Posted 3/1/2018 5:00 AM (GMT -6)
I'm going to try and keep this short.
Symptoms started about 2 years ago.
I got the nexplanon implant after having a child.
Within 2-4 months I started with irritability/ constant menstruation.
I had the implant for 11 months, and continuously bled all but 4weeks, and added 5+lbs a month dispite diet or excercise.
I have always been tiny. Even when overweight.
All symptoms were chalked up to the implant. I also developed severe anxiety/panic attacks/PTSD episodes during this time.
We assumed that the symptoms would alliveate within 6 months to a year.
Anxiety and panic and PTSD attacks became unbearable. I couldn't live my life.
Was put on benzos in april-may, and an ssri in June.
This seemed to alleviate symptoms. Chalked up to mental health. (I've always been able to go outside, for a carride, or distract myself, and I'd be fine. Bit I was finding myself having a panic/anxiety attacks so bad within minutes of leaving home, I couldn't go anywhere)
I was basically paralyzed to my own home and going crazy.
So, I changed my diet.(I had been on keto diet before, and it greatly reduced all preexisting symptoms in the past, so I figured I would work myself into keto. But that seemed impossible, so I limited my food intake. Also, I've always suffered from depression, anxiety, panic, and PTSD attacks. But they were easily managed with diet and exercise)
I took my meds about an hour-2 before eating. This seemed to help a little, but I would still have minor attacks after eating.
I started eating less and less to keep my medicine effective. Then started the severe ibsd. (I've always have had ibs-d, but eating small amounts would cause me to be in the bathroom in minutes- like ONE blackberry) I believe it started around July/August time frame. So I ate less.
Im not sure when I noticed this, but, I realized that everytime I ate, I would have an attack(an adrenaline surge that would last hours). Didn't matter what. Since the implant placement-removal-meds in May/April, I would have a severe anxiety attack. Mostly when I ate, but they we're happening more and more for no reason/ trigger.
I began liquid fasting August-sept timeframe due to severe stress. I had been under severe stress for almost a year at the time.
Again, chalked it up to food.
Symptoms continued to get worse and worse.
The diet helped stop/control the adrenaline surges. I chalked it up adrenaline fatigue. So I stayed on the liquid diet, hoping to heal mygut, and I would only eat small tidbits throughout the day.
Things got worse. I lost my father and mother within a week-in-a-half. My body has never delt well with greif. Never. But the stress seemed to push me over the edge.
Jan 2017 I was 165+.
By December I was 104 and still dropping. When I hit 100lbs, I stopped weighing.
Conventional doctors didn't notice, and when I had tests done by specialists, I was told it was all in my head, go see a therapist. That was my breaking point.
I couldn't eat period at the time. I was only on liquids and only forced myself to eat when I felt faint/weak/ low blood sugar.
Ssris and benzos became less effective.
I made an appointment with a natropath, cause I was literally dying. I was afraid if I was admitted to the hospital for weight reasons chalked up to Anorexia, it would make things worse. Plusits really nerve racking when your specialist calls you crazy.
The natropath blanket tested me.
I saw them at the beginning of Jan, was given tests that I had to send in myself.
Couldn't really start them, due to money issues, until Feb 1, 2018.
I had had three+ bloodwork draws from April-may-october.
Nathropath noticed I had no hormones. Noted I got severely Ill when I ate, ibsd and panic attack s all caused by adrenaline surges that would last all day after any type of food/ or sugary drinks.
By this time, I was living off of vitiamins/suppliments/coffee. Normal intake was 300-500 calories. I made sure to keep my electrolytes up. And only eat when I HAD to.
Started having chest pains, adrenal rushes would last all day. I did electrolytes to help with chest pains and other issues.
Then I HAD to eat to get through testing, (bloodwork/stool/urine samples/ (hormonal samples-i still need to do, but I'm too poor right now)
These tests were expensive, but I figured whatever issue I had, I would suck it up to get through the tests with out causing fainting, exc.
