I said I would post at the year mark, and we passed it! It's been over a year now that my kid has been "well". (I generally avoid saying cured/remission because those words tend to be controversial. He is simply "well" and healthy!). He has not shown any obvious symptoms related to the lyme and company (for the record, I think coinfections were more of an issue than lyme - like babesia and bartonella and who knows what else). Last symptoms were February 2017. Every few weeks, he would have flu-like symptoms (fever, chills, headache, sore throat, weak). And then they stopped - just like that.
NOTE: To be honest, the only "issue" that I see in his health is very, very mild situational anxiety.
It's hard to compare a "before" and "after" with him, as I believe he had this in utero/breastfeeding. He was generally well the first several years. But given our duration, I am comparing a young child to a teenager/young adult. So, it's really impossible to truly compare given how much a person changes in those years!
BUT he went from a completely nonfunctional young child (who missed a lot of school for 3 years, IEPs, 504s, part-time school, truancy, homebound, hospitals) to a "normal" teenager who is socialable, happy, functioning, active, and A/B student. We've had truancy called on us for missing too much school (they didn't do anything since he had well-documented medical issues) and have had some very traumatic experiences with medical professionals (including one very disastrous hospital stay that I still have stress over to this day).
All of his prior diagnosis (some very severe and "life-long" diagnosis) are all dropped. If I ever saw any of those unsupporting doctors who didn't believe and failed to help us in any manner, I will tell them that they were all "so very wrong.... so very very wrong".
He was a very challenging case to treat, and there are still many things I don't fully understand upon reflection (and probably never will). We have had many, many, many epic failures in both mainstream/allopathic AND alternative medicines. He was unable to heal on long term/multiple abx (for years), as well as other treatments. So, we switched paths numerous times.
However, we saw a very bright and compassionate functional medicine MD who was instrumental in helping us. We are probably one of his most challenging cases, as we don't respond "typically" to treatment compared to so many others.
Some key highlights for him that I recall:
IV gluatathion/Myer's Cocktail : I feel this "woke" up his immune system. After starting these, he started to have regular physical herxs which he didn't have previously.
HBOT (both hard and soft chambers) : This was done later in treatment (not the early years). This was a HUGE factor in him healing/improving.
Herbals : He was on herbals when the last of his symptoms went away (and periodic HBOT).
Persistence - never ever giving up.
So, although he's going well nowadays, I can't overlook the fact that this strongly negatively impacted his childhood and robbed him of a good part of it. This will be a part of him forever.
The time has come for things to change in our medical community. We need to train doctors differently (clearly, it's a broken system). We need to support those with chronic illnesses. No more excuses blaming the sick (or the parents!). We need help!! No more excuses - time to change how things are done!
My best advice is to never, ever give up. NEVER. My son was a very challenging case, and it took several years of trial/error for treatment. BUT he is well now. So, even though it took a long time, I share this with you because even the most challenging cases CAN be well again!
I truly wish everybody the best in their journey to healing and better health!
Kid#1: Extremely sick for several years, very difficult to treat, but doing great now!
Kid#2: Still sick now despite being treated for years but doing better (not well yet).
Kid#3: Generally good but relapsing off/on.
Me: Adv Labs positive 2016 (suspected I passed to my kids)-not as sick as others, mostly battling fatigue and yeast issues (heart/kidney issues resolved)
Treating with herbals now.
Post Edited (1000Daisies) : 3/1/2018 9:00:36 AM (GMT-7)