Dapsone anyone

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tcoach1
Regular Member


Date Joined Dec 2014
Total Posts : 258
   Posted 2/27/2018 8:40 AM (GMT -6)   
I am taking Dapsone, with tindemax and clarimyocin (not sure of spelling) now. Stress outbreak as usual has caused both ankles to hurt. No swelling butrally hurts. Has anyone here used dapsone?

NicHostetler
Veteran Member


Date Joined Mar 2017
Total Posts : 647
   Posted 2/27/2018 9:26 AM (GMT -6)   
I know LymeSick is and the last time he posted he said he wasn't feeling well. This was about a week after he started I believe.

Are you making sure your iron levels are ok throughout treatment?

We are all curious to know how this works for people so please let us know if you see improvement!
Very sick starting around 07/2016
Started treatment 03/2017
Bixain & Cefdinir - 3 months - plateaued
Then Biaxin & Minocycline - 3 months - did not improve
Tinidazole - 500MG 2x a day - 2 weeks
Now taking:
Mepron 5mL 2x a day
Zithromax
Nystatin
Cats Claw - 30 drops 2x a day
Gou Teng - 30 drops 2x a day
CSA - 40 drops 2x a day
Japanese Knotweed - 40 drops 2x a day

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33957
   Posted 2/27/2018 12:56 PM (GMT -6)   
bumping for more views - people taking Dapsone.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

LymeSick 🌟
Regular Member


Date Joined Aug 2017
Total Posts : 234
   Posted 2/27/2018 1:43 PM (GMT -6)   
Thank you for remembering me NicHostetler.


I have picked it up from the pharmacy but have been feeling too bad to actually take it.


I'm going to take it very soon though. Will keep everyone updated.

Rikky1
Veteran Member


Date Joined Jun 2015
Total Posts : 2925
   Posted 2/27/2018 2:45 PM (GMT -6)   
i was supposed to start dapsone yesterday along with daraprim but i'm taking a week off and will start monday. i'm sure its going to kick my butt ;o)

tcoach1
Regular Member


Date Joined Dec 2014
Total Posts : 258
   Posted 2/27/2018 5:07 PM (GMT -6)   
Yes I am taking my first blood test tomorrow. This apparently is strong stuff and can cause anemia

bluelyme
Veteran Member


Date Joined Nov 2015
Total Posts : 4915
   Posted 2/28/2018 5:45 AM (GMT -6)   
my friend had a bad delayed sulfa like reaction after being on it for a few months setbacks worse than gains reported ...one of dr h patients did small dose for a bit the moved to rife ..i had script filled and yet thought bee venom to be safer and more effective for me ....

LymeSick 🌟
Regular Member


Date Joined Aug 2017
Total Posts : 234
   Posted 3/1/2018 9:29 PM (GMT -6)   
Ok guys, I think I'm starting next week, just wanted to let you all know.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33957
   Posted 3/1/2018 9:32 PM (GMT -6)   
Good luck.....and please report back how it goes!!!
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Rikky1
Veteran Member


Date Joined Jun 2015
Total Posts : 2925
   Posted 3/1/2018 9:36 PM (GMT -6)   
bluelyme i've been on bactrim for over 18 months. though its in the sulfonamides class and dapsone is a sulfone they are distinct but similar so hopefully i'll be fine on it.

Lapis_29
Veteran Member


Date Joined Sep 2017
Total Posts : 882
   Posted 3/1/2018 11:00 PM (GMT -6)   
for the ankles, try dmso, its a fantastic anti inflammatory and pain reliever, works great for joint and tendons.
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