My chest pains became so frequent, with palpitations, I bought a Fitbit and started monitoring my heartrate in Jan. I noticed after food my heartrate would rise to over 100 for many hours, while laying down.
So then I just would have tidbits, my heartrate would rise, but only for about an hour or two.
Then it got worse.
Anything, everything I ate caused adrenaline surges that are now lasting 10+ hours a day and a rapid heartrate that started giving me chest/kidney pains/ palpitations/ ibsd.
My heartrate would be upwards of 135+/-.
This lasted for hours, had to sleep during day, and terrible insomnia (I've had it all of my life- but it is so bad I'm taking more benydryl to help me sleep than I should. I was on Tylenol PM, but was told to switch to benydryl, since I had trouble with melatonin.)
Ok, back to where I had to start eating to get through tests.
Chest pains, shortness of breath, rapid heartrate with palpitations, tingling extremities, ibsd, and 10+hours of adrenaline surges. After eating normally. I started taking my BP after the first few days I started eating normally again.
After food, my BP would increase as high as 171/109.
Never in my life have I had BP issues. (Except during labor with no sleep that lasted for 4 days straight)
In Jan my natropath noted I had no female hormones. My doctor and endocrinologist never mentioned anything about it...
Here I am now, if I liquid fast, and only eat tidbits, everything still goes crazy, but not as long or severe. I may suffer for 1.5-2.5 hours. Then everything would regulate.
No female hormones
W.b. igm-1 band positive
W.b. igg-3 bands positive
No other issues.
Mensies time(sorry, tmi)
Cramps for4 days before.
Light brown/ pink discharge
Clear tissue release with spots of blood.
(The whole 4days before I started- I was actually late)
Pain all over.
5th day I started mensies.
Regular period, with exception of only lasting 4 days.
(My regular mensies- cramping one day before, high energy before start-usually lasted a few hours. Lasted 7 days, I would start always 28 days. After implant insertion, then removal, period would come 28-32day in cycle. But no real abnormally. Every other period was slightly shorter following a normal heavy period- this has happened since I went on the pill over 8yrs ago)
Been having mensies for 18 years now.
My last period was weird. I think it's tappering off.
I am post-mentaposel according to my hormonal levels. This has been like this since test in may apparently.
No estrogen, but reading small amounts of proestrogen.
New bloodwork sayes no female hormones at all are being produced in my body.
I'm not even 30, and I'm exibiting signs of menopause.
Before my last visit, I ate every trigger I could, so the nathropath could see me at my worst.
By thetime the natropath checked me, everything was high. But lower than earlier self checks. But it was more than enough to worry him.
More in-depth testing is being done today.
It's suspected that I have Lyme, but by CDC rules I'm negative. So more in-depth testing is required to find the final positive band to treat for lyme.
It was stated that I AM suffering from a bacterial infection that is completely messing up my nervous system. We just need a positive band and find out what bacterias that are present.
My health is rapidly declining.
So, now that you know my story, I have a question.
Short and easy.
Anyone suffer from high BP and heartrate, and adrenaline surges after eating? I'm not on antibiotics, or being treated at all yet. (Chest pains, kidney pain too?)
If you have experienced all of this before treatment, please let me know what your diagnosis is, and the bacteria you have!
(Also, I didn't have the typical first stage symptoms- that I know of. No round rash, no flu like symptoms- I haven't had a tick bite, that I know of for sure since 2012. I may have had one between 2012-2015, bit I honestly don't remember)
I do remember seeing small bug bite looking bumps and rashes. But they were chalked up to bug bites or an allergic reaction.
I did have a rash in my lower leg that was weird. But it wasn't round. It was more like a dnske crawling. (So, I may have been carrying the bacteria for a long time, not knowing about it until now.)
Please, let me know if you had my symptoms, what bacteria you had, and what were you diagnosed with?
Thx so much!