Feeling Terrible...Babesia Treatment

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NicHostetler
Veteran Member


Date Joined Mar 2017
Total Posts : 622
   Posted 2/28/2018 7:25 AM (GMT -6)   
So as a lot of you know from my other posts I restarted Mepron/Zithromax after taking a month off for travel (before that I did two months of the combo). I am now two weeks into this combo again and am feeling awful.

Last night I went to bed at 8PM. I could barely get through my work day because I was SO exhausted, all I wanted to do is sleep.

Now this morning I just feel so weak like I can barely lift my arms and legs. I also feel pretty spacey/dizzy (lightheaded).

I guess I have a little air huger but most my symptoms right now feel like bart - twitching, foot pain, tingling in my face.

Does this sound like a true typical babesia herx or is the exhaustion and lightheadedness just side effects from the meds?

If you have had successful babesia treatment, how long did it take for you to make a breakthrough?

tickbite666
Veteran Member


Date Joined Mar 2014
Total Posts : 1604
   Posted 2/28/2018 8:52 AM (GMT -6)   
Sound like a typical Babs herx. Weeks 4 thru 9 were the worse for me after starting Mepron/Zith while rotating thru Omnicef, Augmentin and Suprax to change things up.

After week 9 sx did gradually improve, and after 4.5 months I changed into a Zith, Doxy, Rifampin protocol for Bart but had to stop for a few weeks for elevated AST/ALT levels.

It's a battle. Biggest break thru for me was going back and hitting Bart again.

BabsBunny
Veteran Member


Date Joined Mar 2017
Total Posts : 530
   Posted 2/28/2018 9:25 AM (GMT -6)   
Exactly like Babs. I have lessened the effects a bit by going very slow, starting with smaller doses and waiting 5-7 days to increase. But I'm still heavily reliant on anxiety meds and a nighttime ritual to get me to sleep. This round seems to be going to my head (depression, anxiety) rather than my body (though fatigue and muscle aches are definitely there, just more mild so far).
Lyme, Babesia, Bartonella. Symptoms began 5/2016, didn't start treatment until 9/2016. Slow but steady recovery.

*twitch twitch*

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32656
   Posted 2/28/2018 12:26 PM (GMT -6)   
bump for more responses.


Nic - I've had babesia treatment - but not successful ....at it again - two times a charm (hopefully)
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

NicHostetler
Veteran Member


Date Joined Mar 2017
Total Posts : 622
   Posted 2/28/2018 3:37 PM (GMT -6)   
Thanks for the bump Girlie - how long have you been back on treatment? Are you doing ok?

BabsBunny - I feel a lot of muscle pain around my shoulders and shoulder blades. I am not really depressed, but I am veryyyy moody and anxious feeling. My head also feels like it's going to explode which is how it felt the last time I was on it..

tickbite666 - since I did two months of treatment before I took a month off, I hope that it doesn't take 9 weeks to start turning the corner.. hopefully it's a little quicker since I have 8 weeks of treatment under my belt.. I think this herx came on quicker than it did when I first started. Like you said it was around week 4 when things really got bad the first round. Now since restarting I'm only on my second week and its bad.

I hope to hit bartonella after a few months of this. Especially if I don't see any improvement. If I do, then I will continue probably for 5 or 6 months.

Rikky1
Veteran Member


Date Joined Jun 2015
Total Posts : 2860
   Posted 2/28/2018 3:48 PM (GMT -6)   
my wife has been treating babesia with malarone, bactrim, ceftin, super art and enula since last may and is still overtaken with crazy exhaustion. so if you think you have it bad think about her!

i think quick rotations between bart and babs treatment versus trying to knock one out entirely is up to the LLMD and his approach. there is something alluring about the former since you want to get at stuff that might be causing your symptoms.

nick you have no idea how long it's going to take to turn a corner. everyone is different. i did 9 months of babs treatment in 2015 and couldn't eradicate it. i just finished a year of it and it looks to be dead and buried.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32656
   Posted 2/28/2018 6:49 PM (GMT -6)   
NicHostetler said...
Thanks for the bump Girlie - how long have you been back on treatment? Are you doing ok?

