My deepest sympathies, Xfmlg. While I have not had the extreme situation you have, I too have dealt with the complete disassociation from family members because of these infections.
I have one daughter that listens to me, but 3 kids that have no desire to speak of this or to me about
these infections - to the point that they never ask how I'm doing. But, as I said, I don't get attacked outright - although word always finds it's way back to me that they think I'm nuts and I'm doing myself more harm than good. It's shame they can't feel what I live with daily.
And, once I started being on Lyme forums, they all believe that my wonderful hubby, who has supported me in many ways, has enabled me to indulge in this 'fantasy' of mine that I have these infections that have caused misery for the last 45 years for me - and yet, I have pushed back some and asked what they believe it could be then, and of course, they don't have any answers either. No easy answers here, that's for sure.
Again, my deepest sympathies to you and your dear wife.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12www.healingwell.com/community/default.aspx?f=30&m=2977364
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New set of infections 8/2014 - still treating.
Come visit me: dogwoodtraditionals.freeforums.net/