Have you suffered from my symptoms?
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I've suffered all symptoms you listed before diagnosis and treatment. - 0.0%
2
I've only suffered partial symptoms before diagnosis and treatment - 100.0%
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I've not suffered those symptoms - 0.0%

 
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SickKitty2016
Regular Member


Date Joined Mar 2018
Total Posts : 52
   Posted 3/1/2018 6:00 AM (GMT -6)   
I'm going to try and keep this short.

Symptoms started about 2 years ago.

I got the nexplanon implant after having a child.

Within 2-4 months I started with irritability/ constant menstruation.

I had the implant for 11 months, and continuously bled all but 4weeks, and added 5+lbs a month dispite diet or excercise.

I have always been tiny. Even when overweight.

All symptoms were chalked up to the implant. I also developed severe anxiety/panic attacks/PTSD episodes during this time.

We assumed that the symptoms would alliveate within 6 months to a year.

Anxiety and panic and PTSD attacks became unbearable. I couldn't live my life.

Was put on benzos in april-may, and an ssri in June.

This seemed to alleviate symptoms. Chalked up to mental health. (I've always been able to go outside, for a carride, or distract myself, and I'd be fine. Bit I was finding myself having a panic/anxiety attacks so bad within minutes of leaving home, I couldn't go anywhere)

I was basically paralyzed to my own home and going crazy.

So, I changed my diet.(I had been on keto diet before, and it greatly reduced all preexisting symptoms in the past, so I figured I would work myself into keto. But that seemed impossible, so I limited my food intake. Also, I've always suffered from depression, anxiety, panic, and PTSD attacks. But they were easily managed with diet and exercise)

I took my meds about an hour-2 before eating. This seemed to help a little, but I would still have minor attacks after eating.

I started eating less and less to keep my medicine effective. Then started the severe ibsd. (I've always have had ibs-d, but eating small amounts would cause me to be in the bathroom in minutes- like ONE blackberry) I believe it started around July/August time frame. So I ate less.

Im not sure when I noticed this, but, I realized that everytime I ate, I would have an attack(an adrenaline surge that would last hours). Didn't matter what. Since the implant placement-removal-meds in May/April, I would have a severe anxiety attack. Mostly when I ate, but they we're happening more and more for no reason/ trigger.

I began liquid fasting August-sept timeframe due to severe stress. I had been under severe stress for almost a year at the time.

Again, chalked it up to food.

Symptoms continued to get worse and worse.

The diet helped stop/control the adrenaline surges. I chalked it up adrenaline fatigue. So I stayed on the liquid diet, hoping to heal mygut, and I would only eat small tidbits throughout the day.

Things got worse. I lost my father and mother within a week-in-a-half. My body has never delt well with greif. Never. But the stress seemed to push me over the edge.

Jan 2017 I was 165+.

By December I was 104 and still dropping. When I hit 100lbs, I stopped weighing.

Conventional doctors didn't notice, and when I had tests done by specialists, I was told it was all in my head, go see a therapist. That was my breaking point.

I couldn't eat period at the time. I was only on liquids and only forced myself to eat when I felt faint/weak/ low blood sugar.

Ssris and benzos became less effective.

I made an appointment with a natropath, cause I was literally dying. I was afraid if I was admitted to the hospital for weight reasons chalked up to Anorexia, it would make things worse. Plusits really nerve racking when your specialist calls you crazy.

The natropath blanket tested me.

I saw them at the beginning of Jan, was given tests that I had to send in myself.

Couldn't really start them, due to money issues, until Feb 1, 2018.

I had had three+ bloodwork draws from April-may-october.

Nathropath noticed I had no hormones. Noted I got severely Ill when I ate, ibsd and panic attack s all caused by adrenaline surges that would last all day after any type of food/ or sugary drinks.

By this time, I was living off of vitiamins/suppliments/coffee. Normal intake was 300-500 calories. I made sure to keep my electrolytes up. And only eat when I HAD to.

Started having chest pains, adrenal rushes would last all day. I did electrolytes to help with chest pains and other issues.

Then I HAD to eat to get through testing, (bloodwork/stool/urine samples/ (hormonal samples-i still need to do, but I'm too poor right now)

These tests were expensive, but I figured whatever issue I had, I would suck it up to get through the tests with out causing fainting, exc.

My chest pains became so frequent, with palpitations, I bought a Fitbit and started monitoring my heartrate in Jan. I noticed after food my heartrate would rise to over 100 for many hours, while laying down.

So then I just would have tidbits, my heartrate would rise, but only for about an hour or two.