BabsBunny - I feel a lot of muscle pain around my shoulders and shoulder blades. I am not really depressed, but I am veryyyy moody and anxious feeling. My head also feels like it's going to explode which is how it felt the last time I was on it..

tickbite666 - since I did two months of treatment before I took a month off, I hope that it doesn't take 9 weeks to start turning the corner.. hopefully it's a little quicker since I have 8 weeks of treatment under my belt.. I think this herx came on quicker than it did when I first started. Like you said it was around week 4 when things really got bad the first round. Now since restarting I'm only on my second week and its bad.

I hope to hit bartonella after a few months of this. Especially if I don't see any improvement. If I do, then I will continue probably for 5 or 6 months.


I just started on Monday...
Actually I don't know if the first go at Babesia wasn't successful. Don't know if the leftover symptoms are babs or bart.
The Practioner has put me on babesia treatment...anyway...
So we'll see how it affects me this time. It's double the dose of Mepron...holy moly.... smhair
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

NicHostetler
Veteran Member


Date Joined Mar 2017
Total Posts : 622
   Posted 3/1/2018 7:10 AM (GMT -6)   
Rikky1 said...
my wife has been treating babesia with malarone, bactrim, ceftin, super art and enula since last may and is still overtaken with crazy exhaustion. so if you think you have it bad think about her!

i think quick rotations between bart and babs treatment versus trying to knock one out entirely is up to the LLMD and his approach. there is something alluring about the former since you want to get at stuff that might be causing your symptoms.

nick you have no idea how long it's going to take to turn a corner. everyone is different. i did 9 months of babs treatment in 2015 and couldn't eradicate it. i just finished a year of it and it looks to be dead and buried.


I understand that no one really knows the duration and that everyone's treatment is different. I am just wanting to hear everyone's experiences to get an idea of what it may be. Most people are seem to say around 8-9 weeks you start to feel better. Some say much longer like you and your wife. I hope she turns a corner soon..

NicHostetler
Veteran Member


Date Joined Mar 2017
Total Posts : 622
   Posted 3/1/2018 8:15 AM (GMT -6)   
Girlie said...
NicHostetler said...
Thanks for the bump Girlie - how long have you been back on treatment? Are you doing ok?

BabsBunny - I feel a lot of muscle pain around my shoulders and shoulder blades. I am not really depressed, but I am veryyyy moody and anxious feeling. My head also feels like it's going to explode which is how it felt the last time I was on it..

tickbite666 - since I did two months of treatment before I took a month off, I hope that it doesn't take 9 weeks to start turning the corner.. hopefully it's a little quicker since I have 8 weeks of treatment under my belt.. I think this herx came on quicker than it did when I first started. Like you said it was around week 4 when things really got bad the first round. Now since restarting I'm only on my second week and its bad.

I hope to hit bartonella after a few months of this. Especially if I don't see any improvement. If I do, then I will continue probably for 5 or 6 months.


I just started on Monday...
Actually I don't know if the first go at Babesia wasn't successful. Don't know if the leftover symptoms are babs or bart.
The Practioner has put me on babesia treatment...anyway...
So we'll see how it affects me this time. It's double the dose of Mepron...holy moly.... smhair


Oh geesh that sounds rough!! I think I read in another post that you had some tendon pain behind your knee? I am getting that now behind my right knee. Maybe I am thinking about someone else turn

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32656
   Posted 3/1/2018 1:10 PM (GMT -6)   
NicHostetler said...
Girlie said...
NicHostetler said...
Thanks for the bump Girlie - how long have you been back on treatment? Are you doing ok?

BabsBunny - I feel a lot of muscle pain around my shoulders and shoulder blades. I am not really depressed, but I am veryyyy moody and anxious feeling. My head also feels like it's going to explode which is how it felt the last time I was on it..

tickbite666 - since I did two months of treatment before I took a month off, I hope that it doesn't take 9 weeks to start turning the corner.. hopefully it's a little quicker since I have 8 weeks of treatment under my belt.. I think this herx came on quicker than it did when I first started. Like you said it was around week 4 when things really got bad the first round. Now since restarting I'm only on my second week and its bad.

