So the first couple of months on antibiotics were pretty tough for us. Are you able to incorporate some detoxing into his care? I guess it might be hard if he is in hospital. Is he taking probiotics?
Have you heard of Stephen Buhner the herbalist? Maybe you could look for his lyme and Bartonella books at the library? Those books might be helpful to explain what is going on for your son.
I think japanese knotweed (trans reservatrol) and gou teng were very good for my son to decrease the cytokine cascade and brain "inflammation".
Try to stay the course and stay positive
. Can you keep a symptom checklist? Start from head to toe, with symptoms and severity -like -ice pick head ache left temporal, 7/10 , 2 hours
I think this makes it easier for you to explain symptoms to your doctor and is very encouraging to watch them decrease.
15 yr old son sick no school Oct/15 Dx July/16
Migraines extreme brain fog anxiety/ocd insomnia extreme joint pain neuropathy stomach pain
Aug 3/16 Doxy Zithro BB Bab 2
Oct 5 Zithro and rifampin, Bab 2 anxiety/panic attacks -quit rif
Dec Zithro, Artesunate and finishing Bab 2 Mid Dec add japanese knotweed,gou teng
Feb 2017 80% normal back to school, added houttuynia