Then it got worse.

Anything, everything I ate caused adrenaline surges that are now lasting 10+ hours a day and a rapid heartrate that started giving me chest/kidney pains/ palpitations/ ibsd.

My heartrate would be upwards of 135+/-.

This lasted for hours, had to sleep during day, and terrible insomnia (I've had it all of my life- but it is so bad I'm taking more benydryl to help me sleep than I should. I was on Tylenol PM, but was told to switch to benydryl, since I had trouble with melatonin.)

Ok, back to where I had to start eating to get through tests.

Chest pains, shortness of breath, rapid heartrate with palpitations, tingling extremities, ibsd, and 10+hours of adrenaline surges. After eating normally. I started taking my BP after the first few days I started eating normally again.

After food, my BP would increase as high as 171/109.

Never in my life have I had BP issues. (Except during labor with no sleep that lasted for 4 days straight)

In Jan my natropath noted I had no female hormones. My doctor and endocrinologist never mentioned anything about it...

Here I am now, if I liquid fast, and only eat tidbits, everything still goes crazy, but not as long or severe. I may suffer for 1.5-2.5 hours. Then everything would regulate.

Tests results:

High alkaline
High copper
Low zinc
Low B12
No female hormones
W.b. igm-1 band positive
W.b. igg-3 bands positive
(For Lyme)

No other issues.

Mensies time(sorry, tmi)
Cramps for4 days before.
Light brown/ pink discharge
Clear tissue release with spots of blood.
(The whole 4days before I started- I was actually late)
Night sweats
Night chills
Cold sweats
Migraines
Pain all over.
Severe insomnia

5th day I started mensies.
Regular period, with exception of only lasting 4 days.

(My regular mensies- cramping one day before, high energy before start-usually lasted a few hours. Lasted 7 days, I would start always 28 days. After implant insertion, then removal, period would come 28-32day in cycle. But no real abnormally. Every other period was slightly shorter following a normal heavy period- this has happened since I went on the pill over 8yrs ago)

Been having mensies for 18 years now.


My last period was weird. I think it's tappering off.
I am post-mentaposel according to my hormonal levels. This has been like this since test in may apparently.
No estrogen, but reading small amounts of proestrogen.
New bloodwork sayes no female hormones at all are being produced in my body.

I'm not even 30, and I'm exibiting signs of menopause.

Before my last visit, I ate every trigger I could, so the nathropath could see me at my worst.

By thetime the natropath checked me, everything was high. But lower than earlier self checks. But it was more than enough to worry him.

More in-depth testing is being done today.

It's suspected that I have Lyme, but by CDC rules I'm negative. So more in-depth testing is required to find the final positive band to treat for lyme.

It was stated that I AM suffering from a bacterial infection that is completely messing up my nervous system. We just need a positive band and find out what bacterias that are present.

My health is rapidly declining.

So, now that you know my story, I have a question.

Short and easy.

Anyone suffer from high BP and heartrate, and adrenaline surges after eating? I'm not on antibiotics, or being treated at all yet. (Chest pains, kidney pain too?)

If you have experienced all of this before treatment, please let me know what your diagnosis is, and the bacteria you have!

(Also, I didn't have the typical first stage symptoms- that I know of. No round rash, no flu like symptoms- I haven't had a tick bite, that I know of for sure since 2012. I may have had one between 2012-2015, bit I honestly don't remember)

I do remember seeing small bug bite looking bumps and rashes. But they were chalked up to bug bites or an allergic reaction.

I did have a rash in my lower leg that was weird. But it wasn't round. It was more like a dnske crawling. (So, I may have been carrying the bacteria for a long time, not knowing about it until now.)

Please, let me know if you had my symptoms, what bacteria you had, and what were you diagnosed with?

Thx so much!

Dahlias
Veteran Member


Date Joined Jun 2017
Total Posts : 518
   Posted 3/1/2018 8:12 AM (GMT -6)   
Hi! I don't have answers for you, but I wanted to welcome you until someone comes along who does. What an ordeal! sad I'm so sorry you've been going through all of this and I hope you find the path to recovery soon!
"This too shall pass. It might pass like a kidney stone, but it will pass."

Notime4lyme
Regular Member


Date Joined Dec 2017
Total Posts : 386
   Posted 3/1/2018 12:23 PM (GMT -6)   
I what you mean. I had somewhat similar symptoms to you at one point.

I felt really terrible every time I ate to the point where I just couldn't eat. I didn't have chest pain, but I had a wheezing sound deep in my chest, which I think was from mycoplasma pnuemoniae (a co-infection). This was actually after I was diagnosed and supposedly "treated" for lyme (with one month of amoxicillin).