I hope to hit bartonella after a few months of this. Especially if I don't see any improvement. If I do, then I will continue probably for 5 or 6 months.


I just started on Monday...
Actually I don't know if the first go at Babesia wasn't successful. Don't know if the leftover symptoms are babs or bart.
The Practioner has put me on babesia treatment...anyway...
So we'll see how it affects me this time. It's double the dose of Mepron...holy moly.... smhair


Oh geesh that sounds rough!! I think I read in another post that you had some tendon pain behind your knee? I am getting that now behind my right knee. Maybe I am thinking about someone else turn


Actually, I should have said that my head pressure was somewhat better after my first 'go-round' at Babs..and my tinnitus is pretty much gone...I have to concentrate to hear/feel it now in my right ear...and sometimes it's faintly there.
i just didn't rid of all my symptoms...unfortunately.

I didn't have tendon pain behind my knee...but I had Baker's cysts. how about that? lol.
I also had some pain on the knee itself (actually both knees) - does that count?...hehe
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

NicHostetler
Veteran Member


Date Joined Mar 2017
Total Posts : 622
   Posted 3/1/2018 1:40 PM (GMT -6)   
Knee region.. hmm.. we can count that. lol!

I am glad you resolved some symptoms. Are you going to take Rifampin for bart at some point? I wonder if that will help with the rest of your symptoms.

Did you ever have a dizzy/off balance feeling? I cant stand that symptom and brain fog that I have.. really hoping the babesia treatment stops it. Could be bart too I guess..
Very sick starting around 07/2016
Started treatment 03/2017
Bixain & Cefdinir - 3 months - plateaued
Then Biaxin & Minocycline - 3 months - did not improve
Tinidazole - 500MG 2x a day - 2 weeks
Now taking:
Mepron 5mL 2x a day
Zithromax
Nystatin
Cats Claw - 30 drops 2x a day
Gou Teng - 30 drops 2x a day
CSA - 40 drops 2x a day
Japanese Knotweed - 40 drops 2x a day

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32656
   Posted 3/1/2018 2:20 PM (GMT -6)   
NicHostetler said...
Knee region.. hmm.. we can count that. lol!

I am glad you resolved some symptoms. Are you going to take Rifampin for bart at some point? I wonder if that will help with the rest of your symptoms.

Did you ever have a dizzy/off balance feeling? I cant stand that symptom and brain fog that I have.. really hoping the babesia treatment stops it. Could be bart too I guess..


I did do bart treatment for over a year...and lost some symptoms...but not all.

I do believe my new LL Practitioner will be adding in bart treatment. I think she will want to add Cipro to my mepron...but I'm not going to take it...that's where I draw the line. I don't want that drug with the black box warning.
I'm already taking Bactrim...which worries me some. But, I won't do the Cipro or levaquin. Not at this point, anyway.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 1682
   Posted 3/1/2018 5:55 PM (GMT -6)   
Hmmm. This is all very interesting to me. So you all are saying fatigue/exhaustion and muscle pain is from babesia.

I've had significantly increased symptoms since coming off 7 days of Augmentin 2 months ago. Shortly before that I had added bidens to my protocol. I kept thinking I was having a bad bart herx or flare, as my foot pain, joint and muscle stiffness came back and got a lot worse along with skin symptoms and some other things.

I also have had a lot of muscle soreness, especially in my shoulders and the top of my forearm. I thought it was from bart and was connected to tendon symptoms. Some mornings I'd wake up feeling like I'd been swinging baseball bats all night in my sleep. I also had much more weakness and fatigue than I usually have. I didn't think I was having any babesia symptoms since I haven't had any night sweats or noticeable air hunger since started treatment. It's been over a year since I've had either of those.

Maybe their is some babesia and the Bidens is hitting it.

I guess I'll just keep taking all my herbs and keep treating all 3 B's simultaneously.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32656
   Posted 3/1/2018 6:07 PM (GMT -6)   
NicHostetler said...
Knee region.. hmm.. we can count that. lol!

