New to Forum - Trying to diagnose possible Co's

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Xabian
Regular Member


Date Joined Feb 2018
Total Posts : 50
   Posted 2/24/2018 7:17 PM (GMT -6)   
Hi all. I've experienced neuro-symptoms as well as a few physical symptoms from the tender age of 5. Over the last 2 years I have developed harsh symptoms of extreme fatigue, muscle twitching, ringing in ear, inflamed throat with no pain. I tested positive for Lyme through CDC Western Blot (fortunate I know). I suspect to have had Lyme my whole life. Have not tested CD-57 levels. I also suspect that being exposed to mold for over a year has weakened my immune system to let the borrelia thrive. I do know I also have reactivated EBV. Just took IGenex co-infection panel and awaiting results. I also believe I have passed some infection to my partner from kissing. Stange I know. She has been experiencing muscle twitching/crawling sensation/swelling in the knee. I suspect a co-infection. Doesn't it take Lyme some time to cause nerve problems? I also have a rash of tiny red bumps (looks like small zits without heads). Can this be caused by bart? Currently have been oil pulling and doing a parasite cleanse before I try the natural route of Buhners to clear out any parasites for borellia to hide in. Seems to be reducing swelling of my tonsils. My throat still looks inflamed and has little red cysts in back of throat. EBV maybe, strepp? Who knows? Also developed small cysts after taking a 3 week course of Doxy prescribed by my GP. Did not do a thing. Just probably cause borrelia to form into cysts. Any help and info will be appreciated. Currently reading Buhner's book "Healing Lyme". More appealed to try natural route before using long term/multiple antibiotics. We'll see smile I've included a pic with the red bumps.
Usually I have a lot more than what I am showing. And they mainly group on my forehead.
VIEW IMAGE

Post Edited (Xabian) : 2/24/2018 5:52:16 PM (GMT-7)


astroman
Veteran Member


Date Joined Mar 2014
Total Posts : 5081
   Posted 2/25/2018 1:53 AM (GMT -6)   
Welcome to the club. Its a little slow here on weekends.

As far as mold and lyme, c4a and c3a would be better to know than cd57.

That said, I've had used all of those. CD57 is said to be unreliable in some people, but thats possibly from a genetic T-cell gene defect, as that test also measures those. What turns certain genes on and off is still in research discovery mode. We know infections can express them for a long time.

I'm surprised a GP will work with you on this stuff, usually they refuse, and are clueless. Thats why most of us go to a LLMD.
Had initial lyme symptoms late 80's, then again and with bullseye early 90's. Ended ABX for Lyme in 2015. Rebuilding / fine tuning / fixing muscles since then; member "10 Percenters Lyme Club". What an adventure this has been. Hashimotos adds to the enjoyment.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33798
   Posted 2/25/2018 3:03 AM (GMT -6)   
Hi, Welcome Xabian

Astro has given you some info on the mold testing, and the cd57 test.

You asked about it taking some time for lyme to cause nerve problems.


My very first symptom was radiculitis. Excruciating pain shooting up my neck from the left shoulder blade area...and no feeling in my left arm and hand.
No symptoms prior.

There are a lot of members here who are taking Buhner's herbs...so if you have questions...don't hesitate to ask in a post.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Aerose91
Veteran Member


Date Joined Feb 2016
Total Posts : 538
   Posted 2/25/2018 1:06 PM (GMT -6)   
Knee pain and muscle twitches screams bartonella to me. I believe a hallmark of bartonella knee pain is only unilateral pain, it's typically not both joints at once

Xabian
Regular Member


Date Joined Feb 2018
Total Posts : 50
   Posted 2/25/2018 1:30 PM (GMT -6)   
astroman said...
Welcome to the club. Its a little slow here on weekends.

As far as mold and lyme, c4a and c3a would be better to know than cd57.

That said, I've had used all of those. CD57 is said to be unreliable in some people, but thats possibly from a genetic T-cell gene defect, as that test also measures those. What turns certain genes on and off is still in research discovery mode. We know infections can express them for a long time.

I'm surprised a GP will work with you on this stuff, usually they refuse, and are clueless. Thats why most of us go to a LLMD.


Thanks for the quick and informative response. Did not know about c4a and c3a test. Was looking at Real Times Lab urine test for mycotoxin. Insurance doesn't cover Real Times Lab test, but does cover C4a and c3a. Apparently more reliable testing for mold as well. Thanks a bunch.

Girlie said...
Hi, Welcome Xabian

Astro has given you some info on the mold testing, and the cd57 test.

You asked about it taking some time for lyme to cause nerve problems.


My very first symptom was radiculitis. Excruciating pain shooting up my neck from the left shoulder blade area...and no feeling in my left arm and hand.
No symptoms prior.

There are a lot of members here who are taking Buhner's herbs...so if you have questions...don't hesitate to ask in a post.


Thank you Girlie. Good to know. Luckily she tested negative for Lyme through Igenex. I'm suspecting Bart.

Aerose91 said...
Knee pain and muscle twitches screams bartonella to me. I believe a hallmark of bartonella knee pain is only unilateral pain, it's typically not both joints at once


I appreciate your input. It is what I was suspecting as well.

Post Edited (Xabian) : 2/25/2018 11:36:52 AM (GMT-7)


WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 1988
   Posted 2/25/2018 2:24 PM (GMT -6)   
Bartonella - yes.

Get Buhner's bartonella book, too.

In Buhner's bartonella book, he does say that bartonella has been found in saliva, so I would say yeah it's possible.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33798
   Posted 2/25/2018 2:58 PM (GMT -6)   
"Thank you Girlie. Good to know. Luckily she tested negative for Lyme through Igenex. I'm suspecting Bart."

Don't rule out lyme because of a negative lyme test via Igenex.
Testing can not be relied on.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Xabian
Regular Member


Date Joined Feb 2018
Total Posts : 50
   Posted 2/25/2018 4:18 PM (GMT -6)   
Girlie said...
"Thank you Girlie. Good to know. Luckily she tested negative for Lyme through Igenex. I'm suspecting Bart."

Don't rule out lyme because of a negative lyme test via Igenex.
Testing can not be relied on.


Ok good to know. She also took a 3 week course of Doxy after first receiving symptoms and took the IGenex test shortly after. Could possibly be reason came out negative. Good thing is though all of her symptoms subsided except for inflamed throat. No pain though confused Just need to keep an eye out if symptoms come back.

bluelyme
Veteran Member


Date Joined Nov 2015
Total Posts : 4893
   Posted 2/26/2018 2:46 AM (GMT -6)   
i just confirmed co infections with a simple microscope and and a simple giemsa stain...bart babs and erlichia can be seen easily

Spanish
Regular Member


Date Joined Sep 2017
Total Posts : 146
   Posted 2/26/2018 9:28 AM (GMT -6)   
Bluelyme, I have heard you mention this in a couple of posts. I dont understand how it is so easy to see yet the testing is so unreliable?
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