I've had the rashes that look like rings that move, and little bumps that looked kind of like hives. I also have "stretch mark" rashes that were from the bartonella.

I was also having trouble with my kidneys. I kept feeling like I had kidney stones.
I lost a lot of weight, and had low zinc and B12. I was also having a lot of anxiety about everything in general.

I think lyme and losing a lot of weight can really mess up your hormones.

I didn't have high blood pressure or adrenalin rushes, but I did have times where I felt hyperactive for no reason.

It can be really tough to get a positive test. Maybe your naturopath could treat based on your symptoms. Herbs are good because they don't screw up your digestive system like antibiotics do, if you are trying to gain more weight.

From your symptoms it sounds like you have lyme and probably babesia and bartonella too. Babesia can cause chest pains and headaches. Bartonella is supposed to cause anorexia -type symptoms.

SickKitty2016
Regular Member


Date Joined Mar 2018
Total Posts : 52
   Posted 3/1/2018 12:50 PM (GMT -6)   
Notime4lyme said...
I what you mean. I had somewhat similar symptoms to you at one point.

I felt really terrible every time I ate to the point where I just couldn't eat. I didn't have chest pain, but I had a wheezing sound deep in my chest, which I think was from mycoplasma pnuemoniae (a co-infection). This was actually after I was diagnosed and supposedly "treated" for lyme (with one month of amoxicillin).

I've had the rashes that look like rings that move, and little bumps that looked kind of like hives. I also have "stretch mark" rashes that were from the bartonella.

I was also having trouble with my kidneys. I kept feeling like I had kidney stones.
I lost a lot of weight, and had low zinc and B12. I was also having a lot of anxiety about everything in general.

I think lyme and losing a lot of weight can really mess up your hormones.

I didn't have high blood pressure or adrenalin rushes, but I did have times where I felt hyperactive for no reason.

It can be really tough to get a positive test. Maybe your naturopath could treat based on your symptoms. Herbs are good because they don't screw up your digestive system like antibiotics do, if you are trying to gain more weight.

From your symptoms it sounds like you have lyme and probably babesia and bartonella too. Babesia can cause chest pains and headaches. Bartonella is supposed to cause anorexia -type symptoms.



I'm breaking out on my hand end now. They look like small stretch marks. I'm guessing it's another infection. Also I was weezing today when I woke up,and almost passed out getting up. I felt like crap. My butt hurts too from the breakoits!

They hurt so bad!! After my testing, I might come home and take a picture for the doc, and then anespom salt bath to draw out symptoms.

Thank you so much for your reply!

But I just found out that my insurance may not pay for my treatment. sad

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 33957
   Posted 3/1/2018 2:39 PM (GMT -6)   
SickKitty - welcome - Wow - you have been through so much...I am so sorry.

You mentioned adrenaline rushes. What do they feel like? I'm not sure if that's what one of my symptoms is.

I get these shivers all of a sudden..they happen often. Sometimes they are triggered by something that affects me emotionally - like a good song...or something stimulating on t.v. And very cold temperatures also trigger them. Is that similar to what you experience?

They are horrible.


Have you had your adrenals tested? Cortisol and ATCH in particular?

What were the positive bands on the IgM and IgG? could you list them...there are some that are lyme specific bands.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

SickKitty2016
Regular Member


Date Joined Mar 2018
Total Posts : 52
   Posted 3/1/2018 8:13 PM (GMT -6)   
Girlie said...
SickKitty - welcome - Wow - you have been through so much...I am so sorry.

You mentioned adrenaline rushes. What do they feel like? I'm not sure if that's what one of my symptoms is.

I get these shivers all of a sudden..they happen often. Sometimes they are triggered by something that affects me emotionally - like a good song...or something stimulating on t.v. And very cold temperatures also trigger them. Is that similar to what you experience?

They are horrible.


Have you had your adrenals tested? Cortisol and ATCH in particular?

What were the positive bands on the IgM and IgG? could you list them...there are some that are lyme specific bands.


The adrenaline surges feel like the fight or flight rush you get by falling off of something, or almost falling. But they last all day.

As for the bands, I know they were Lyme specific, but not which ones exactly..

I had 3positive in the later bands, and 1 in the early stage band. Sorry, I know that's not much help. sad

I just got home from doing some more in-depth testing.

Hot and cold doesn't really start my rushes.

It's more of energy from food, or even just as simple as waking up.
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