Working with lyme and co's

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Spanish
Regular Member


Date Joined Sep 2017
Total Posts : 135
   Posted 3/1/2018 1:13 PM (GMT -6)   
Hi all, As im sure many of you did, I had to quit work when my symptoms were at their worst. My neuro symptoms were so bad there was no way I could carry on so it wasnt really a decision I made, I just had no choice. Itwas particularly worrying at the time as I didnt even have a diagnosis.

Now, four months in to treatment I started to feel a little better and have had to go back to work. I feel like I should have waited a bit longer but my finances just couldnt take it.

I was just wondering how many of you managed to work through this and still get better? How didyou manage it, and did you feel that the added stress of working hindered you in your recovery?

Dahlias
Regular Member


Date Joined Jun 2017
Total Posts : 454
   Posted 3/1/2018 3:09 PM (GMT -6)   
I have continued working, but only part-time. I could not have worked full-time, and I only continued at one of my part-time jobs through the worst of it because I was a new teacher and I didn't want to let down the kids and lose my place at a good school. It was only a few hours every other day.

I'm gaining back some hours at my other part-time job, and I have to let other things go. I am always behind in grocery shopping and my house is a mess and I don't cook the way I used to. But there is only so far you can push yourself.

I am doing better than I was before and could probably manage to work full-time now if I had to, but I wouldn't be able to do anything else.

Did you go back already?
"This too shall pass. It might pass like a kidney stone, but it will pass."

goshawk
Veteran Member


Date Joined Sep 2016
Total Posts : 2101
   Posted 3/2/2018 4:24 AM (GMT -6)   
I work full time and I went back a bit to early when I was at only about 25 % better. It was difficult and I still get pretty worn out by the end of the work day.

I am at 90 to 98 % better now after a year and a half depending on the day. I still have daily symptoms and they increase in the late afternoon. I figure from stress/workload at work.

The benefit from working though, is I can buy all my herbals and supplements as they are not covered by insurance as we all know.

Spanish
Regular Member


Date Joined Sep 2017
Total Posts : 135
   Posted 3/2/2018 11:21 AM (GMT -6)   
Dahlias, Yes im back at work already, but i am struggling with it. The physical side of things is not so bad but stress really gets to me and im exhausted by the time i get home.

Goshawk, I feel like im maybe 40% better, I would have liked to have waited longer but as you said If i want to get better I had to pay for all the meds some way.

Im the sole provider in our house so its been tough.. It really is a tricky situation we find ourselves in!! . I remain positive and I guess I should be thankful for decent progress in just a few months.

Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32507
   Posted 3/2/2018 12:45 PM (GMT -6)   
I haven't worked for over 4 years now.


Hubby wants to treat, but he's waiting (still) for me to get back to work because he may get worse with treatment and his symptoms are manageable now.


We've only had two incomes for a few years during our marriage. (I was a stay-at home mom for most of our son's childhood)

Well, I guess we're not retiring until we're 75 or 80.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Spanish
Regular Member


Date Joined Sep 2017
Total Posts : 135
   Posted 3/2/2018 1:29 PM (GMT -6)   
Wow four years, I feel for you!.. I find it remarkable the effect this terrible disease can have on peoples lives and yet there is little if any help from the government and medical community.

Before I got ill I never would have believed it could be this way in this day and age..

mudshark
Regular Member


Date Joined Aug 2017
Total Posts : 119
   Posted 3/2/2018 11:15 PM (GMT -6)   
I've been lucky in this respect and not had to miss work other than a day or two here and there. I'm thinking the way things were progressing last year had I not got into treatment who knows how bad it would have gotten. The stress and anxiety from worrying about what fatal disease I may have had was worse than the symptoms, but that's far behind me now. I was probably a lot healthier and fitter than average when I got sick, so I think that has played a big role in keeping me off the couch. Looking back I'd been having annoying symptoms for years, but nothing that slowed me down or screamed LD. I think the multiple tick bites over the years finally overloaded my immune system.

To be honest after hearing about the suffering many folks go through from just 1 tick bite I can't understand why I'm not dead or paralyzed. I've been bitten no less than 50 times over the last 10-12 years, and even though I got 90% of them off me w/in 24 hrs or less (other 10% < 48hrs), that's a lot of tick bites.

Post Edited (mudshark) : 3/3/2018 6:34:13 AM (GMT-7)


Girlie
Forum Moderator


Date Joined May 2014
Total Posts : 32507
   Posted 3/2/2018 11:44 PM (GMT -6)   
I don’t know why some people are hit harder than others’.

I think in part - it depends on what symptoms you have and maybe what area of the brain is affected? If you’re memory and cognition loss is severe - you won’t be able to work.

I have not had the fatigue but I have some nerve issues that have been debilitating.
The bad nerve pain that I have in the left scapula area radiating down my left arm and hand is my worst symptom.
I could tolerate most other symptoms.

There are a lot of people who have severe fatigue and can barely get out of bed each day. That would be very difficult.

I was also (seemingly) healthy and fit at the time it hit me.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14;
added biaxin Sept. 26/14
Disc. amox,added Ceftin Nov. 20th.;
Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin);
Abx/herb break Apr-July/15; July-mino; Aug. added Rif;
Nov./15 mino - to biaxi

Post Edited (Girlie) : 3/2/2018 10:49:22 PM (GMT-7)


mudshark
Regular Member


Date Joined Aug 2017
Total Posts : 119
   Posted 3/3/2018 7:49 AM (GMT -6)   
I imagine there may be many factors at play determining how each person is affected, with the person's immune system capacity likely being one of the main ones. I imagine the strain of the bacteria you are infected with, which co-infections come along for the ride and possibly even where on the body you are bitten. Who knows if blood type vs infection could play a role, or someone's ayurvedic dosha. With all the different strains of each infection they have and continue to discover if you do the permutations there are likely thousands of combinations of overall infections one can get. Every person is different, and I'm thinking every infection is likely varied in some way as well.

Spanish
Regular Member


Date Joined Sep 2017
Total Posts : 135
   Posted 3/4/2018 11:07 AM (GMT -6)   
Girlie youre right, my worst symptoms were memory and cognitive loss along with nerve issues even a full on seizure these made it impossible for me to work, once my symptoms appeared they came on strong. I went from being relatively ok to practically disabled within a couple of months.

Id been bitten by a tick 3 years earler but think my immune system kept it at bay until I caught chicken pox from my kids then all hell broke loose.

On the plus side once things did get bad I was able to start treatment pretty quick compared to what I have heard from others and I think this is the reason I have made a significant recovery in a short amount of time.

dacarte3
Veteran Member


Date Joined Feb 2016
Total Posts : 1896
   Posted 3/4/2018 6:37 PM (GMT -6)   
I worked through the worse of lyme. It's amazing what the human will can do when you have absolutely no choice. All the physical symptoms and neuro symptoms, lack of sleep from the terrible insomnia, just powered through. I couldn't not work, it was not an option.

My job performance suffered. My managers basically had an intervention with me because they didn't understand why I went from their best analyst to a flailing one. I made up a bunch of excuses to buy me some time. I couldn't go into a whole soliloquy about lyme. They wouldn't understand.

Luckily, this happened at the end of the worse of lyme and things started to get better from that point on.
Lyme (Igenex) - Positive IFA and WB bands 23, 31, 41
Ehrlichia (Igenex)
Mycoplasma (Labcorp) - Score: 595

ABX Treatment: 03/2016-04/2016; 7/2017-9/2017
Buhner Protocol for Borrelia, Babesia, Bartonella and Mycoplasma (treating everything to be on the safe side): May 2016 - Dec. 2016; 8/2017 - Present
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