herb/supplement treatment 2 years ago. At first I was hopeful it was a herx, but since it was consistently worse and not cyclical I'm not really sure what that means, Immune reaction? I'm on abx now and things have stabilized at a low health bar , but not improved. I feeling like I need to change treatment up again although not sure the direction.

It's hard to move forward on this path when the treatments doesn't seem to add benefit, makes me feel like I'm missing the target
Best,

Jon

Symptoms started 2001; misdiagnosed for years. CDC Bb diagnosed in 2016. Hashimoto 2017. Grew up near Cape Cod, MA

Started treatment in 2016
Buhner's protocol, lots of supplements, paleo diet 2016-17 - no noticeable pain relief benefits
Doxy/Plaquenil/Rifampin/ Pulsing Tindamax Nov 17- present - No noticeable benefit

astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 5081
   Posted 2/25/2018 12:29 PM (GMT -6)   
WalkingbyFaith-

Since my stiffness started in the neck, went down to the spine, then outward my llmd was thinking lyme. I've been on five abx as a shotgun approach, none were rifampin though. I did do some HH tea for a short time while I was herxing on ABX. If I currently had bart I would think I would be getting worse, not better (?). I was negative on the bart tests that other locals were positive on. If that Galaxy lab bart teat was not so spendy, I would have done it.

My situation was/is a little more complicated than most peoples since a lot of my stiffness beyond my neck was also from many impact injuries that didnt heal correctly years (90's) ago when I was more symptomatic.

My half arse plan is to first continue healing my gut and those injuries/scar tissue with my manual protocol which has been effective so far. At a certain point I might try Houttuynia tea by itself. I'm in no hurry to try any ABX again, due to candida loving my whole body.

Even before my major symptoms flair following the bullseye years ago, I was never in perfect health. I have some problematic genes to add to this puzzle.
Had initial lyme symptoms late 80's, then again and with bullseye early 90's. Ended ABX for Lyme in 2015. Rebuilding / fine tuning / fixing muscles since then; member "10 Percenters Lyme Club". What an adventure this has been. Hashimotos adds to the enjoyment.
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