Need Help Finding LLMD Near Milwaukee

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Pauly198
New Member


Date Joined Feb 2018
Total Posts : 15
   Posted 2/28/2018 10:26 AM (GMT -6)   
Hi everyone,

I have been having a lot of strange symptoms lately and wanted to get your opinions on the matter. I'll try to make my story as short as possible. 2 months ago I was sick with the flu for a few days. I was starting to feel better the following week when all of a sudden I felt a numbing sensation come over the left side of my face. It felt like an anesthetic or novocaine shot at the dentist's office. Then a few minutes later, I had tingling in my left arm so I went to the ER. They thought it was a stroke so I did a CT scan. I stayed in the hospital for 2 nights and all of my tests (MRI, CT scan, Echo) were all normal. The neurologist thought this was due to migraines since I have had a history with bad headaches.

A day or so after leaving the hospital, I noticed that my vision was different. The closest thing I can find to what I am experiencing is "visual snow," where you see static everywhere 24/7. I also see after images occasionally. On top of the vision problems, the numbness in my face would come and go over the next month. Now it seems like the numbness is always there, it never really goes away. So after visiting 9 or 10 different doctors and trying different meds, I saw a Lyme doctor last week in the Chicago area to get a Western Blot done. Mind you, I don't live near a wooded area and I'm not quite convinced this is Lyme related, but I read that many people with LD seem to have visual snow as one of their symptoms. My results showed band 41 for IgG and IgM were abnormal. So again, the results cannot determine for sure if I have Lyme. Does anyone here have any advice? Should I go on to take the IGeneX test? I would love to see an honest and reputable LLMD in the Milwaukee/Chicago area. I was not entirely happy with the Chicago doctor's service. Thanks everyone!

goshawk
Veteran Member


Date Joined Sep 2016
Total Posts : 2123
   Posted 2/28/2018 1:34 PM (GMT -6)   
Hi and welcome I'm bumping your post up for more views,others will be along shortly. I apologize ,I'm at work, but I will follow up later when I get home. Take care, it does sound like Lyme and Co infections.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32672
   Posted 2/28/2018 2:01 PM (GMT -6)   
Sorry I missed your thread earlier.

Band 41 is the flagella (tail) of a spirochete. There are several spirochetes with flagellas - including Lyme. Others are syphillis, and dental and a few more.

I would do the Igenex - just the WB IgM and IgG (not the screening - IFA or Elisa)

It costs $250 total for both.

..oh, and Welcome to our community!

Also - yes, what you're experiencing could be lyme.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Pauly198
New Member


Date Joined Feb 2018
Total Posts : 15
   Posted 2/28/2018 8:51 PM (GMT 0)   
Thank you so much for the responses! I forgot to mention that the Western Blot was done through LabCorp. The doctor I saw wanted to charge over $400 for the Igenex test. I’m not sure what the test typically costs. I’d love to know if anyone had any positive experiences with doctors in my area!

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32672
   Posted 2/28/2018 2:58 PM (GMT -6)   
The Lyme WB IgM and IgG is $250.

You don't need the IFA or Elisa - they're just 'screening' tests and don't tell you much...just a negative or positive.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

goshawk
Veteran Member


Date Joined Sep 2016
Total Posts : 2123
   Posted 2/28/2018 4:04 PM (GMT -6)   
Hi again,

First I just want to say sorry that you are having these symptoms I'm glad you have joined us here and I think you will find our members to be helpful and supportive.

In order for other members to respond about recommendations for LLmd's in your area , you will need to enable your email in your profile.


You can also search at ilads.org/ilads_media/physician-referral/ for llmds.

We also encourage all new members to read our"New to lYme" start here thread at the top of the page.

It has useful and important information about Lyme, detoxing, teating, testing and more.

Take care and I wish you the best of healing, Jo

Pauly198
New Member


Date Joined Feb 2018
Total Posts : 15
   Posted 2/28/2018 11:16 PM (GMT 0)   
Thanks for the advice! My email should now be enabled.

Pauly198
New Member


Date Joined Feb 2018
Total Posts : 15
   Posted 3/2/2018 10:22 AM (GMT -6)   
I had an EEG done yesterday and my results came back normal of course.

magoo2
Veteran Member


Date Joined Mar 2015
Total Posts : 1246
   Posted 3/2/2018 12:33 PM (GMT -6)   
Sometime the test you need is seeing a biological dds. I believe there is one in Pewaukee

Pauly198
New Member


Date Joined Feb 2018
Total Posts : 15
   Posted 3/29/2018 5:04 PM (GMT -6)   
So I got my igenex results back today. I definitely was not expecting a positive result but that is what my results indicate..

IgM:

31 +
39++
41++

IgG:

23 ind
39 ind
41++

What do you guys think? Could this be a false positive? I had a regular western blot done last month and bands 41 for both igG and igM were abnormal so I decided to get the igenex test done.

goshawk
Veteran Member


Date Joined Sep 2016
Total Posts : 2123
   Posted 3/29/2018 5:46 PM (GMT -6)   
Hi Pauly198,

You might want to start a brand new post with your results and in the topic box put "Need help explaining test results"


I think more members will view it and they will be able help explain results.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32672
   Posted 3/29/2018 6:14 PM (GMT -6)   
Pauly198 said...
So I got my igenex results back today. I definitely was not expecting a positive result but that is what my results indicate..

IgM:

31 +
39++
41++

IgG:

23 ind
39 ind
41++

What do you guys think? Could this be a false positive? I had a regular western blot done last month and bands 41 for both igG and igM were abnormal so I decided to get the igenex test done.


Not a false positive. You had a negative at a different lab that doesn’t specialize in tickborne disease testing.

I can assure you that many people get negatives even with Igenex.
This test result with your symptoms = Lyme disease
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

magoo2
Veteran Member


Date Joined Mar 2015
Total Posts : 1246
   Posted 3/29/2018 6:19 PM (GMT -6)   
there is a good LLMD in Fond du Lac

Woodduck12
Regular Member


Date Joined Dec 2017
Total Posts : 135
   Posted 3/30/2018 3:22 PM (GMT -6)   
Pauly I'm near MKE. Dr. M in fondy is good. Let me know if you come across any Drs that take insurance. I have been on buhners protocol due to financial reasons.
Dr.m is good seen him 10 yrs ago.

Pauly198
New Member


Date Joined Feb 2018
Total Posts : 15
   Posted 3/31/2018 9:42 AM (GMT -6)   
Thanks for the recommendations. Maybe I’ll look into seeing that doc.
Girlie, do you really think it could be LD with only symptoms of visual static and some numbness in the face? The numbness isn’t so bad anymore. Sometimes I won’t get it for a few weeks.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32672
   Posted 3/31/2018 9:49 AM (GMT -6)   
Pauly198 said...
Thanks for the recommendations. Maybe I’ll look into seeing that doc.
Girlie, do you really think it could be LD with only symptoms of visual static and some numbness in the face? The numbness isn’t so bad anymore. Sometimes I won’t get it for a few weeks.


Yes I do. It’s only been a couple months - right?

I only had a few symptoms in the first few months. Over time I got more and more - ended up with many many symptoms when I was finally diagnosed 14 months later
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Pauly198
New Member


Date Joined Feb 2018
Total Posts : 15
   Posted 3/31/2018 10:05 AM (GMT -6)   
Yes, I’ve had it since he beginning of January

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32672
   Posted 3/31/2018 10:22 AM (GMT -6)   
Pauly198 said...
Yes, I’ve had it since he beginning of January


I suggest you treat now...don't wait for more symptoms - if I could turn back time....
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi
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