I am glad you resolved some symptoms. Are you going to take Rifampin for bart at some point? I wonder if that will help with the rest of your symptoms.

Did you ever have a dizzy/off balance feeling? I cant stand that symptom and brain fog that I have.. really hoping the babesia treatment stops it. Could be bart too I guess..

Didn’t answer your question - I have the off balance - but more than just a feeling - I am off balance and sway when I’m standing in one spot.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32656
   Posted 3/1/2018 6:11 PM (GMT -6)   
WalkingbyFaith said...
Hmmm. This is all very interesting to me. So you all are saying fatigue/exhaustion and muscle pain is from babesia.

I've had significantly increased symptoms since coming off 7 days of Augmentin 2 months ago. Shortly before that I had added bidens to my protocol. I kept thinking I was having a bad bart herx or flare, as my foot pain, joint and muscle stiffness came back and got a lot worse along with skin symptoms and some other things.

I also have had a lot of muscle soreness, especially in my shoulders and the top of my forearm. I thought it was from bart and was connected to tendon symptoms. Some mornings I'd wake up feeling like I'd been swinging baseball bats all night in my sleep. I also had much more weakness and fatigue than I usually have. I didn't think I was having any babesia symptoms since I haven't had any night sweats or noticeable air hunger since started treatment. It's been over a year since I've had either of those.

Maybe their is some babesia and the Bidens is hitting it.

I guess I'll just keep taking all my herbs and keep treating all 3 B's simultaneously.



Not me.
Fatigue and muscle pain can be Lyme too.

I’ve not had fatigue - well maybe minor - since I’m not as energetic as I used to be but that’s also due to pain and other symptoms that dampen my spirit.

I had muscle pain briefly - went away quickly with Lyme treatment.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32656
   Posted 3/1/2018 6:17 PM (GMT -6)   
WBF - I think this is why Dr J treats all three B’s.

They all interact and some can be low symptomatic or even asymptomatic.

For me - it would have been much quicker dealing with all three B’s within the first year or two of treatment than prolonging Lyme and Bart treatment.
Yes Babesia treatment can be harsh - BUT so can prolonging treatment and having Babs run rampant.
And prolonged treatment is hard on our heart and soul. cry
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

WalkingbyFaith
Veteran Member


Date Joined Aug 2017
Total Posts : 1682
   Posted 3/1/2018 7:07 PM (GMT -6)   
Girlie said...
WBF - I think this is why Dr J treats all three B’s.

They all interact and some can be low symptomatic or even asymptomatic.

For me - it would have been much quicker dealing with all three B’s within the first year or two of treatment than prolonging Lyme and Bart treatment.
Yes Babesia treatment can be harsh - BUT so can prolonging treatment and having Babs run rampant.
And prolonged treatment is hard on our heart and soul. cry


Thanks, Girlie. This is so helpful. Makes me feel like I'm doing something right. I'm glad I'm doing something to treat them all. I'll just keep paying attention to how I respond and the clues I find on here and adjust as I go along. I don't know what I would do without the good folks on this forum. There really is nothing like real life personal experience to help guide people through all this.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32656
   Posted 3/1/2018 7:54 PM (GMT -6)   
WalkingbyFaith said...
Girlie said...
WBF - I think this is why Dr J treats all three B’s.

They all interact and some can be low symptomatic or even asymptomatic.

For me - it would have been much quicker dealing with all three B’s within the first year or two of treatment than prolonging Lyme and Bart treatment.
Yes Babesia treatment can be harsh - BUT so can prolonging treatment and having Babs run rampant.
And prolonged treatment is hard on our heart and soul. cry


Thanks, Girlie. This is so helpful. Makes me feel like I'm doing something right. I'm glad I'm doing something to treat them all. I'll just keep paying attention to how I respond and the clues I find on here and adjust as I go along. I don't know what I would do without the good folks on this forum. There really is nothing like real life personal experience to help guide people through all this.


Ditto - we’ve got a great group here!

I’m second guessing my treatment and supplements almost on a daily basis.
It’s ridiculous
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
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