Hi Everyone, new here looking for suggestions for my DS15. He has recently be dxd by an llmd with Lyme, was neg on the CDC test, but has several known tick bites. He also had high myco levels. Problem is most of his symptoms are psych issues and he is currently inpatient for the 6th time in a year. His llmd has been treating him with abx for two months now, but I just found out yesterday from the inpatient doc that the llmd doesn't think his psychosis is related to Lyme. So now the theory is that he has some unknown psychiatric disorder and lyme.
This past year we were treating just for psych symptoms. He has been dxd with ADHD, anxiety, depression, psychosis and bipolar. He has intrusive thoughts, daily headaches, neck and back pain, some tremors, loss of interest in everything, trouble sleeping and is unable to focus. He hasn't been in school in a year now. Treatment has never been effective and no one really knows what is going on. When we stumbled on lyme I thought we were on the right path. I am so devastated that this doc doesn't think this is all related. And just because all that isn't enough, he has substance abuse issues.
I often feel like giving up, but how can I just leave him to a lifetime of mental health issues and hospitalizations? He often talks of overdosing and believes that he will die from that. I left the meeting yesterday with him holding back tears and mad at me for being in the hospital. I just need something to go right for him, but I can't seem to get him the help he needs. Anyone have thoughts or suggestions?
You might want to consider getting a second opinion from another LLMD. There is one that is a Pediatric LLMD in Connecticut - not sure if he's taking any new patients.
There's also a Pediatric LLMD in the Jemsek Clinic now.
I'm concerned that his LLMD doesn't think his psychosis is from lyme. What????
Please email me if you want the contact info for the two LLMD's I mentioned.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi