A Lyme Family Horror Story - My Life

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Sep 2014
Total Posts : 166
   Posted 2/28/2018 12:20 AM (GMT -6)   
This is a very hard message for me to write. Lyme and company have been in my family and in my wife's family for generations. These European lyme diseases have affected the minds of about half of the people in both our families. There have been suicides, mental illness, alzheimer, schizofrenia, etc. When one looks at our respective family trees, we look lie a family from hell. Dear wife and I are the first in our family to realize what this bad element in our makeup is. It is passed from mother to offspring over the generations, and we both are just links in this ugly chain of generations of lyme and company.

How has this lyme family epedemic manifested itself in our immediate family? We have now 2 adult kids ages 44 and 40. We believe that we have passed our lyme on to both of these kids. Both our kids have estranged themselves from us and there has been no meaningful contact with either one for the last 15 to 20 years. Our kids think we are deranged in fighting this lyme battle and they think that this is a bunch of rubbish. And we look at our kids and we feel badly because we both now realize that they are the way they are with lyme passed on to them via placenta when they were born.

Daughter has gone onto this lyme discussion group and she has figured out who I am - her dad. She has written some very nasty email letters to my dear wife telling her that dear wife is a quack. That wife is nuts, and that I have bought into this crazyness called lyme, and she says that the police should be looking into what we are doing. In emails to wife, she openly tells wife that wife will go to jail if wife continues advising me on working on cleansing my body of lyme. The fact that my knee seems to be destroyed for now by lyme is just proof to our daughter how deranged dear wife is and she is telling these opinions about us to further family members. Families are now totally split and there is no solution. Son takes part in this too. At Christmas time we dropped off gifts and toys for the grandkids, as we do every year, and son as every year calls us to have the police come to us with threats of peace bonds. Our grandchildren are afraid of us because of what their parents have told them about us. Wife and I are heartsick and it is very difficult to try and think positive about our situation. I am so disappointed with what daughter has done in coming onto this group and used my information that i posted about myself as a battering ram to have another go at dear wife. I cannot imagine a worse situation as both our offspring seem to be in unison as to how to relate to us. I cannot imagine how we conceived such offspring who do not care about their parents one iota. We supported both of them till their early and mid twenties and there was nothing but love, but now there is nothing, just nothing left.
Quote our daughter, "If you continue the way you are, i will not be around to wipe your asses when you are old and all alone." I am devastated by this turn of our family lyme story. Can anyone relate to this horror show? xfmlg

Regular Member

Date Joined May 2017
Total Posts : 446
   Posted 2/28/2018 8:45 AM (GMT -6)   

im very sorry your experiencing this kind of disrespect from your own children. Reading this breaks my heart!! i have a few questions for you:

1. Do your children have any signs/symptoms that they have lyme disease?
2. With all that family history of illnesses, did any of them actually test positive for lyme disease? or are you just assuming they have lyme and linking it to the alzheimers and such?

I dont have any experience yet because my kids are almost 4 and almost 2 and i watch them everyday for possible signs...i pray daily that i didnt pass it to them. Ill feel horrible on top of already feeling terrible about not being the mom and wife i once was. I mean dont get me wrong im way better than i was a year ago, but i still struggle from day to day.
im praying for you and your wife that one day you guys can reconcile and have a relationship with both your kids and grandkids....try keeping your head up


Forum Moderator

Date Joined Sep 2016
Total Posts : 2302
   Posted 2/28/2018 2:36 PM (GMT -6)   

Regular Member

Date Joined Sep 2014
Total Posts : 166
   Posted 2/28/2018 3:24 PM (GMT -6)   
I wrote a long reply to your note, Maria, and maybe it is good that somehow i lost that note and it has not appeared on this string.

The long and short of it is that no one else in our families has been tested for lyme. Because wife and I are now committed to helping bring lime awareness into the open, our kids and wife's sister have all decided that we are nuts and they have cast us out as lepers in the olden days.

As for our parents, my mom had many of the symptoms of lyme as did my wife's mom. My mom's symptoms were more physical and m-in law's were more mental. I could write on and on re these subjects. My unpublished reply has tired me out and i do not want to repeat myself. xfmlg

Elite Member

Date Joined May 2007
Total Posts : 36310
   Posted 2/28/2018 4:18 PM (GMT -6)   
My deepest sympathies, Xfmlg. While I have not had the extreme situation you have, I too have dealt with the complete disassociation from family members because of these infections.

I have one daughter that listens to me, but 3 kids that have no desire to speak of this or to me about these infections - to the point that they never ask how I'm doing. But, as I said, I don't get attacked outright - although word always finds it's way back to me that they think I'm nuts and I'm doing myself more harm than good. It's shame they can't feel what I live with daily.

And, once I started being on Lyme forums, they all believe that my wonderful hubby, who has supported me in many ways, has enabled me to indulge in this 'fantasy' of mine that I have these infections that have caused misery for the last 45 years for me - and yet, I have pushed back some and asked what they believe it could be then, and of course, they don't have any answers either. No easy answers here, that's for sure.

Again, my deepest sympathies to you and your dear wife.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/

Forum Moderator

Date Joined May 2014
Total Posts : 33957
   Posted 2/28/2018 7:46 PM (GMT -6)   
xmflg - I remember you posting about your family before...and sad to hear that nothing has changed with them.

I hope that one day soon, the will come around and be a part of your lives.

So sorry.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, August 21, 2018 7:26 AM (GMT -6)
There are a total of 2,995,038 posts in 328,189 threads.
View Active Threads

Who's Online
This forum has 161314 registered members. Please welcome our newest member, Smith Bella.
264 Guest(s), 7 Registered Member(s) are currently online.  Details
GreenBeans, physedgirl09, Bohemond, KitKat880, Markus3326, Going for brachy, iPoop